Oh honey this did make me chuckle, but laughing at yourself is the best thing to help you cope. Fibro fog is awful at times but at least it's free entertainment for the family xx
I'm so glad I'm not the only one who has deleted a program instead of playing it.
If you have Sky or Tivo, you can recover a deleted program. Not sure how you do it, but think I need to learn, just in case
My fav with the remote is when I'm watching a program and when the adverts start I press fast forward. Only it doesn't work, then i remember I'm not watching a recording....
I don't know if un-delete works on sky +, I can't find a link.
sandra.
If you go into planner and where it says all entertainment docs etc if you scroll to the left it is their i think the fact i accidentaly delete by mistake shows hehe.
I have turned up to the doctors a day early and turned up to my esa medical a week early. I have often gone to the shop got it back realised i bought the wrong thing so took it back only to repeat the process again grr
when I was at uni [aged 35] and un-dxd fibro, I and two friends turned up 10 mins early to a lecture. after half an hour and still no-one came we chuckled about getting the time wrong, we decided to get a coffee.
as we walked past the next room, there was our group! we went in and apologised saying we we were not late, just 30 feet short!
I've tried to find ways to help myself remember but nothing really worked till now.
I brought myself a new smart phone and without it I'd be lost. Not allowed to say which it is but It has a large screen (bigger than an iphone) and a pen that i can write onto the screen with (It's the only one with it's own pen). It has a note pad app so I can write down everything as i go along and a calendar to send me reminders.
So now i don't forget appointments or the times to meet people.
What it can't tell me is where the telly remote is, my keys, or my purse..
My other great little gadget is a fast boil kettle so I can make my cuppa in an instant. I was always putting the kettle on then forgetting all about it, so could go hours without a cuppa
I live my life laughing at myself, that way when other do it I do not feel so bad. Thanks for sharing this made me smile after the week I have had xxxxx
May I ask, dont these episodes of "madness" (ha) or "fog" happen to everyone at some point?How do we know its the Fibro then and there presenting itself?? Help please x
My kids reckon they are going to write a book about me! The things I say and do are just beyond them! I remember once I was in a shop and thought I saw someone I recognised. I couldn't remember their name but their face was so familiar. As I was looking at them, it suddenly dawned on me who it was and I started laughing. My daughter asked what I was laughing at and I told her that I thought I recognised the woman on the other side of the shop. But it was my own reflection in the mirror that I was looking at and to make matters worse, we were in Spec Savers!! Needless to say , my kids won't go shopping with me anymore! Now I know it is all the work of "Fibrofog", I have a ready defence for next time. And there will be a next time!!
Absolutely. Just think....this time next year we could be millionaire's!! The book would help us fibrofoggers know we are not alone and would also let non-fibrofoggers have a peek into our world and maybe get some sort of understanding. Or if all else fails, a good laugh! xxx
You feel like some one has pulled your plug out of the power socket.
No Energy.
All you do is Sleep (whether you want to or not)
Communication is impossible, like you've been drugged or are drunk. Your speech is all slurred and garbled. It makes sense to us, but unintelligible to anyone else.We might as well be on another planet.
For me, all i hear (if anything at all) sounds like I'm underwater or have cotton wool in my ears. My own mother told me I was just to LAZY to be bother to get up.
If you do manage to wake up enough to get up your body feels like it weights a ton, every movement drains your brain and then when you sit down, you fall back to sleep. I've fallen asleep on the loo, leaning up against the door frame, on the floor all over my home. even sat upright on the edge of my bed.
They say COMA patients can still hear everything around then. it's like that for us. Once my family realized i could still hear everything They were more careful what they said around me..
The worst is when it hits you if your out. I've had to get a taxi home, struggling to stay awake till I've got indoors (the local drivers are great), then i can collapse into oblivion. This is why I no longer Drive. To many times I'd got from A-B and not be able to get back.
One thing I really hate is if someone ask's you a question, my brain is to muddled to be able to lie. everything you say is how you feel.
I'm sure others can add to this list of SYMPTOMS of FATIGUE.
For each of us the SYMPTOMS and SEVERITY of FIBRO is very individual but only someone else with FIBRO an understand whats it's like.
Fab Yvonne, that has put a lot into context. You are right when you say no one else can understand apart from Fibro sufferers. I have spent a lot of time trying to analyse and explain but now I have given up completely. I get into bed close my door, turn my phone off and can b there up to a week...but this is just lazy as people advise! I don't want any contact with people and become very frustrated and irritable. I have been suffering since I was 11, then it got really bad when I was 17-18. I am now 27 and I do what, when I want and don't explain myself to anybody! To be fair though, I may have a telly bad flare once every three months or so but when it's bad it's crazy! Claire x
I had many unexplained problems as a child, but as records were not kept as in-depth as they are now my consultant won't confirm I had FMS as a child, but he does believe that it is a possibility.
I don't know how much you know about Fibro, but I hope this site can help you get an incite and any questions you ask someone will have an answer or at least an understanding.
I have had FMS for 27+ years and back then there was no help available like there is now.
We have to speak out, make people understand that this illness is real and how it impacts on our everyday life.
It doesn't just affect us but all those we love, they have to watch us suffer, until they can fully understand, they can't help us
On this site and others we can be there for each other and I for one love the fact I can help others so they don't suffer alone like i did.....
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