Any ideas on whether you can get DLA ... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Any ideas on whether you can get DLA for fibro and CFS?

panda87 profile image
12 Replies

My family, friends and colleagues have all suggested I apply, but to be honest I don't have the energy to keep fighting for help with my health. Its took me ten years to get diagnosed after being treated like I was mad and I'm at the end of my tether at the moment.

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panda87 profile image
panda87
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12 Replies
sharne27 profile image
sharne27

Im waiting to hear about my claim i was advised to but for the stories i think ill have a fight on my hands. Have you applied? It takes upto 14 weeks for a decision no harm in trying tho xx

crissy profile image
crissy

Yes i get both i went to cab they filled out the forms for me gud luk x

munchkin62 profile image
munchkin62

you should apply go to your local cab they will help and advice you on what you are entitled to and help by filling in the forms for younplus if you can get a letter from your gp stating whats wrong with you and how it affects you it will make a big differance but please dont give up trying most of us have to fight for what we are entitled to ,good luck xx

I have Fibro and PBC and am having to fight tooth and nail to get DLA at the moment, I've just been diagnosed with RA too. My initial claim was refused, I appealed, that was refused too. I'm appealing again and I won't stop until they accept my claim. So be prepared, you may have a fight on your hands. But I'm not saying this to put you off, but to prepare you. Don't give up.

xx

Suprisingly I managed to get DLA through submitting the form and they approved it through my ESA form and medical evidence. It took me a long time before I was able to make a claim. I did not expect it.

Mdaisy profile image
Mdaisy

Dear Panda,

I would like to mention that you can email info@fibroaction.org they can email you the Benefits & Work Guides on ESA & DLA for free.

Website: benefitsandwork.co.uk

Also you may find the FibroAction website link on benefits helpful :

fibroaction.org/Pages/Benef...

I hope this helps

Emma

fairycazzie profile image
fairycazzie

Interesting post.

Theres many questions on this.

If one is entitled to a Blue badge in medical grounds this should allow you DLA/ESA

I have yet too to deal with all this but the forms only last so long so now we to re fill them.

.

Good luck!! Best wishes xxxx

fibro profile image
fibro

the final decisions on paying the benefits are not dependant on what the diagnosis is, but how the symptoms affect your life and your ability to do certain things.

it's always worth applying for any benefit you think you may be entitled to but be aware often new claims for DLA they get turned down. This isn't a new thing, it's been happening as far back as the mid 90s when I first claimed, or maybe even longer

good luck and stay positive xx

linlit profile image
linlit

do apply be preperd for a fight fill in forms as you are on your worst day get supporting letter from gp if refused appeal if possible get a family memmber to deal with appeal for you and to represent you at appeal the CAB do not attend appeals it could be worth asking at your GP surgery if they have a organisation called porchlight which help and do attend appeals good luck and dont give up

pondminstrel profile image
pondminstrel

hi,dont forgetits not what illness you have its how it affects your life and ability to manage x

kellydavies9 profile image
kellydavies9

it took me 7 yrs to get dla, but im getting it now even thou its only 20 quid a week

Plumcake profile image
Plumcake

I applied for DLA a few years ago and got the higher rate, but when it was up for review my rotten GP told them I could walk perfectly normally, so I lost it. I appealed and went to tribunal, which was one of the most stressful things I've had to endure. My cat was also very ill and that was worrying me too.

the tribunal was a forgone conclusion. They all lied including my GP.

I have since re-applied but was not awarded a single point, despite having Fibro, depression and Sjogren's syndrome. I had an ATOS medical.

It seems to me they base your DLA on your walking ability. And as mine varies a lot along with the pain, I got nothing.

I do have a Blue Badge, which was awarded me independently. They don't get in touch with your GP for that.The fact that I have a blue badge made no difference to getting DLA.

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