My day at the hospital .........

[rainbowdancer]

My day at the hospital tired me right out!! I had to go back to the breast clinic again this week,for more tests. On arrival on my little red scooter,because the wheelchairs are bone shakers! I was told there is a two hour wait, so went for a coffee and they came to get me.

The nurse said " do you need to use your scooter ? " and I said yes I cant walk !! "Oh can you stand " well no not really. " we may be able to do use a chair " she replied.My husband could not come with me to help,and she said " Oh I will help you to get undressed and dressed again" I was then taken into a room for a mamagram. The radiographer said " I understand you cant walk or stand for long " and I said yes that is right. " well we can get you into this chair but it depends how large you are " I am only a C cup so thought that about average! So she told me to get undressed and left the room no one there to help me so I struggled! On her return she looked at me and said " Oh no your are to large for that machine. " Just pop your clothes back on and we will take you to another machine "....Just pop your clothes on....I wish.........so struggled again into my top and followed her along the corridor. In the next room was a smaller chair and larger xray unit. She then said if I could stand the photo's would be clearer. I struggled out of my clothes again and said I can stand but after a minute I will be in pain ,and if my legs go I just fall. " I will keep an eye on you "she said.

I stood for first photo and then needed to sit down she said Just do the other one ,My legs were like jelly,and I was shaking, she then said don't move or even breath! I was nearly crying.........Then two more pic's By now I am in bits..."you can sit down now while I check these" came back and had to do them again this time getting my muscle into the frame....She told me to relax and not to hold on.....By this time I was wondering what part of 'I am in agony' Or I cant stand could this woman not understand. Off she went again after telling me my muscles need to be relaxed.............My biggest problem is my muscles stay stiff and I have to take muscle relaxants.

Back she came and said I need to do two more of just your nipple and the little machine was added and it really hurt ! I was sure I was going to fall! She then went off to check them and then she came back I was told to get myself dressed and wait out in the corridor as the specialyst was very busy but needed to read them...........20 mins later they said you need to wait to see a Dr, but he is running a hr or so late....I was worried sick............

.When they called me in my husband came with me and the Dr said well now let me see what the problem is,so went all through it again. He then said "Well the mamagrams were all OK wernt they " I had not been told a thing he spoke to me as if I knew,I said " were they Oh I did not know!."

Well we dont need to see you again so good bye.......I was very glad it was all over !! and today I cant walk again in agony!! But at least it was one good thing

Gone on a bit but no-one to talk to at home ...my daughter never even phoned and she only lives in next town. Then called today saying I called yeasterday but gathered you were at the hospital again.....

Hugs to you all hope you are having a good day x x

rainbowdancer x

[Sthandra]

Hi rainbow it must be fate I went for a scan on my left breast due to an unexplained explosion of sists and abscesses I went along on my little blue scooter I was also told to wait as they were running late but wasn't told how late so I decided not to struggle onto a normal chair as I would only have to struggle of it again in what I thought would only be a few minutes half hour at most 2 hours I was sat waiting I was taken into scan room told nurse I needed help undressing I got none I also said I would need help getting on the bench I won't call it a bed or couch I got none then I had to lay on my right side so Dr could get better access to my left side it only took maybe 10minutes but I was in agony I can't lay on my right side at the best of times, as a result I am now stuck in bed and back on ouromorph on top of 50mcg/h fentanyl patches I had weaned myself off the ouromorph as I wanted to hold it in reserve for big flairs well I suppose you could say this is one, if I don't have to use it for weeks only for a few days my plan may work and I will gain benefit from it which is the aim of it I'm rambling about me sorry. I hope you are feeling better soon and sorry for rambling on its just they way we were treated gets me so angry we are people not pieces of meat if people as if we need a hand and we say yes we should get it sorry rambling agin must be the pain not aloud any more pain relief yet and the last lot is wearing thin. Big gentle hugs . Sithy

[rainbowdancer in reply to Sthandra]

Hi you are like me when you say I need help you tell them and if they then don't help I don't ask again.

