Fibromyalgia Action UK
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In Despair

I’m so down about this horrible condition. I’m feeling so sorry for myself. The pain is so bad but the illness is worse! I’m so tired, nauseous and just feel that there’s no point in struggling on any more. If I didn’t have a loving family and good friends I would just stop eating and waste away. Everyday is so hard. I know that there are people reading this who are going through the same life and I am so sorry that anyone has to suffer like this. It is a beautiful sunny day but all I can do is lie on the sofa with an aching body, a nauseous stomach and a miserable being. My brother and sister in law just phoned to ask if they could come and see me but I said no as I’m not up to chatting and I don’t want them to see me like this. I know this is a self pitying text. I don’t like the person that I have turned into but I’ve reached the end of the road. No one knows how to help me and I don’t know how to help myself. Nothing has worked. Thank you for reading this text and I so hope that you are having a better day than me.

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Oh my dear friend please don't apologise for your post, we all understand, have been there and will likely go there again. Just get it all off your chest here.You will feel better for it and no one here will judge you. This wretched disease never really leaves you; you have to get immersed in something you enjoy (and can still do!) to push it into the background for a while. Something to work on perhaps? Take care of yourself, keep warm and pace properly. Love and hugs, Anna xx

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Thank you so much for your kind text. Knowing that others understand this horrible illness really helps. You are correct - I have to find something that will take my mind off the pain and fatigue. It’s difficult when I don’t feel well but will have to get some of my drive back. I really appreciate your support and I hope that you are going through a relatively better episode. Audrey xx

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Morning mcglada0

I too am feeling miserable 😩 on this beautiful day I’m sore everywhere lolling on the sofa in my PJs can’t eat but I’m hungry, sore but can’t drag myself to the cupboard to take my meds, also need a shower...working my way up to that one. It’s true this illness affects your mind, body and soul it leeches away your humanity. I have consistently underestimated the effects of fibromyalgia on me and my family.I hope you can text your brother, even when speaking is too much I still want to communicate , bet he’d love to make sure you’re ok. Please don’t feel bad about being ill you certainly didn’t ask for I’ll health, just know I’m here, along with many other people on this forum. Try to rest and don’t worry.

Love and gentle hugs 🤗 xx

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You are so kind to take time to reply when you are feeling so miserable yourself. I wouldn’t wish this illness on anyone but it’s good to chat to someone who understands. I hate to think of you going through this and if I can offer any support then I am here for you too. We are lucky to have this supportive group to communicate with. Everyone wants to help even though they usually feel yuck themselves. I hope that you improve a bit over the next day or two. I am thinking about you and as I am often told, it will pass ( for a wee while ). Thank you so much for your reply. Audrey xx

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Thanks Audrey

I had a busy day yesterday and woke this morning having very little sleep, after I texted you I made myself take meds, shower and eat. Felt brighter for a while....then fell asleep 💤. Fortunately I don’t feel like this all the time. I noticed a reply to you from nurse Gladys about going to gp for physio I’m plucking up courage to do this myself. On good days I write in my fibro diary and mention pain, people who are lovely to me (despite my grumpiness) and things that amuse or freak me out. I get hives for no reason and concentration is poor. I took up knitting recently... keep dropping stitches cos my arms ache and twitch, I love cooking and hate washing up, OH usually does that...after some debate 😆 as for hoovering I have to book an appointment for him to do that 😂 but despite all this I count myself lucky my 🐕 dogs make me laugh with their antics and I’m not in work and under pressure for deadlines. Please feel free to contact me we could put the world to rights lol🤗 . X

Ps when I can manage it I go to a free art class painting and drawing....after a fashion and love it. Think of something for yourself to divert you.... here’s something that will make you laugh, went to supermarket and kept fiddling with one of my hearing aids, something bothering me.... found out why when I went to bed....forgot to switch them on when I put them in the first place! 😂 x

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Can i say to you hun- the "stretched out on the sofa" wont help, you need to try to stretch your muscles a bit to make them work, the more we rest the more our muscles get smaller and weaker,, maybe ask your gp for some physio and tell him everything you have told us today.. Would someone go to a local swimming pool that has a jacuzzi- could you manage yourself? its a lovely feeling in the warm bubbles-under warm water our bodies revive a little and if you can try to get hdyrotherapy you will feel more alive in around 4-6 weeks...

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Thank you so much for your helpful reply. On my good days I do try to walk and be a bit active but these bouts of fatigue just floor me. I think investigating hydrotherapy is a good idea. I love a hot bath so I will ask my gp about it - thanks. I really appreciate your advice and support. Audrey xx

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Hello Mc--I have a heated pool 50 feet down the hall--I now have emphysema and on 02--so haven't been going swimming-BUT before I got to bad with my lungs I went swimming all the time for my fibro--That warm water was wonderful--and I could move like nothing was wrong with me--Highly recommend it--but not in cold pool and don't overdo it--Id walk back and forth at about 3 ft --20 times--worked a lot with arms and legs--I miss it so much--now im overweight and trouble breathing --xx MmeT

