The dreaded brown envelope: was on the... - Fibromyalgia Acti...

Fibromyalgia Action UK

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The dreaded brown envelope

lynnecw profile image
13 Replies

was on the doormat when I got home from work yesterday. I left it laying there while I fed my dog and my 2 cats, not daring to open it. Then I made myself a cup of coffee and prepared myself to be denied the DLA I had claimed.

Well what a shock I got - high rate mobility and low rate care.

Thanks admin for the benefit and work sheets which I am sure helped a lot as did my lovely Doctor.

Good luck to everyone else that are trying to get the help we all deserve.

Lynne x

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lynnecw profile image
lynnecw
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13 Replies
Mdaisy profile image
Mdaisy

Great news!!! Thanks for sharing !

Beverlizer profile image
Beverlizer

well done you x

Nice one

VG X

Aisha profile image
Aisha

Great news....x

Maladjusted profile image
Maladjusted

congratulations, what a relief that must be for you

ladyt62 profile image
ladyt62

ive got polycystic kidneys that has spead to my liver ive got arthris in back- neck -hands chonic fatigue,very bad deppression,i get panick attacks,anixtey, plus a few other thingsi never leave the house and of course fibromalgia very bad it is ive only got about a yr or 2 before i have transpant i been on dla for long time indefernate which i throught meant forever any i had to feel out form last oct for them to look again hoping i wud get higher rate cos i cant walk so good or look after my self i told them how bad things r and i have fibro malgia u no what they took it of me all my dla i have appealed but that will take long time which is causing harder stressfull i havent got enough to keep warm i cant work things r really hard i dont no why they took it from me

tivoloschoice profile image
tivoloschoice

hello congratulations on your claim.. I have been claiming the same high rate mobility & low rate care for the last 5 years & for the last 3 years i have had a car thru the mobililty scheme.. it is up for renew in april, i sent off all the paperwork before xmas, and guess what? they have denied me my claim & i loose my car in april... obviously i am appealling, but what i dont understand is why they can give to one sufferer and not another.

ladyt62 profile image
ladyt62 in reply to tivoloschoice

i dont understand it i did leave my comment above i dont no how im going to get through it i no the gov has a lot to do with it cos of the people who r claiming fault but it dont help us who really need help

tivoloschoice profile image
tivoloschoice

i agree with you they are looking at the wrong people. my condition as worsened over the past few years and what i thought was chronic pain was nothing compared to what pain i feel now.. if i stop moving around my body starts to stiffen up and if i continue to move around the pain cripples me.. i cant win. i take 300mg of pregablin daily alongs with 200mg of anti depressents another anti-depressent to help me sleep, (which dosnt work) and tramadol as a pain killer which also dosnt work... i have sent fibroaction an email to see if they can help in anyway, i have only recently become a member, i wouldnt usually do anything like this, but i feel that i need to start talking to other sufferers. xx

ladyt62 profile image
ladyt62

this is the first time ive wrote on here ive read peoples statements cant belive how many people r having some days i lay in my bed for days weeks at a time ive got no friend no one to help me i dont no how to get throught many a times i pray that god takes me i hate the pain such a lonely life

ladyt62 profile image
ladyt62

this is the first time ive wrote on here ive read peoples statements cant belive how many people r having some days i lay in my bed for days weeks at a time ive got no friend no one to help me i dont no how to get throught many a times i pray that god takes me i hate the pain such a lonely life

Carolinee71 profile image
Carolinee71 in reply to ladyt62

Hi I know how you feel. I often stay in bed as the pain in my hips is so bad I find it hard to walk and the stairs are a nightmare, so it's easier to stay upstairs due to only bathroom being up here. The reasons I don't get up vary, a lot of the time it is due to pain but a lot of times it is the depression taking over . I also stay in bed as its warm and means i dont have to put the heating on as i cant afford it. i am a single mum of two snd rely on benefits since being unwell ( used to work +50 hours aweek and had a life ) and have been turned down for DLA but thinking of appealing .

i am lucky in that I have two great daughters one of which is still at home a d she keeps me going. I have found friends don't really understand. I do feel lonely a lot of the time but I really try and make a list of things I need to do and it makes me feel great when I get one of them done. Even if it has taken a while. I know it's hards but try and reach small achievements it really does make you feel better

Also you can always find someone on here what ever the time to talk to

ladyt62 profile image
ladyt62

when did u get turned down cos u only have a month from the day they sent letter to u ive got 6 kids but they all grown up left home i have no friends 5 of my kids r boys so there not very helpful my daughter to busy with her own too daughters i will need a double transpant kidneys and liver that when i think they will notice more cos i think at mo they think im just lazy it a lonely painful life i wish i cud turn back time when they were young and i was healthy happy days

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