Fibromyalgia sufferer with Adenoymyosis awaiting hysterectomy in 4 weeks at 33 yrs old :(

Hi there

I am a Fibromyalgia sufferer diagnosed 5 years ago, with Adenoymyosis and endometriosis, and awaiting my hysterectomy which is in 4 weeks time! I am 33 yrs old with 2 beautiful kids and feeling sorry for myself today so as usual pop on here for support :)

My pelvis is so bad and it feels like my hips, lower back and pelvis are burning with difficulty getting up and walking!

The specialist thinks most of my pain is gynae related and that this op will improve my pain in a life changing way! Am scared but excited all rolled into one lol!

Just hate that i have to lose my home to my babies (womb) to get better :(

Sorry that i only come on here to moan but i dont know where else to go, and my husband "knows i am always in pain " :(

14 Replies

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  • Hi there after suffering endometriosis as well as ibs and fibro I had a total hysterectomy at 35 fortunately like you I had a child and to be quite honest when I was given the the option of a hysterectomy I was quite thankful. That was 12 years ago and I have never regretted it. The pain that I suffered with the gynae problems went ... I take the lowest dose possible hrt and feel totally normal, probably the only part of my body that does.

    Good luck and if you want to chat in more detail please message me

    VGx

  • Awwwwww that is really positive thankyou :) was slightly worried with your "verygrumpy" username lol as you are completely opposite!

    I too have ibs and being on hourly morphine messes up my sustem (bowel) which doesnt help!

    I am hoping to be relatively "normal" afterwards with just standard fibro pain instead of agony :)

    Everyone says itsthe best thing they ever did so bring it on!

    I struggle having a "relationship" with my hubby as with the gynae and fibro pain its just horrid, so he is excited and has booked us in for a long spa weekend with all the treats 3 months after my op lol bless him :)

    Anyway my long winded way of saying thankyou as i love positive comments and its me who is "verygrumpy" today ;)

    Xxxx

  • My pleasure and have fun at the spa :)

    VG x

  • Nursery into playroom !!! :D got rid of mine 15 years ago when i was in my 20's and never looked back have two great kids so it was not needed X

  • Yes, don't worry about a hysterectomy - it's a pretty good op. I never regretted losing all the plumbing, and have felt much better since.

    I do hope that your pain returns to a manageable level after your surgery, and enjoy your spa weekend. It's nice that your hubby is so understanding and helpful.

    Best Wishes ... Moffy x

  • I had my hysterectomy 6 years ago. My kids are all grown up, so that wasn't an issue for me. I had multiple gynae problems, and there were too many days when leaving the house was pretty near impossible, due to the number of complete changes of clothes I would have had to take!

    I don't regret it at all. The only thing I found was that it did take me longer to recover than I expected, as my fibro was definitely worse afterwards and it took about 4 or 5 months to settle down. But I was 49 when I had the op, so being younger you may bounce back quicker! And get your HRT lined up as soon as poss. They delayed with mine, and I was fainting every time I stood up. They tried giving me oxygen, and all I needed was a patch!

    I think it's lovely that your hubby is being so supportive, and you have a great treat to look forward to.

    xx

  • Hi, I had Adenomyosis as well. I had a total hysterectomy as well at age 30. To be honest I was in hospital every 3/4 weeks on a drip because I was so ill with it. The temperatures were so high and will never forget how ill I was. I was so happy to get rid of everything and I have never looked back. I had two young children and I was away from them so much and then they had me back.

    Don't know if you are having a total hysterectomy or not! Just incase you had to decide about HRT.

    I had ovaries out and have never taken HRT as I weighed it all up being so young. I did not want to be on this from age 30. Thankfully I never suffered with any symptoms of the menopause and I know that I was fortunate.

    Immediately after hysterectomy I felt so much better.

    You will be fine and will be so glad you had the operation.

  • I also had endrometriosis and needed a hysterectomy at 37 yrs of age best thing I had done. I know it is a big step but I had two beautiful healthy daughters and that's all I needed. Post op take each day as it comes and remember each day is a step to recovery and then pain will ease. I also now suffer with fybro

  • i also had endrometriosis and needed a hysterectomy at 33 years old best thing i ever did too but the only thing was i hadnt had any children and it has been hard but i have 4 sisters that have had familys so i have their families to play with over the years . plus i have a step daughter now ive been with my new partner for over 5 years she is 15years old and we get on xxxxx

  • thanks everyone yoyr support means alot x

  • Victoria, you can see by all the positive comments that hopefully you will reap the benefits from having this operation. To have less pain and to hopefully feel better too must be worth taking the chance. You will still have your beautiful children and in time your general well being should improve too. Give yourself a bit of time after the op for everything to settle down, Fibro-wise too. Your hubby sounds lovely too.

    We are always here for you, so just pop in whenever you feel the need. We all understand how you feel and we are always only too happy to try to help and support you where we are able to.

    Take care and I wish you all the best for four weeks' time.

    (((hug))) xxx

    Libs

  • Thats so lovely and means so much :) having a bad morning already 2 nights no sleep, my 'lovely' hubby is 'bored' of me being in pain as its gone on so long,so, as usual i have threatened to leave :(

    Mega fed up and cant help feeling like this PLUS due on and just need support! i know its hard on them but trust me i dont sit on my bum and moan, i do the school run everg day, i work in event management for a children's charity , i clean my house etc etc but when he walks in from work i am pooped!

    One minute he says lovely things like spa weekend then he does this and leaves me to sort my 1 yr old son put in the night who never sleeps, and clean up cat diarreah at 3am as i am such a light sleeper i heard my kitten cry :(

    sorry am just really upset this morning and have a big meeting at 12 for my huge event 9th feb that quite frankly i want to cancel but cant :(

    End of rant and so sorry as i never do this :(

  • Thats so lovely and means so much :) having a bad morning already 2 nights no sleep, my 'lovely' hubby is 'bored' of me being in pain as its gone on so long,so, as usual i have threatened to leave :(

    Mega fed up and cant help feeling like this PLUS due on and just need support! i know its hard on them but trust me i dont sit on my bum and moan, i do the school run everg day, i work in event management for a children's charity , i clean my house etc etc but when he walks in from work i am pooped!

    One minute he says lovely things like spa weekend then he does this and leaves me to sort my 1 yr old son put in the night who never sleeps, and clean up cat diarreah at 3am as i am such a light sleeper i heard my kitten cry :(

    sorry am just really upset this morning and have a big meeting at 12 for my huge event 9th feb that quite frankly i want to cancel but cant :(

    End of rant and so sorry as i never do this :(

  • Thats so lovely and means so much :) having a bad morning already 2 nights no sleep, my 'lovely' hubby is 'bored' of me being in pain as its gone on so long,so, as usual i have threatened to leave :(

    Mega fed up and cant help feeling like this PLUS due on and just need support! i know its hard on them but trust me i dont sit on my bum and moan, i do the school run everg day, i work in event management for a children's charity , i clean my house etc etc but when he walks in from work i am pooped!

    One minute he says lovely things like spa weekend then he does this and leaves me to sort my 1 yr old son put in the night who never sleeps, and clean up cat diarreah at 3am as i am such a light sleeper i heard my kitten cry :(

    sorry am just really upset this morning and have a big meeting at 12 for my huge event 9th feb that quite frankly i want to cancel but cant :(

    End of rant and so sorry as i never do this :(

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