Fibromyalgia Action UK

Headache or migraine ?!?

Hello hope all is as well as can be im just wondering what kind of head aches does anyone else suffer as im confused as to what kind of headache i suffer im unsure as its main area is the base of my head and neck and radiates around my whole neck and head to my temples and makes eye movement painfull I wake up with this every single morning sometimes worse days than others not sure if its just normal or if something else may be going on and to get my gp to get my head scanned I know everytime i tell them i have constant head aches and I dont get sent to a neurologist for any checks as soon they see on my file Ive got fibro they say nothing they can do its my fibro I feel as tho everything gets puts down to me having fibro what if theres skmething else going on and im being ignored I dont know what to do if to just accept it or push to be checked properly has anyone else experienced this I thought a migraine is where we cant open our eyes so I thought it wasnt a migraine can anyone else relate ?!? ... thanks 🤕

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I've suffered with migraines since my teens many years ago, so I sympathize with you, but it's not normal to have headaches every day and I think your GP should be investigating this, I did read your profile and it says you had a head/ ear injury, could this be something to do with your headaches?

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Hi Mel maybe like me and many others on here, you have migraines as well as different headaches due to fibromyalgia. Also neck spasms etc can bring on headaches, some days even turning my head too quickly brings on pain. Ask your gp to try you on some specific meds for migraine, if these are no help he should at least refer you to a neurologist or send you for a scan. I know how you feel as I get head pain so bad I’ve often thought my head was going to explode! Often after a bad migraine I wake up and my eyes feel heavy and sore like as if I’ve been crying.. if that makes sense? So it could well be migraine. Hope I have made some sense. X

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I think there's a danger to assume all afflictions are related to fibro. I too suffered from chronic headaches most days so I was back and forth to my docs quite a bit. Besides the pain I was also light-headed, had numbness down my left side and tremors. My vision was also affected as I would be reading and the ends of words would disappear. This was all pre-fibro diagnosis so I was initially diagnosed with migraine but no migraine meds had any affect. In the end due to my own persistence, my GP referred me to a neurologist and I had a CT scan. Thankfully all tests came back clear so they just re-iterated that I must have some weird form of migraine. My GP then prescribed the only thing that gives me relief which is Propranolol (a beta-blocker). It wasn't until a while later that I was diagnosed with fibro so now I think the headaches maybe are linked to it but I don't know for certain. I would also mention that when I started getting the headaches it wasn't long after I had lost 2 close family members in traumatic circumstances plus I had a very stressful job so I was under a lot of emotional pressure, and we know that stress plays a big part in a lot of illnesses. But as had already been advised, if there is no obvious reason for the headaches then further investigation is needed. Scans do cost quite a bit of money so GPs need a good reason to send you for one. So may be an idea to keep a headache diary you can show your GP which documents the frequency and severity of your headaches and how they impact your life. Good luck hun and take care. xxx

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Hi there, Neck problems could be due to a number of things as I am dealing with a night mare of a neck problem right now.

It could be due to bad neck posture and the way your sleeping for example. Or it could be severe tension which can be felt in the base of the head and it is agony I have had it often.

Your Doc should be checking it out. I thought I had migraine for 4 days once it turned out to be a head bleed.

Anything new tell your gp it is not always fibro.Also not all migraines cause head pain. I suffer from aura migraines. I still get the wiped out feeling the day after but don't get that agony of an headache. xx

Mo

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Hi. As others have posted it's not normal to have a headache every day. I get Fibro headaches and I know the difference between them and a "normal" headache. You may have to push your GP to send you for a blood test to see if they can find the cause of your headaches. Don't be put off, the GP is there to help you, so try being positive in saying what you need.

Good luck.

Heltadelta.x

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Have you replaced your pillow recently. Found replacing mine stopped the neck and headaches. May be worth a try. Otherwise as mentioned by the other folk would ask GP for advice.

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You could be describing my headaches.

I had migraines from teenage through to 50s. I worked out many if these were hormonal, always started day or 2 before period started. Others were due to reactions to food ( and my list seemed endless) Pain was always one side of head, visual disturbances ( I saw furniture and floors on a side to side slope-- very weird) My face often went numb on one side and I'd get a horrible taste in my mouth.

The fibro headache is different, right across my head and my neck is always involved. I've been checked by chiropractor and had back of eyes checked so I know it's nothing sinister.

It might be worth you visiting a chiropractor to check there's nothing out physically. I use either Salonpas patches on my neck or Perskindol gel, along with soluble paracetamol or co codamol if I'm desperate. ( I don't take any of the prescribed meds due to side effects)

Check your pillows if you wake with a headache/ neck pain. Too many can cause pain.

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The best advice that I can give is to go see your optician as they can test you as well! Then go and see your GP. Mine did do tests and said nothing was wrong; I took matters into my own hands and got my daith pierced haha as I had read that it helped a lot with headaches! The piercing itself was very painful and so was the healing process but it has been a godsend and I haven't had any real migraines or serious headaches in ages xx

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Hi Danielle, whats a Diath ??[ am I being stupid for not knowing] I have tattoos so perhaps having mine pierced will help me too ???? ha ha luv Mandy xx

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I didn't know what it was until I had mine done haha, please see my post link which shows the piercing!! It has really helped actually but it was very painful healthunlocked.com/fibromya...

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Hello Mel, I too get terrible headaches. Sometimes I just wish I could rip my head off and shake all the noise and pain out !! Mine also is effecting my neck and throbs into my temples. I believe that the medications cause a hell of a lot of it. Lately I have been trying to cut down on my meds [ with help from the doctor] but think it will take a while ,If ever, that my head will feel 'normal' again. that's if I ever was normal......ha ha. But I can really empathise with you , as it is so tiring feeling this way, isn' it ? You take a blinkin' tablet to help with one pain, and it gives you pain somewhere else. I f you are getting concerned, , I suggest you do talk to your doctor again, and be strong about how it is upsetting you. I am sure someone will listen . At this moment of writing to you, my head is thumping, and the neck pain is miserable, but l have been putting a microwave heat bag around my neck which sometimes helps. I have also got an eye mask that you put in the fridge, that is for later on in the evening !! Oh the joys eh ??

Hope you don't feel so bad now. luv Mandy xx ps please read my poem I thought up earlier !! [titled I hope you like, on the posts] xx

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I have had fibro and chronic migraines for years, they are not the same thing although they are both neurological. I have been seeing neurologist for years, would definitely push to get this checked there are all kinds of things that cause migraines and yours could be eliminated or lessened by seeing a specialist.

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