its not often i feel this low, i am a very positive person with a can do attitude. ive had this for 10 years before i was diagnosed so cope well. i also know that i am far luckier than some as i still work and i work a lot!! i load my self with work and responsibilities.
but there are days when the pain and exhaustion are so overwhelming, i can barely get through the motions. i ahve to do my exercises i know they help but the effort is almost more than i am able to do. there is no comfortable position and no end i can see until i get my massage in a few days. thats a long way off.... no end and no relief
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Jannieyes
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Wow this is a mirror image of how I feel! I feel your pain, I load myself too, with uni and other activities but I also have really bad days that just take it out of me
This is an identical post to what I was just about to type. I too am lucky that I still work and work long hours, but today everything seems to be a struggle. I nearly fell asleep this afternoon during a meeting (not good). I came home and had a sleep to try and help but my body just feels like a piece of lead. I also have a massage to look forward to but not until the weekend. Hope you enjoy yor massage as much as I know I will enjoy mine. Hope you start to feel a little better tomorrow. Gentle hugs x
I struggle with meetings, and sometimes - when I'm doing admin work, and am alone - I allow myself the luxury of a little snooze during my break. Probably not professional, but it gives me the little boost I need to make it through the rest of the session. Like you, I work full-time, and occasionally take on far more than is good for me - and boy, do I know about it!
Try to pace yourself (do as I say, not as I do ...), and accept that you have limitations that you can't exceed without consequences! xx
Having a positive attitude makes it a bit easier to tolerate this vile condition. But we are human and just for a little while it can hit home just how fragile we are - it can be a shock but I think it is a really normal reaction to our situation and not someting to be unduly worried about.
Well done to those who are still managing to work despite having Fibro - I'm sure that most of the members here recognise the difficulties you must face.
Treat yourself gently and generously though because Fibro is not a very forgiving condition sadly.
Hi, I was diagnosed with this sneaky illness 3 years ago, after hundreds of visits to the Dr's with one complaint after another. The problem was that the pain kept moving and seemed to pop up in a new place daily, leaving the previous place really sore. I still hold down a full time job, but am struggling to hang on to it. Sometimes just the strain of being in constant pain leaves me so exhausted, and I found myself getting more and more depressed until I finally exploded at work and just threw a massive rage. I was sent home with instructions to see my Dr, Occupational Health, blah blah blah. I have now been off sick for 10 weeks and am still waiting for an appointment for some Cognative Behavioural Therapy that they seem to think will sort me out. All I want is an effective regime of pain control that actually works and doesnt leave me feeling like a zombie. If you are still reading this, thanks for reading my rant, but I have read quite a few of the questions and blogs and seem to identify with most of them.
Hia Mandy, you are perfectly entitled to have a good rant & get some of those worries off your chest, & this is the perfect place to do it too, where everyone can empathise & understand most of what you're going through. It's really tough being in continual pain, it's so frustrating & exhausting. I know what you mean about wanting an effective pain control regime, i desperately need one too so that i can cope better with my little boy, which as much as i adore him, is a daily struggle for me. I hope you get your CBT soon & really hope it helps you.
I have just recently joined this site although it is not nice to have fibro it is nice to share with people that actually understand what i am going through. I was diagnosed 10 years ago
this year they stopped my ESA and put me on JSA I am 54 . Granted this year I was feeling better than i have for a long time was off pain meds and just taking amitryptaline. only now for the stress to have taken its toll and am back on tramadol for pain, and everything starting to flare up again. saw a new doctor at my surgery only to be asked how do i know i have fibro, sometimes i wonder how they can call themselves doctors,
i have had fibro for 17yrs .. along with other illness .. i have gave up telling any one how i feel .. no one listen,, most people think you are swinging the lead .. would not wish this on my worst enemy ..
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