Numbness and tingling,is it normal for FM?

For the past 2 weeks every morning when I wake up my left hand is numb with tingling feelings,it is getting worse and this morning I was having sharp shooting pains going up my arm,also the right one was doing the same this morning,my hand and fingers feel very stiff almost like they have swollen and its difficult to bend my fingers,I do have osteo in my hands but never had this feeling before I was diagnosed with fibro 1 year ago,it takes some time to get back to normal,to start with I thought I had slept on it but its every morning,does anyone else get this?is it normal for fibro?i would be interested to know if anyone else gets this,thanks...x

26 Replies

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  • I often get tingling in both arms and hands and always wake up with red swollen fingers all curled up into my palms. I do the washing up every morning as the warm soapy water helps .. I also have to take my rings off at night cos my fingers swell so much.

    VG x

  • I get this sort of thing but its been put down to carpel tunnel in both wrists...sometimes my hands are totally dead of waking and I am sure you could stick pins in and I would feel nothing until I jive my hand a good shake or rub

  • I get this all the time I cant bend my fingers and my arms ache I also get the tingling in my legs infact I get it all over some days..I put it down to Fibro I was diagnosed about 15 yrs ago .Hope you get some respite soon from it my expirience is it comes and goes somwhere else .

  • YES YOU RIGHT THERE SOMETIMES IT IN THE ARMS AND ONE TIME SHARP CHEST PAINS GOING INTO MY FACE LANDED ME IN HOSPITAL AS I WAS TAKEN IN WITH A SUSPECTED HEART ATTACK,IT CAN GET YOU ANYWHERE AND I ALSO GET THE NUMB FEELINFS IN MY HANDS AND HEELS WITH STIFFNESS AND PAIN ,ITS JUST AMATTER OF LIVING WITH AND DOING THINGS YOU WANT AS AND WHEN YOU CAN GOOD LUCK HUGS AND KISSES

  • I get this every morning...or every time i wake in the night. i have to give it a few minutes before i can turn my alarm off some days as i can't feel for the buttons until the feeling comes back.

  • Yes this is very normal for FM, something I have put up with too many years to mention. It can be frustrating. I often end up bashing my mobile phone to turn the alarm off as I cannot do it. I must look a right lulu lol. But as times goes by you get used to it and it becomes part fo who you are. I normally shake my hands to death to get them going, it helps xxxxx

  • Thanks for your replies,this tingling and numbness is a new feeling for me and something I find really hard to deal with,it takes me so much longer to get ready in the morning for work,it such a horrible feeling,there seems to be more symptoms creeping in to my life...or what's left of it!...x

  • DONT LET IT GET YOU DOWN OR TAKE OVER YOUR LIFE AJUST TO IT AND DONT LET THE ILLNESS RUN YOUR LIFE I HAVE HAD FIBRO SINCE 1994 AND YES IT CAN BE VERY HARD TO COPE WITH BUT TRY TO CONTROL YOUR LIFE AND DONT LET THE ILLNESS RULE IT ,I CANT DO MUCH THESE DAYS AS NOW I AM QIUTE DISABLED WITH IT BUT I HAVE TAKEN UP ART AND IT REALLY HAS HELPED AND I KNOW ITS EASY TO SAY DONT LET THE ILLNESS WIN ,IT IS VERY HARD BUT ALL OUR HUGS AND KISSES TO YOU

  • Hi,yes I get this as well comes and go's..but at night its just worse I take Amitriptyline only 10mg at the moment, think it helps a little,but I also have ost arthritis almost every were...How can you tell the difference between Fibro and Arthritis?...confused 2 say the least!..xx

  • if i were you, i'd go and check with your GP. I had similar in August, woke up with pins and needles in my hand and they still havent haven't gone yet!

    since then i have had a nerve conduction study and I have severe carpal tunnel syndrome. just got to wait to have a small op on it now.

