I have fibro and ra....I get so tired so very quickly. Does a lot of rest help with this

[mrsmyers]

[Lruk]

Hi there, I find that rest does help but I also have to have periods of moving as much as I can. The hard part is finding the balance between the two. Fortunately I don't have RA, only fibro and lymphoedema. It is very much a triel and error for me at the moment as I am finsing i think I am 'well' and I do too much and then I have a day or so where I can hardly move. I would suggest you keep a note of what makes things worse and try and find a balance between resting and keeping mobile. Hope that helps, Linda.

[crop]

I think fibro limits deep (REM) sleep so sleeping longer might not help as longer doesn't meN deeper sleep. But pacing yourself definitely helps. I find this really hard but essential to make myself rest for a few minutes at least between tasks. Are you working? It's hard if you are so make sure you take all your breaks entitlement. And if you're not, still have breaks between jobs at home however small the jobs seem. Vitamin B complex and magnesium seem to help with fatigue too x

[claireh18]

Although fibro does unfortunately mean less (or no) deep sleep, I do find that a nap helps in some way, particularly after an unavoidably busy day. As the other replies say, pacing is essential, although it's really hard to stick to if there are things you need to do, or are managing to work. Splitting tasks into chunks can help, such as putting shopping away, e.g. frozen stuff followed by 10 minute rest, fridge followed by 10 minute rest etc. Hope that helps somewhat.

[Ginsing]

Hi there

I am a great believer in naps. They are very restorative and enable us to carry on through out the day with smiles on our faces.

Unfortunately a great many of us do not sleep or achieve the right sleep through the night and that means naps are essential to our well being.

You are right pacing is essential but it can be quite hard to manage as we often think we are Ok to do something and find before we finish we are exhausted = stop or finish the task. I always find I try and finish when I should really stop rest and return to the task later as this would be better for my body. You know it is easier said than done sometimes.

If you find exhaustion a problem for example there are occassion I can not stay wake what ever I do so give in with grace have a sleep it matters not the time of day. Sit relax close your eyes and remember elevate your legs. xxgins

[paddysmum in reply to Ginsing]

As much as I try to pace myself during the day I also reach a point where I feel totally drained, terribly weak and also cannot keep awake. I agree that taking short naps does help enormously! I also have days where I feel I could run a marathon I have so much energy, however I have also learned that these days are great but I still have to force myself to rest otherwise I am laid up in bed totally incapacitated for days on end. Fibro can be very difficult to 'live' with! Soft hugs to everyone xx

[Hidden]

Hi mrsmyers

I agree with everyone who has replied to you before me they all give sound advice

It is recommended that people with chronic pain conditions have at least one session of 30 minutes relaxation every day. It mimics sleep and gives the body a chance to get rid of the lactic acid that builds up which helps to cause to the pain and discomfort that we feel.

I am a firm advocate of relaxation and post relaxation exercises regularly if you you'd like to click on my name and then click on my posts and scroll through you should find a couple in there

Good luck and I'm always about if you have any questions about my relaxation exercises. We also have virtual fun day trips to help make us use our imaginations and forget who we are for a short while........ this is called the distraction method. Keep a look out for the next trip hope to see you there

Many lavender fluffies to aid your relaxation

xxxzebxxx

[haribo36 in reply to Hidden]

Morning zeb,my fluffmeister lordship.........bows down........... Thanks for posting about how relaxation mimics sleep and helps the body get rid of lactic acid as I didn't know that! When do you think the next virtual trip might be? Xxx

[Hidden in reply to haribo36]

Glad it helped Haribo

I'm not sure when the next virtual trip will be as I'm busy with appointments all this week plus typing is hit and miss it takes ages correcting all the mistakes as my hand-eye co-ordination is shot at the moment

Its been taking ages to type replies

Watch this space

xxx

[haribo36 in reply to Hidden]

Sorry to hear that zeb,maybe sum more fluffie fun in the meantime?Iam sending you one of my best fluffies from my petting zoo to aid you in your typing.This particular fluffie extroidinaire has a very high IQ,and is a dab hand at all things technical

[wildwoman]

Hey your Lordship, could you please initiate me into the realm of the fluffies? They sound fun, what are they and where did they come from?

