Fibro Positives: They say everything... - Fibromyalgia Acti...

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Fibro Positives

Jezobelle profile image
10 Replies

They say everything has a positive...anyone found any for fibro yet? Because I sure as hell can't! It seems determined to stop me from doing all the things I want. I've spent all day in pain, no energy, doing nothing except hoping I'll be able to get to work tomorrow!

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Jezobelle profile image
Jezobelle
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10 Replies
Extremelygrumpy profile image
Extremelygrumpy

I have but I don,t think you will like it..... I had to give up work when my son was 3 .. Due to fibro... So I had and still have lovely family times I would have missed had I not had fibro and carried on working... That's my positive.

Good luck finding yours and congrats on working having done it I know how difficult it is...

BIg Hug

VG x

Jezobelle profile image
Jezobelle

Thanks, my kids have both grown up now and work full time, but I was lucky enough to be home with them while they were young. I've worked so hard in the last few years to get the job ice always wanted, and now it's just becoming too much. Was diagnosed about 18 months ago with fibro but still not really ready to accept it.

Extremelygrumpy profile image
Extremelygrumpy

It is really hard to accept, once it really gets a grip, even after 22 years I still have days where I cry and think why me...personally I think it's a really awful condition some days I have no energy and if I need to go out I have to use my mobility scooter and cos I am in my 40s the looks and tuts I get because I look ok ... Used to really upset me, now when I get a tut or a look I say loudly I am not deaf or blind but my legs don't work. usually has the desired effect

VG x

Dixiesdaughter profile image
Dixiesdaughter

Hi :-) sorry I sooo wanted to be all 'Polly Anna' like and point out all the positive aspects of life; even for those living with fibro but im too sore and fed up myself today!! Been in bed most of day with intense neck pain which is making me feel like lashing up everytime I turn or look up too quickly!!! Add to that the usual fibro aches nd pains, swollen clawed hands, fibro fog and restless legs and you can see why its hard to feel positive.

I am usually a happy go lucky wee person so i'd say my positive is that I know she still there and will return again - hopefully soon :-)

One plus for me was that it made me count my blessings and realise what is important in my life. I am not complacent nor do I take anything for granted any more. I realise things could be a lot worse as well as a lot better, but I take one day at a time, think of all the good things still in my life and try my hardest to keep positive. Not always easy, but most days it works. :)

I was blessed to have three children and my lovely hubby, I am not alone, I am blessed. Fibromyalgia is a challenge in my life, the cards I was dealt, it won't beat me! :)

rainbowdancer profile image
rainbowdancer

Hi I am sorry you are so poorly with Fibro it is not funny is it and very hard to find a positive amongst all the pain and lack of sleep. I was always a very positive person too,but at times enough is enough!!. I suppose the one thing is that one day you will have a good day, and maybe get some positivity out of that. I don't really know. Wish I had the answer for you but sadly I don't. :-(

All the time my daughter says "Oh Mum just try to think positive....." This upset's me very much especially this last six to eight months as I have got worse. I told her the last time she said it " Well the only thing about this aweful illness, that you don't see !! yet know exists is I possitivly cant walk and I positivly hate what is happening to me!! " She then said " think of my friend she has children and trying to hold a job down " I did too when she was younger but of course she doesn't remember that !! :-(

Sorry to be of little use to your question...one thing positive is ,we all care on here and we all try to support each other....because we all know what the ups and the downs brings. :-)

Take care and wrap yourself in a gentle healing hug,....Love and Light

Rainbowdancer x

cobweb profile image
cobweb

it's hard to find anything positive, but - I certainly appreciate the good days & when I achieve anything I feel really proud of myself, before I would have taken it for granted.

And the really twee (but true) answer - getting to know so many brilliant people on this site.

It's awful when you feel so unwell, just look forward to th better times & relish them when they come

I wish you better days xxxxx

stormwytch profile image
stormwytch

The only positive thing for me was that it wasn't as debilitating as my ME was and I could drink alcohol without falling asleep. When I get really despondent about the Fibro, I think about all the worse things I could have and that gets me through the day. I try to count my blessings about the nice things I have like my partner, my pets and my good friends. Without all them I think I'd be in a much worse position. I'm thankful for the days when my fibro isn't so bad, that I'm still able to work, even though I'm going to have to reduce my hours and that means less money.

Wishing you happier times

Storm x

SootyB profile image
SootyB

My positives are firstly the old thing of looking around you and seeing that there are plenty of conditions that you could have that would affect you even more profoundly, but also a more personal one: I was in a bit of a mess at work and personally when I first started with my fibro, and the 5 months I ended up taking off work with it did two thing. It made me put work into perspective, so I now don't force myself to take on unreasonable workloads, which has made me a better colleague and clinician, and has taken at least some of the stress out of my working life. It also gave me the time to start on anti-depressants, and have some CBT, which has helped me to deal a lot better with what has really been the worst 18 months of my life so far! Without the time off fibro gave me, I would have carried on working and probably not found the time for psychology appointments, and I may well have had a complete breakdown, and lost my relationship, as things were getting that bad.

Sometimes, it's hard to see a positive, but I'm one of those people who believe everything happens for a reason. xx

Teddysmum43 profile image
Teddysmum43

If I hadn't got fibro I dread to think where I would be now,I was totally overdoing things,not keeping myself safe or looking after myself then fibro came along and gave me a wake up call,I now try to look after myself,I now have boundaries and I have learnt a hell of alt about myself too.

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