Newbie and is there anyone out there?

Hi first time posting on here so please be gentle with me.

was diagnosed with fibro about 2 years ago. It was all a bit of a whirlwind I had been to my Drs with what I thought was bursitis but when I mentioned that I was having difficulty walking due to pain and that I had tender points all round my pelvis not just on my hips he immediately said I think you have fibro. I had never heard of it before. Within 3 months I saw the rheumatologist who confirmed my gp's initial diagnosis.

I was put on pregabalin and now take 450mg a day which seems to keep the worst of my pain at bay. But not always which is where the cocodamol come in.

Im 45 and live in Macclesfield Cheshire with my wonderful husband and my not quite so wonderful 17 year old daughter who causes me more stress and headaches than anything else. But that is a whole other story!.

I have only met 2 people from Macclesfield who have fibro and one of them is Canadian! There must be other fibro suffers in the area but they seem to remain stubbornly hidden,

11 Replies

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  • Hello and welcome to our lovely forum Fibrofrith, you are most welcome here!

    Take a look around our Questions, Blogs and Tags, there is a wealth of information there, advice, support, personal experiences and friendship too! Please read our FibroAction Guidelines, you will find these under Blogs at the top, please select FibroAction Blogs and then scroll down. We ask all our new members to read these, many thanks.

    If you have any worries or concerns, please do not hesitate to ask us, we are always only too happy to help. We all understand, we are all in the same boat here.

    I hope you enjoy your time at FibroAction! :)

    There is a support group in Warrington, Cheshire - I am not sure if this is near enough for you, hope this helps, here is the link -

    fibroaction.org/pages/Warri...

  • Us fibromites are like ninjas in 22 years I have only met one person in the flesh with fibro and that was in hospital..... My nearest support group is 40 miles away and I can't drive... But that aside welcome to us virtual fibromites. Glad you have found us.. There seem to be a few of us around at the moment so no doubt you will get more welcomes... On here we celebrate commiserate or in my case get laughed at lot but that's just cos my whole family are mad as as a box of frogs. Oh we rant and cry too when things get too much.. My first blog I was in tears... Hope you enjoy it here it is a really simply set out site

    VG x

  • helloooo and welcome....17 yr old daughter oouch...lock her in the cupboard till she is 21 lol well thats my hubbys answer.. just grunt at her now and again they usually understand that more haha. I am also new to the site and it is so easy to find your way around and loads of info too and if you can't find what you are looking for there will be some one on here that will help you

    vikki x

  • Hello. I am a newbie on the site too, although I have had fibro for a couple of years with chronic myofascial pain before that. I finally saw a rhematologist last month and he is changing my meds about as I am never out of pain. I have just been prescribed Pregabalin this week, so am having the feeling I am on another planet and have had to go off sick, I only work part time as need sleep or a rest in the afternoon to function.

    Let's hope we both get a lot from this site, which I am sure we will as so far everyone has been friendly and seems an easy site to navigate.

  • Hello Jom, my apologies if you didn't get a big welcome from us! Did you creep in through the back door when I wasn't looking?! ;) You are very welcome here too, I hope you are making yourself at home and comfy here!

    The layout of our lovely forum is very easy to follow, if you have anything you are unsure about please don't hesitate to ask, we are more than happy to help at any time.

    I hope you enjoy your time with us here too Jom. :)

  • Creep?!? I doubt it very much LZ!! XX

  • I have a lot.of online fibro friends from.Facebook but thought I would widen my net

  • You are more than welcome here at FibroAction Fibrofrith, we hope you make many more friends here with us. :)

  • We are gentle with everyone on here lol, we have to be as Fibro sufferers can be their own worst enemy at times. Welcome to the site and also welcome to Jom too xxxxx

  • Welcome to both of you! I rarely post blogs on here as by the time i have read everyone elses news im usually out of time lol! This is a wonderful site and everyone is very friendly with loads of advice if needed or just with very big ears when only a good moan, rant or cry will do. We are all from different walks of life with different issues but the one thing we have in common is this horrible illness, ignorant public, and sometimes families who are at times wonderful but also can be frustrating. Im sure you will both find this site useful and the people friendly and im looking forward to talking with you or just reading your news. Lots of gentle hugs to you both..Charlii xxxx

  • This site is the most wonderful place I have ever known. Everyone here is in the same boat, we're all suffering....silently!! I agree, put your daughter, gagged, in the cupboard!! Every time I post a question here I get loads of great replies, I don't think anyone has ever given me any crap advice. Someone has always got some help and advice to give. So keep going Fibro, even though at times it's difficult, you'll find so many friends here...well I consider them friends. Gentle hugs!! XX

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