I've just joined this group as I recently got diagnosed with fibromyalgia and it seems a bit overwhelming sometimes. Therefore, I wanted to learn more about it and also hopefully get some tips and insight in how other people dealing with it. I also live in London, Clapham to be more precise, so I was wondering if there was anyone else around here/London? Would be great to talk to people in the same situation and share stories and advice.
Well, here's my story:
I have been struggling with chronic fatigue, muscle pains, jaw tension, stiffness in my neck, headaches, nausea for 4 years, ever since I had glandular fever during summer 2013. Since then, I have gone to the GP without much help, feeling helpless and feeling like somethings been wrong with me, and it came to the point I thought it was normal to feel like this, and I shouldn't let it affect me and just "push through it". I later requested to be sent to neurologist and rheumatologist this year, and just got diagnosed with fibromyalgia. Now I feel like finally the pain hasn't been only in my head, which I thought for a while, but also I am trying to figure out how to live with this.
I am a self-employed singer-songwriter and work part-time as well. I have been a very active person throughout my whole life and in my younger years, I trained to be a professional athlete, but now feel like I can't do anything which is so frustrating. I am a high-achiever, and only go 0% or 100%, nothing in between. Therefore, I am now struggling to find out when I should rest and hold back, and when and how I should exercise. Since I am a musician, I also find it very difficult to be inspired and write music when I'm in pain, and also loud sounds/noise makes it worse at times. I am a positive thinker, and feel it can only get better since I finally know what has been going on with my body, but it is all a bit overwhelming atm since I got diagnosed middle of September 2016.