    I'm dreading it as it's the hand I have to use my stick/crutch in, and won't be able to use it until the stitches are removed so I will have to stay indoors for 10 days. I don't go out much as it is, so I'll be the only one who goes in to have an op walking, and have to come out using a wheelchair! :0 xx

  • Any numbness or tingling should always be mentioned to your GP because this could be a sign of other things that you would need to be checked for.

    To reassure yourself and to get any necessary checks, please see your GP and explain in full these symptoms.

  • I shall be seeing Doc soon to discuss having some tests to see if I need any vitamins which I asked questions on recently so I will mention about this numbness and tingling,I shall also have a chat about weight gain which I posted a question on last night,I do have a rhumy appointment next month so I can see what they say about it.

    Thanks for all your replies...xx

  • I hope it all goes well for you, please let us know how you get on! (((hug))) xxx

  • i keep going back to my GP and its like he doesnt listen,have numbness and tinglingetc ,i saw a rheumatologist today and becasue of fibro fog i didnt say eveything i wanted to,like painful fatty areas .tonight when gettign ready fro bed teh painful lumpiness i ahve is spread to my shoulder blades andmy abdomen feels liek its about to explode.

    i thinkthe docs should listen to my dogs .tehy hate me going out and are so pleased to see me when i come home but today they wer ejumping up at me and begging not to leave them,they fear taht i am going to go out and not come home.(stems whewn i was in hospital for 4 days and couldnt get them in kennels so tehy wer elooked after at home.i am scared that iwont come home to them.

  • arrhh anbuma, I know where you are coming from with the dogs. we only have one and she just hates being left. she goes into a panic then has accidents so we got her a large cage and she seems happier in that, it's only for like today when I had an appt. went to see a psychiatric, rather than just a counsellor as I got the reassurance I needed, I was safe to carry on taking Valium n top of everything else and he picked up on the fibro so much, I have never met anyone like him. I don't need to go back, but when because he would understand if I needed to change meds. unfortunately all I take has Ben prescribed by so many doctors and even my GP was happy to let me be referred. it's normally hard to see them. i said it was ok to trial and error sort of thing with all i take, and said it was safe. he could tell I'd be sensible with it, plus I'm going to try some counselling. I didn't really want to take any extra or even change what I am taking as over time the side effects have become less, so my body isn't rejecting them.

    pink blossom, please as libs/admin has said, please do go back to your GP, don't wait, I waited two weeks as I wanted to see my own GP and then I had to delay the nerve conduction study as my OH couldn't get time off to take me, when they finally got the results back, my GP wasn't happy as it took so long, with me it's carpal tunnel, although severe, it's not that serious, but it could mean other things. i was actually relieved when they said it was carpal tunnel and not anything else, but if the op doesn't relieve the symptoms I will be straight back to the GP as for me it's already been three months to the day that have lost the feeling in part of my hand and the pins n needles persist. I can only type this amount as I'm using an iPad as a using a normal keyboard for too long is really painful.

    good luck at your other appts xx

  • Hi everyone,just to let you know I'm off to see the Doc this afternoon to discuss the numbness and tingling in fingers,I'm now getting shooting pains in my hands and going up arms,iv been to work this morning and my wrists are hurting,I'm glad iv got an appointment shortly,I'm also going to speak to him about vitamins which I posted a question about a few days ago,I'll let you know how I get on...xx

  • HI Pinkblossam,

    Hope you don't mind me asking, but how did the apppt with the doctor go?? I have had the same symptoms for two years and doctors etc are baffled !!! I have had nerve conduction tests but they came back as okay.

