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Fibromyalgia Action UK
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Hello all, I have a home visit on Thursday the 7th , I am dreading it , I have had one a while ago and that was fine , but now all isnt the same.

I know i am going to be told to go back to work ect , but i just cant ( Not Possible ) Why dont they understand. I Have been waiting for this home visit for months now ,

Just wanted to share with you all, as it helps to chat or do this , or i would go mad

Thanks for listening :)

10 Replies

You don't know for sure what will happen - all may be perfectly straightforward - if it isn't then you get an appeal going as soon as possible.

It's all so worrying at the moment, and many people feel as you do. The general mood is such that I am sure the government will have to back-track and return the benefits system to some sort of normality!

Take heart and don't worry too much about what might not happen. We're always here to turn to if things don't go well, and there is plenty of advice available to help you deal with it.

Best wishes for tomorrow, hope it goes well for you!

Moffy x


Thanks for the best wishes Moffy, I dont know how this appeal works really , thats if it does come to that as you say , From what i understand you have to attend the appeal , but i am house bound , thats why i got a home visit in the first place does anyone know if they do the appeal on a home visit also?

I am just worried like we all are :)


You can have an advocate to attend appeal for you. If it comes to that, we'll send you details of what to do!

Moffy x


Thoughts are with you, John.

As Moffy says many of us are worried about all the changes and how they will affect us. I am waiting for a response to my ESA50 form. I went to an advocate centre for help but I didn't feel that she filled in the form in a way that really represented how things are for me. She was friendly but a bit dismissive of everything really. She also poured out all her troubles to me (this happens a lot...I have that kind of face, I guess!) which although I was sympathetic I didn't feel was very appropriate or professional.

All I can do is wish you the very best of luck with your home visit. I should think if you are housebound and qualify for a home visit that would stand you in good stead for the support group.

I can't give you any advice as I am as much in the dark as you, but I would hope that if it came to an appeal they would visit you again at home.

Take care and try not to worry too much. We are all here to support you.

I'll be thinking of you on Thursday.

Let us know how you get on. Keeping fingers crossed (on right hand only 'cos my left wrist/forearm is in plaster as I fell over backwards 12 days ago and broke my wrist..lol...)

Comforting hugs



Thank You and i will let you know how i get on :)

I didnt even send the form back to them , I just phoned them and told them my problems as if they dont know !! they told me to get my GP to Fax then saying i was house bound then give them a call to see if they had got it and that was that , I will post again on Thursday :) Thank you for your support


You are very welcome. Hope all goes well.

Hugs Saskia. XX


Morning John,

At least they are coming to you that is some thing that will certainly take the stress away a bit.

I wish you all the best with it :) I think everyone will be waiting to hear how you get on. xgins


The fact they are actually coming to you is good because they have at least accepted you cant go to them.

The people I get cross with are people who say I can't do this or that ,then they say "Oh did I tell you I went to Butlins and went on the flutes etc " Or the ones with a bad back and can hardly walk but post pics on FB of them dancing their tiny heads off!! Best one was a person I know has top wac DLA a Car and carers allowance,yet she does gardening and painting and moving furniture etc!! Just makes my blood boil!! Sorry for going on.

I had someone come out to me and they could see how I was,The main thing is if you can't do something without it hurting you " Just don't do it "

Good luck for tomorrow ;-)

Gentle hugs x

Rainbow x


Yes i hear what you are saying about peeps going away on holidays ect ect and saying that they are ill, and there are a lot of people like that i expect .

I have had my illness for some 30 years now , never been on holiday since i got it , The thing that makes me laugh is they ask for a passport , why do i need one or a driving license for that matter , Thanks for the Good Luck , I will post after they have been I got a call today saying they would be here around 12 to 1 pm :)


Hello all, Well he has been and gone, It wasn't as bad as i thought it was going to be :) The guy was a nice bloke and i asked him what happens now, He said i don't make the choice But he did say he didn't think i would have any problems at all, He said i would have to have another home visit like the one i had today maybe in a few years time But he said i will be fine. So now i just wait for the brown letter :)


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