T1 High Grade Bladder Cancer

[pff-mlf43]

My husband has T1 high grade bladder cancer. He recently completed 6 treatments of BCG with no problems and now waiting until June 2 for testing to see if BCG treatment worked...Anyone else have same type of cancer?

[brimas]

hi my husband had t1 high grade but had his bladder removed with his prostate in 2014 all the best to you and your husband at this worrying time

[pff-mlf43 in reply to brimas]

I am a BIG worrier! If BCG treatments didn't get all cancer, next step bladder removal , husband is trying to stay positive....I can deal with the known, it's the unknown that drives me crazy...Thanks for your caring...

[brimas in reply to pff-mlf43]

have you had results yet hope all goes well like you say its the unknow that's the worry

[pff-mlf43 in reply to brimas]

We don't re-test with cystoscopy until June 2...

[brimas in reply to pff-mlf43]

hope to hear back from you prayers said for you both

[twin2boys in reply to pff-mlf43]

My husband had bladder cancer. He found out 11 years ago. At first the Dr. suggested he have his bladder removed. He begged the Dr. not to and try what ever he had to do. He had 2 complete sets of BCG treatments. Thanking God he has been cancer free. We hope it continues this way. He is very thankful to the Dr. for all of his help and care in getting him thru this. I wish the best to all. Don't give up and have faith.

[brimas in reply to twin2boys]

my husband had bladder removed

[westseajoe in reply to twin2boys]

have had 24 BCG treatments thus far ( since 2 surgeries back in 2012 )

have 1 more set of 3 to go after next bladder inspection. There was alot of cancer to remove but nothing went thru muscle wall

[Rossi68]

Fingers crossed for when scan day arrives

[pff-mlf43 in reply to Rossi68]

Husband went in for cystoscopy after 6 BCG treatments...I wasn't called back so I could ask questions(my husband is wonderful listener but won't ask questions) they told him 3 more BCG treatments and that he had two lymph nodes on chest they wanted to check out after the 3 treatments which will end June 16 BUT they didn't schedule him for CT Chest and ANOTHER cystoscopy until SEPT.1 !!! Can't imagine WHY the wait and of course that would have been one of my questions...I feel like it's a Medicare thing that there must be waiting period between cystoscopy's????

[westseajoe in reply to pff-mlf43]

i am 71 and had 2 bc surgeries in 2012- am on medicare- before each set of 3 bcg round, i do have a bladder inspection ( Cystoscopy) i am approaching my 7th and last round after the next bladder inspection end of this month. Been clear each time.

[fmarr]

I have had T1a high grade disease and 6 BCG treatments but wait until June to prayerfully and hopefully find no BC.

[pff-mlf43 in reply to fmarr]

Prayers for good results!

[brimas]

all the beast fingers crossed

[ChrisRS]

I have had 2 years of BCG treatment. It works for about two thirds of people, so hopefully your husband will be one of the lucky ones. If he's clear this time, he should start maintenance BCG, which is sets of three treatments, three months and then six months apart, for up to 3 years. Good luck.

[pff-mlf43]

Thanks for your input Chris...Always good to hear from someone that has been there...My husband is going to MD Anderson in Houston, Tx and that's the best place for treatment he can get , we have been very pleased with them... Best wishes for your recovery...

[MyraBarr]

Hi, I was diagnosed with T1G3 in 1999. Luckily I was working for a physician and he sent me immediately to a Urologist and had a Turbt the next day and they started me on BCG right away. I have hat at least 15 rounds and in remission til 2008 and then 2 more rounds . I have been in remission this time since 09. I have cysto's yearly now !! I hope your husband has as good a result as I did !

[pff-mlf43 in reply to MyraBarr]

Happy to hear of your good results! Thanks for sharing.. May you continue to stay in remission...

[meghwyn]

Hello, On Tuesday I had my 1st cystoscopy after 6 weeks of BCG.

No Tumours evident, and Consultant said that it is looking quite encouraging.

My cancer seems to be the same as your Husband`s.

I too was concerned, but apprehension is probably the worst part. I wish him well and trust that with a positive attitude to this problem all will be well at his cystoscopy examination.

The examination itself takes less than 10 minutes and he should be able to see the inside of his bladder on screen, as the cysto takes place. An interesting, if slightly toe curling experience, although under local anaesthetic, quite a painless one!

Wishing you and your husband well and hoping for a good result on 02 June.

David

[pff-mlf43 in reply to meghwyn]

Hi David: Always good to hear positive results! This will be the third cysto for my husband but they sedate him to where he doesn't see anything.. Maybe because he has Afib occasionally ....Ready for June 2 to get results!

[cobdoher]

I had an operation just before Christmas and another in early January for High grade, aggressive , non invasive cancer. Nothing at all since then, no treatment, no calls back to hospital going for a blood test shortly but that is all. I feel great,

[rosietheriveter]

I have the same type of cancer and will have my third BCG treatment on Wednesday.

Stay positive!!

[pff-mlf43 in reply to rosietheriveter]

My husband has had nine BCG treatments.. We are now waiting until Sept.1 when they will do another cystoscopy and CT Scan on his chest (dr. says CT scan is unrelated to his bladder cancer but there are two lymph nodes in his chest look suspicious ....This waiting is awful! Good luck with the BCG treatments...

[pff-mlf43]

Sept 1 my husband had another cystoscopy Sept 1 and it had NO CANCER CELLS! Thank you Lord! He will be on maintenance for while which involves 3 BCG treatments with another cystoscopy in three months....He has tolerated the 12 BCG treatments he had very well had now that we have started on round 14 the BCG treatments seems to be putting him down for the first day and half and he goes to bed...This is doable he thinks compared to what many have had to go through...Hoping he continues to have "no cancer cells"!

[McLabhran]

Black see oil. Read up on this oil. Comes in liquid and capsules. Stay away from acidic foods, drink water constantly (needs to keep the bladder flush), exercise, stay away from sugar and rest the body as much as possible.

[poppadew]

What is BCG and what happens when you have to have bladder removed ??