Two weeks seemed like forever..... - Fibromyalgia Acti...

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Two weeks seemed like forever.....

rainbowdancer profile image
5 Replies

Hi everyone well just about through my 2 weeks of OH being away in respite!! I had a nurse/carer in for the mornings and my Daughter for afternoons but,the latter was not good as she was having to move as well and work. I could have had another carer but she insisted on being here. She also stayed at night,,,,but moaned to Tom Dick and Harry that she was fes up wanted to sleep in her own house and ....even said I don't do enough for myself.....

We have not rowed but I have felt so uncomfortable and a burden! -(

I find it hard to ask for help anyway....and I am also not remembering what she has told me about time she is going to be here....I am sure she moves the goal posts and confuses me,to cover her mistakes......Like today on my own all day as she said I did not need my carer and where is she now? Still out been on my own for 7 hours.....nearly fell twice and took me 2 and half hours to dress my self only to be told well at least you did it !!! Really!!+

Sorry waffling as usual but I hate my life at the moment and wish with all my heart I could feel better .walk or ,cook etc ....Took it all for granted before now I am not able to do anything!!!+

Anyway folks have a nice weekend if you can and enjoy the sunshire if it every gets here lol

Gentle exhausted hugs xxxxxxxxxxxxxxxxxxxxxxxx :)

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rainbowdancer profile image
rainbowdancer
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5 Replies

Bet you are really looking to getting your OH home again...... Hope he had. A good time In respite

VG xxx

rainbowdancer profile image
rainbowdancer in reply to

Hi VG my OH has remedial treatment when he is in respite it used to be a respite for me as I was his carer. His Dr says he is not well enough to look after me and himself. It is Combat Stress that look after him and they are very concerned it is all too much x x

RD

ladymoth profile image
ladymoth

It'll be so good for you to have familiar company again - back to the old routine! :)

Moffy x

jom277 profile image
jom277

I am so sorry that your local authority didn't treat you with the care that you deserve. Make sure that you follow your complaint up to stop it happening to others and demand a reassessment. If it took you 2 and a half hours to get dressed, had falls, that definitely warrants more assistance.

I am glad that OH back with you and you are not alone.

I am amazed at your patience and will, not to fall out with your daughter.

Take care

Jo

rainbowdancer profile image
rainbowdancer in reply tojom277

Hi Jon yes we are going to ask for a reassessment and the OT are coming on Monday about indoor help...ie rails etc. My OH will be back on Tuesday so that is good,I have now got a lovely lady who comes in every day and we are paying her from my husbands DLA , thank you for your help I will keep you posted. x

Rainbow x x x

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