What's wrong with me....: I have not... - Fibromyalgia Acti...

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What's wrong with me....

Carolinee71 profile image
5 Replies

I have not been told officially that I have got fibro but my GP has said that this is what he believes that I have got

L. A lot of you talk about a fibro fog i would like to hear more about it as I thought I was just slowly losing my mind . To say i just forget things would be an understatement, i forget how i got to places so often at the moment i don't go out alone, i also for get where i am going and most of the time what i am meant to be doing

The other new thing that i have read about on your site is that dropping things. This is one of the newer things that has developed over the last seven months, I never knew it might be related to fibro, it has just been some thing that has both upset me ( ie after actually getting my head and pain ~ with Oramorph under control ) I have cooked several meals only to drop them over the kitchen floor when I have tried to pick them up. It's as if my hand isn't mine and all of a sudden it has a mind of its own and I drop things and worried me a lot .

I am just beginning to learn that being told i most likely have fibro will not just cover and give reasons to the amount of pain I am getting most days, I take both MST and Oramorph to help. But this condition seems to have a lot more to find out along this journey I find my self on

Any help on how to start to either start to cope with each new problem as it happens , help with the limitations that I now find I have, advice on wether diet can help and lastly how to get other heath care professional to believe that I do have problems and I have not made up the severe pain in mainly my hips along with hands and fingers is a real pain to me

Any thoughts welcome

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Carolinee71 profile image
Carolinee71
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5 Replies
Ginsing profile image
Ginsing

Morning Caroline,

Your discription of Fibro fog is acurate there are times I have to fish about in the filing cabinet which is my so called brain for what seems ages vefore i manage to grab the word I am looking for. Th same with spelling and names they drift about inside me evading being caught. We all suffer from fog or dense mist it can be awkward but gradually you get used to it. So good luck I do writ alot of list about wha I am doing where and who it does help. xgins

Extremelygrumpy profile image
Extremelygrumpy

Lists, and lots of them, can't function without a list...... I couldn't remember how to make a sandwich the other day.... Please have a browse though the site lots of useful information....

Dropping things and no brains are common with many of us so welcome to the club

VG x

fairycazzie profile image
fairycazzie

Hi Caroline - from one caroline to another!

As VG and gins says it is all apart of it although you feel that you just associate fibro with pain not actually other bits and bobs but its like a mimic of other conditions only nothing shows up when we go for all the hard work!

Except my neck MRI.

anyway i am 43 yrs young but turned 83 now with how i am and the way the body feels as i hear all these things from elderly generation, because as time goes on we expect wear and tear on bones and body.

never ever in a million years thought i be having Social services round to my house to help with hand rails and giving me adaptions, its heartbraking but i see as happy too as its extra help! i have a brilliant trolley to help when i am alone to put my dinner and cup of tea and any other things as its got 2 shelves its great so i can wheel from room to room its wheeely good (sorry pardon my pun lol)

i keep a little booklet as much as my hands hurt now to write i will jot things down soon as i think about it and that little book goes every where with me just like my medication, its in my car, my clothes, my bedside cabinet, kitchen, lounge lol yes everywhere.!! . xxxx

bumblebee57 profile image
bumblebee57

I think you have to develop a sense of humour about Fibro fog. Your nearest and dearest will get used to it, theyll know what you mean, finish your sentences, put things back where they are SUPPOSED to go and stuff like that. Dont worry yourself about it coz you'll get stressed and that makes fibro worse. My daughter has been round today and Ive had a fibro fog day, (I actually have it every day but today was particularly bad) I couldnt remember words and had to think which way round words go before i spoke and generally spoke rubbish. But shes used to it and waits for me to remember or "helps me out". I got chatting to an elderly lady while I was out the other day. She asked where I live and...I could not think for the life of me where I live. I could have said anywhere coz I didnt know her so it wouldnt have mattered, but i eventually remembered. How daft is that??!!! I could never go on a quiz show coz Id know the answer, but I'd take the whole show time to remember it !! I drop things too. Isnt it annoying when you drop something, and just as you pick it up, drop it again, grrrr. Im thinking of buying paper plates or eating out. Ive had Fibro for about 35 years so Im well used to it now. I just wish it would go away. Just try to laugh at yourself. Not only does it stop you stressing, laughing is good for us :)

sue57 profile image
sue57

Fibro fog is a right pain in the bum!! My friends and family are all used to finishing my sentences for me, and going through the alphabet looking for the word I want to use!! I tried to put the coffee jar lid on my mug the other day!! I turned the washer on without putting soap powder in first!! I forget what I've gone in the kitchen for......I've forgotten what I was getting to now!!!!!!!!!!! XX

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