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That sounds amazing! I’m so sorry that you’re not able to use your pool any more. Because if your text and nurse Gladys text I am going to try and find out if there is a warm pool or jacuzzi near me. I’m so sorry that you are having trouble with your lungs . Fibro is rotten without an additional illness. Take care and thanks for your reply. Audrey xx

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Morning, I got a jet bath a instead of normal bath couple of years ago and that helps especially when your on a bad day and too exhausted to move......I also invested in a treadmill and bike for these times too and know I’ve only got to push myself to switch it on and slowly walk on it and not have to make the effort of looking ok to face the world but know that I will benefit still! I know it seems like a lot of payout but if you call bathstore they sometimes have an excess jet bath in store that someone ordered and changed their mind so sell it cheap (that’s how I got mine) and the treadmill or bikes are very cheap online second hand x hope this helps and sending you hugs as we all know what your going through 😢 x

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Thank you for your helpful text. I really appreciate all the advice and support I’m being given and it really helps to know I’m not alone. Your suggestions sound good and when I have some spare cash I will go online. Hope your day is as good as it can be. Xx

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Thanks and I’m not too bad......having a bad few weeks but I will get there just like you will but the dark days are horrid aren’t they?

I love this group as I get more advice and help from everyone than my own gp etc.... xx

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I’m sorry that you’re having a rough time too but it is lovely to chat to you. I was saying to my husband- “ If only I could get two weeks where I feel semi- normal”. Funny how your aspirations change! Lol! I agree that this group is more uplifting and helpful than any gp or health professional that I have seen. I have just done some stretches and plan to do a few more later on. I couldn’t have done them yesterday and I really feel it’s the encouragement that I’ve had here that has calmed me down and helped me to see that I’m not alone in my struggle. I am thinking about you and know that you will get back on track soon. It’s just such a horrible illness and I so appreciate that even though you are suffering that you are taking the time to help me. Thank you so much. Audrey xx

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Nursegladys

I couldnt agree more, i found since ive started to do some walking and pilates and stretch in morning and in evening before bed my pain has got abit better.

I have also started taking glucosamine msm and coq10 and found they have all helped to.

Dont get me wrong some days still bad but there less frequent now. I feel bodily stronger then i did

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your welcome Audrey--you will forget you have fibro in the pool--Im serious-Let me know how you do-xxxx MmeT

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I will, MmeT. I just have to find a suitable pool but I will let you know. I hope that you keep as comfortable as is possible. Xx

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Good girl Audrey--Hang in there--you will be pleasantly surprised--I promise--MmeT

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I am so sorry you are feeling so low & in so much pain. I went to the gym this morning, I'm very sore now but it gives me a real sense of achievement. I've been using my hot wheat pads & TENS machine this afternoon to help & watched Endeavour & done some colouring to take my mind elsewhere. I really hope you feel a bit more up soon, take care x

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Thanks for your supportive reply. Inspired by MmeT, I have just organised for a visit to a health centre which has 2 juccuzis. Can I ask - what exercises do you do at the gym? Xx

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I usually do some gentle cycling, walk on the treadmill & some v light weights, but less if I'm not up to it.

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No need to be sorry I know how you feel

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Thanks

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I, too, hate the person I've become. So miserable at times.

As suggested, do try to stretch, walk a little if you can.

For the nausea I use travel sickness tablets, cheap enough to buy in the pharmacy and really help. Ginger is supposed to help, too.

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Thanks for your text. All the support on this site really helps. It is horrible when we know we’re miserable and just can’t help it. I feel a wee bit better today so going to try to smile. I bet you do that too. I hope this is a better day for you. Xx

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so sorry your feeling so bad like a few have said swimming helps in a warm pool I've heard somewere that your up can refer you you for hydrotherapy and that way it' only a smaller pool and someone would be there so you can have help if needed hope you feel better soon hugs maria

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I text a health pool that has 2 jacuzzis and going to see it on Wednesday. Hopefully by then I will be able to move and get there. All these lovely supportive texts have made me want to try this out as nothing else seems to work. Thank you and I hope you have as good a day as you can. Xx

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Hi,

Have you ever tried Magnesium to help with your Fibromyalgia?? Most of us are deficient is this essential mineral and there is lots of evidence to suggest that Magnesium deficiency is linked to Fibromyalgia and raising your levels through supplements, or Magnesium oil (Which is cheap and easy to make yourself and I believe, much more effective at raising your levels than tablets because a lot of people find it hard to absorb Mag orally for one reason or another!) gives much relief.

I really believe Magnesium could help you, especially as nothing else is!

Best of luck!! xx

Some good info links here:

Magnesium and its Role in Fibromyalgia Treatment: fmaware.org/about-fibromyal...

Use of Transdermal Magnesium Chloride May Be Clinically Beneficial For Fibromyalgia Patients: fibromyalgianewstoday.com/2...

easy-immune-health.com/fibr...

integratedhealthblog.com/ma...

ncbi.nlm.nih.gov/pmc/articl...

ancient-minerals.com/transd...

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Thanks for the helpful reply and the links. I take Eldon salt baths and have started taking magnesium tablets. They’re like horse tablets and really difficult to swallow! I will give the oil a go thanks . I am prepared to try any useful suggestions. Xx

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