Please can someone help me? I am getting into a right mess with all of these forms and I really need help....I am sorry this is so long but.....
I had an operation 26/1/12. I contracted a staphylococcus infection and the stitches split open...it was a doctor different to my own and he wouldnt touch it, a&e wouldnt accept me back in and the medical ward wouldnt take me back. I was really very poorly and looking back should have argued more but ended up steri-stripping my wound and had over 6 weeks on anti-biotics. It healed but have never been the same since :?
I put in a claim in February for ESA as I was unable to work, was told as I got Working tax credit I wasnt eligible for it..still had to send them sick notes though. Then I started receiving a small amount of ESA about May time and was called for a interview/assessment with ATOS. At the time I was unwell with post op complications and plantar facistis...thats all I had the ATOS assessment for. I didnt hear anything from that interview for months but was placed in the support group.
July time I was diagnosed with Fybromyalgia, Chronic Fatigue syndrome by a Rheumatologist. I put in a claim for DLA as I seem to be getting worse over time not better. DLA turned down 15/8//12. I appealed straight away with help from CAB. I have just heard today that the appeal has failed and due to the assessment in May by ATOS...they have decided I am fine to work and do not have cause to claim.
I also received a letter two weeks ago stating I wasnt entitled to ESA as I scored 0 points with ATOS in May. I have appealed and am back on the assessment phase monies. As I am still of work on sick I cannot claim anything else.
I am in agony daily in all of my joints, especially my back,
I see a physio, have just started getting help from the pain clinic.
I fall regularly and loose control of my legs, cannot walk very far at all.
I have difficulty looking after myself and my children and as a result my children are doing a lot of the caring for me
My hands dont work
The fog is making life impossible
I do not go out of the house other than to drop the children off at school/pick them up (they come to me in the car) as I cannot cope with busy spaces now and panic.
I cannot cook a meal (ATOS say I can though) but I cant and were living off junk food.
My doctor offered me support from Social services BUT my friend said they will tell me to rehome my animals, we have dogs, cats, chickens, rabbits all of which are very well looked after (the children help with their care, clean them out, walk them etc) but my friend (who is disabled) is adamant they can make me rehome them or refuse DLA as having them means I could work. Aside from my children (who are my world) my pets are my reason for carrying on and I am so scared I loose them so refused Social services help.
Sorry its so long but needed to let it all out somewhere. I am sat in agony, crying and worrying. What next? Can I appeal the DLA appealk refusal based on the fact they have decided my future based on an assessment that was made when I didn't have Fybromyalgia and CFS and it has gotten so much worse since then? Who can I get help from as the CAB dont seem to have done me any favours but I get so mixed up with forms and concentrating (been writing this post for an hour! lol). All of the ATOS findings in May do not reflect my needs/abilities now.