new to site - working with fibro

hi i joined this site a few weeks ago but have not spoken on it until now. i woke up today (having decided to skip the amitriptyline last night) in a lot of pain throughout my body but in particular my right arm (mainly the shoulder, elbow, and my wrist feels like i have sprained it) i have a days work to look forward to while feeling like ive gone 10 rounds with tyson. I try to keep my condition to myself at work ( because im scared that my bosses will say im not up to the job and get rid of me) but when i feel like this i become snappy with people and want to be left alone. i was diagnosed with fibro about 6 months ago by my GP i have never been to see a consultant but have a lot of trust in my GP and am happy to be treated by him (which is 25mg of Amitriptyline before bed) does anyone have a similar experience of working with this condition? and if so have they any advise of how to deal with bad days? (taking a sick day is out of the question because you get a diciplinary hearing if you have time off ).

7 Replies

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  • Hello and welcome to our lovely forum Gilford, you are most welcome here!

    Take a look around our Questions, Blogs and Tags, there is a wealth of information there, advice, support, personal experiences and friendship too! Please read our FibroAction Guidelines, you will find these under Blogs at the top, please select FibroAction Blogs and then scroll down. We ask all our new members to read these, many thanks.

    If you have any worries or concerns, please do not hesitate to ask us, we are always only too happy to help. We all understand, we are all in the same boat here.

    I personally had to stop working after I became too ill and had to stop. My work involved long 12hr+ shifts which were physically demanding and I just couldn't continue after plodding on with Fibro for two years at this point.

    There are many of our members who do work with Fibro and I am sure they will tell you how they manage and their experiences. You will hear from them soon I am sure, we always try to welcome our new members and make them feel at home here.

    I hope you enjoy your time at FibroAction!

  • Hi welcome to this group it is good to talk to others with this condition I go to a pain group. that let's you talk freely its good now others have this you are not alone

  • Hi, welcome and congrats on managing to stay working.... I managed 7 years after diagnosis then had to give in.. I am afraid the only answer for me was a week off sick here and there then I crashed big time and had months off. Work were great and tried a phased return but it was too much... Hmm that sounds a bit doom and gloomy. One thing I would deffinately recommend is always take night meds, and get your go to review them if they aren't helping... I take 75mg dosulepin at night and 0.5 mg clonezapam and I get much needed sleep, I know you don't take same meds but 25mg sounds very low maybe your gp could sort out a better dose or med

    VG x

  • Hi Gilford,

    I myself am new and first time poster. Like youself I work too and have found pacing and planning help a lot. If I know I'm going to be busy with events etc I try !!!!!! to take the following week or very soon after off on annual leave, of course this dosn't always work out but you got to try:) Also taking regular breaks throughout your time at work might help - I.do this and then work over so no one can say I havn't worked my hours. Hope this is make sense and is of some help xxx

  • Hello and welcome Oobs! Great to have you with us here in our lovely forum!

    Take a look around our Questions, Blogs and Tags, there is a wealth of information there, advice, support, personal experiences and friendship too! Please read our FibroAction Guidelines, you will find these under Blogs at the top, please select FibroAction Blogs and then scroll down. We ask all our new members to read these, many thanks.

    If you have any worries or concerns, please do not hesitate to ask us, we are always only too happy to help. We all understand, we are all in the same boat here.

    I hope you enjoy your time at FibroAction!

  • Thankyou everyone for your kind support. I am pleased to say i have now finished my shift without snapping at a single person!

  • It's our pleasure Gilford, great to have you here with us! Well done on your victory today! Hope you manage to have a good weekend! :)

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