    Take Care,

    Loopy-loo

  • Hi loopy-loo

    Just got back from Doc,he seems to think its carpels tunnel,iv got a rhumatologists app next month because I had started getting more pain in my hands than normal so a few weeks ago he set up appointment,since then its got worse so he's wants to wait and see what they say,I already have oesteo in my hands and at the time we thought it was to do with that,basicaly my hands are numb in the morning with my fingers tingling,when the feeling starts coming back my palms are painful and any pressure sends sharp pains up the lower part of arms,this comes and goes throughout the day,my wrists hurt aswell,again with shooting pains,if it is that then it would be surgery,I'm sorry to hear you have similar,have they suggested to you it may be carpels tunnel?im going to do a blogg shortly with updates on other questions I have asked this week with som answers from Doc.i do hope you get something sorted with your pain loopy-loo,2 years is a long time to wait for answers...xx

  • I too get pain in both my hands and the feeling that the are swelling up. Even when im eatin a meal my fingers hurt that much i carnt use a knife very well to cut up meat it gets very painfull. xxx

  • hi im sick of pin and needles ...and ive always got cold hands and feet !!!!but the last 2 months ive ad a sensation of bugs under my skin all on the left side of my face it dont hurt but it frightens me tbh :(

  • Hi pink butterfly

    Have you been to the Docs about it? You may have that myofacial syndrome which a lot of fibro sufferers have,nothing seriouse just uncomfortable when eating and feels weird,although my sister doesn't have fibro she does have myofacial syndrome,maybe you should get it checked out,I'm not diagnosing your prob just sounds like the feelings my sister had,thought I had it but it turned out I needed 2 teeth out! When my feet and hands get cold I just go and have a bath,that warms them up,till next time! or else I do myself a hot water bottle,I always seem to hugging one!...xx

  • How wonderful everyone is, Just love you all XXXX I have had symptoms of numbness in my Arms for almost Two years, Always in the mornings too........... My Gp say's its likely to be my ulna nerve trapped when I sleep ?? Cold hands and feet Yes have that too, Neck pain shoulder pain, joint pain, and finally muscular pain have all this....GP gave medication for ostio-arthritis and now also have high blood pressure......I attended a therapist a few years ago for back pain and mentioned that I showed symtoms of fibro myalga. :( I talked to my GP about this and was as much support as a balloon in the wind... Thanks for your comments on this..........It has given me the courage to DEMAND answers from my Doctor..

  • You get some good Doctors that are a bit more interested in fibro than others,I was diagnosed with osteo 5 years ago and was diagnosed with fibro 1 year ago,I saw somebody on tv talking about ME and my partner said it sounded like me,so I made a list of all the things I had and took it to my Doctor,I said to him 'this is all the things iv been to see you about in 5 years,what have I got' we'll it wasn't ME but fibro,I was sent to see pain management and the rest is history,so yes 'security' I recommend you do go back to your Docs,make a list of all your probs,that's everything,even IBS if you've got it and ask for some answers,you will probably find the more you look around this site and chat to others you'll know yourself you've got it,I wish you luck and stand your ground! and don't forget to make that list!...xx

  • Thanks for your uplifting advice pinkblossom. I have been talking to my GP about this for sometime and he seems to fob things off as off little importance.......I will make a double appointment with him and SORT this long term situation out.......Is now going to be a busy week for me!!!!!! Oh and will make out a list before I go too.....Thanks xx

  • I always make a list before I go to see the Docs because I always forget things,which is a common symptom of fibro,you will probably find the more you read people's posts the more you'll realise that you've got the same,you could ask the Doc to refer you to see a rhumatologist,why don't you start a post asking what sort of questions you should ask your Doc,also if you have any questions you can send a message to libertyz on admin,she has a wealth of information,I wish you lots of luck,please let us all know how you get on by posting a blog,we are all a lovely bunch here,there's always someone here who has an answer to your questions.xx

    (((((((Soft hugs Hun))))))))

  • I had tingling in thumbs arms and was diagnosed as having tennis elbow this went on for 4 years i was finally diagnosed with spinal cord impairment due to bone disease osteo arthritis

    had my neck bones repaired with a fake material to hold neck in place and pins and plate

    it took many years of complaining before i was sent to neuro dr.

    keep complainly loudly before u have worse problems

    still have tingling and pain and live on percs not fun

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