When my husband went into respite a few months ago,lots of people said they would help me I only had to ask. One person said they could pop in on a tuesday and another on a friday .Then a friend said each day she would cook me a meal and do what ever I needed. Turned out no one came and when I got upset about it all one day they all said Oh if you had asked me.....I had..and they said Oh you just need to be more needy ...thought you had plenty of cover. one person said she would walk my dog and she woud arrive at 10 and take him for a walk for about 15 mins then come back and go home saying....glad you are managing OK . After the two weeks had gone by my husband said how poorly I was and they all said Oh we would have helped if we only knew!! I never ate a meal for over 10 days because I couldn't stand and cook it I lived on cuppa soup. And my ' dear friend ' used to phone me and tell me all about what she had just eaten for her tea!!

Least if they don't help me I don't have to say sorry.

What bugs me most is when I was well they would call and ask me to run them here,or do this or that for them and I never let them down. Even my daughter only has to say I am poorly and I would be there in a shot.....she just won't come here because she says I am not helping myself because I am not being positive....what is there to be positive about when you have CVFS, Acute Fibro, Arthritis,and in need of 2 new knee's and a new hip and only 63 ?

Well babe enough of my moaning I get on my soapbox and I am off!! I am not always like this sometimes I am funny x x

Gentle hugs back to you xx

Rainbowdancer

[cobweb]

It sounds like you both had bad experiences at the hospital.

Last year I went for a routine mammogram at the local hospital rather than trek into Bath. What I didn't realise was that it was in one of these big trailer type thngs. Although I'd arrived on my little scooter, the nurse looked a bit surprised when I said that I didn't think I could make it up all the fire escape type stairs. Eventually I descided to give it a go rather than wait for a new appointment. what a stupid thing to do! Aboot half way up my legs buckled but I had to go up or down, couldn't stay where I was. I did get to the top in time, with a couple of women squeezing past to get their boobs done. When I got to the finish post I discovered the changing rooms were so tiny there was no chance of any assistance.

The nurses were very kind but it's one experience I will not be trying again!

I hope you are feeling in a little less pain soon xxxx

[rainbowdancer in reply to cobweb]

Thats bad cobweb,I went for my mamagram the last one in a trailer so I didn't have to go to Bath. But this time I knew I couldn't walk or stand but as you read it made no difference in the end.

Today I have a tooth ache type of pain under my arm,it was so pulled when I had the muscle in my boob xray'd. I told her I was having problems with that muscle,and I also have glandular fever,but because it is not an airbourne thing the hospital said I would be OK as long as I never kissed the Dr ha ha

Well Gentle hugs for now x x

Rainbowdancer x x

[Sthandra]

Hi peeps looks we like we all had a bad time with the boob department I will know next time sit on a chair and take a good book at least I'll have something to take my mind off my pain and discomfort discomfort because their chairs always feel like your sitting on a

sack of rock ah well hands theuy are a twitching so spellings they are atrocious gonna have to go so its gentle hugs for all ttfn . Sithy

[rainbowdancer in reply to Sthandra]

Sending you a gentle hug too Sithyxx

[Sthandra]

Hello rainbow sorry to hear about your muscle shame its not the sort you can eat then you could put it with some plaice and when the chips were down you would be full of chear and looking on the bright side of life, I know its totally corny but it may it cracked a tiny smile especially with you being ill and all.

I have a little story for you it my chear you up and I'm not trying to make you being ill into being ill into an insignificant thing I'm just trying to take your mind off it for a while hope you don't mind.

Well here goes, my mum had glandular fever when I was only 2 years old and my brother only 4, I don't know if my little brother was on the seen or not my mother never said, my brother cleaned her up never complaining and I made sure she had plenty of water to drink also never complaining we saw what needed doing and we did it,

When mum was feeling a bit better we helped her to the sofa that we had so recently vacated,

When dad came home he started to complain that his tea wasn't ready we told him how ill mum was to normal. Hope you feel better spoon gentle hugs. Sithy