[Fibrofoggiest in reply to wildwoman]

Oh goody wildwoman , I'm really looking forward to zeb's answer on this, she is the fluffmeister extraordinaire , haribo is her great helper and it seems I have been the baddy since a touch of bother with some cats in the early days..... Fluffies were just lovely comfy things when they first arrived on the scene, but events have occurred in which they have waged war with the evil cats, and been taken over by said cats and have ended up creating and try to solve problems all in one go....... Hehehehe

Foggy x

[Hidden in reply to Fibrofoggiest]

ok Foggy! cheers for the low down

[Fibrofoggiest in reply to Hidden]

Back at ya

[Hidden in reply to Fibrofoggiest]

Anyhoo! you were never the baddy you were hypnotised by the evil cats to do naughty things as my memory serves me....granted its wobbly here and there but not that bad

Oh my dear Foggy one have some snuggly fluffies to protect you from them doing it again, you and the doglets are head of fluffie security down south

have some more armoured fluffies too

xxx

[wildwoman in reply to Fibrofoggiest]

Hey foggy, member of the month - well deserved! As my fluffy is a baby, i shall protect it from the evil cats with dettol and a wire brush (heck, where did that come from - just had my meds doubled, that must be it!) xxxx

[Hidden in reply to wildwoman]

haha! fluffies are soft cuddy hugs so as not to squish us so it hurts

They like a lot of things here are virtual and fun

Today just for you all I have a full range of fluffies to give out to help ease the pain and sadness that we as fibros often go through.

There are fluffy cuddles, fluffy cuddle couches, cushions, fluffies for snuggling and also recliners which are also programmed to omit lovely scents of your choosing.

Imagine reclining in pure fluffy softness whilst smelling sweet vanilla, musky lavender or cheeky chocolate?!

Which would you choose? what scents would you like and what would be your colour of choice?

Evil cats don't like the happy fluffiness and every now again they pop up to cause chaos.......... just a little fun

xxxzebxxx

[wildwoman in reply to Hidden]

Ooh thank you, foggy and Lordship - i have decided to employ my fluffy recliner right now, although not being small i think my fluffy is having some trouble breathing, there`s a sort of strangled squeak somewhere near my ear..... i`d have coffee liqueur scent ..what about you? xx

[Hidden in reply to wildwoman]

vanilla and chocolate today

then there's cleansing lemon meringue or strawberry, lime and american cream soda............... could go on and on!

Anyhoo! hope you enjoy the recliner and here's some extra healing fluffie cushions to go with it

xxxzebxxx

[wildwoman in reply to Hidden]

thank you! xxx

[kittyfisher in reply to Hidden]

Hi i have just joined and loved reading bout ur fluffies. I wonder if i could have some please. I've been having a rough time of it lately and couldnt believe my luck when i came across this website. I feel like my family dont understand at all what its like for me. My partner can be thoughtful sometimes but the kids well their not really kids anymore 18 and 22 wouldnt even think of asking me if i wanted a cuppa unless i'm having a really bad day and laid up and on them days i dont want anything. My mums fantastic but we live a long way apart and i miss her terribly especially on days like this

[Hidden in reply to kittyfisher]

Hi kitty

Of course you can have some fluffies there's a lovely recliner with cushions on route to you now to aid relaxation and for comfort when in times of pain and sadness, you can choose what colour and scent you'd like them to be

Welcome to our lovely friendly site full of like-minded caring people where we embrace the serious things as well as have fun and endorse positivity.

Please don't be afraid ask a Q or put up a post and if there is anything you need to know there is a wealth of information on the Fibro Action website which you can access by clicking on the butterfly in the top right hand of the screen

We are one big fibro family and we're all here to listen, help support and advise each other if and where we can

Look forward to hearing from you

Huge fluffie cuddles Kitty its nice to meet you

xxxzebxxx

[kittyfisher in reply to Hidden]

Hi zeb thank you so much sounds fantastic i'd love turquoise blue and raspberry scent. Love raspberries especially on top of a pavlova and loads of cream. I'm so glad i found you all. Even though i only joined last night i must thank each of you members who have replied to me you all have lifted my spirits

[Hidden in reply to kittyfisher]

You are most welcome Kitty

yummy! raspberry pavlova............. I'm craving sugar now LOLOL

Bouquets of fluffies to you

xxxzebxxx

[haribo36 in reply to kittyfisher]

Welcome kitty to this wonderful site! please do join in on the "fluffie fun"as it's a chance to be silly and funny and I love silliness If you want you can join me in being another of the fluffmeisters assistants or how about helping me to run my fluffie petting zoo,hehe