Yesterday a person from Adult care came to see my husband about how they could help him to look after me! They said to him on the phone a week before that it was only him they needed to see. So as they were coming in at 9am it would be best I stayed in bed,as it was private and would make him feel more free to say what he wants to say.
Well she arrived at 9 and about 10o-clock i needed to go to the loo,so I got out of bed,now normally my husband would come upstairs to help me across the landing (Floor boards creak in our house so he knows when I am up ) He never came and I could hear a faint wispering from the lounge...so I carefully went to the bathroom,and when I returned to my bedroom was sure he would say " I just need to help my wife as she cannot get into bed by herself " but no! he never came ..so I wrapped a blanket around me and sat on the side of my bed....One hr later I heard the front door shut and he then came up to see how I was. He said " Oh I didn't like to interupt the meeting so thought you would be OK. He is too shy for his own good sometimes.
I said to him they did not even see me so how do they know,what you need to do ? He said well they were more worried about what it is doing to me, because he has PTSD.
I am telling you all of this because for 20 years or more I looked after my OH with his illnesses and my aged mother and I never got any help what so ever! Now they are so worried about him they are sudgesting I go into a home once a month or so for respite ;-(
I had CFS and fibro when I was the main carer and now I am worn out,Dr says I have had a physical breakdown. maybe if I had had the help I would not be as I am now!
The only good thing is that maybe now it is all changing carers might be recognized for what they do and get help.
I am sorry to have gone on a bit but I only have you guys to speak to about this,and my memory the way it is I may have already said all this before !! If I have I am so sorry, it is just another thing to be off balance x
I hope you are all keeping warm and dry in this cold spell and send Gentle Hugs to all who need them x x
Rainbow x x