Going crazy.........or Fibro Fog?. - Fibromyalgia Acti...

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Going crazy.........or Fibro Fog?.

Jomple profile image
22 Replies

Hi, my concentration and brain seem to have stopped working, I do silly things like put the milk in the oven and daft things like that, but over the last couple of weeks I have started to do really silly things, cut myself while.chopping a tomato! And yesterday I put my fingers into a cup of boiling water, my fingers have blistered and bandaged! The dressings are getting changed tomorrow, its as if I don't zee the danger of things! I feel stupid like I am loosing my mind! I have been suffering a bad flare up for the last month?? Does anyone else get like this? I haven't driven for weeks as nearly crashed laSt time, just can't concentrate xx

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Jomple profile image
Jomple
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22 Replies
SootyB profile image
SootyB

I can certainly relate to this. I tried to walk through a low table - multiple times, not taking the pain in my shin as a hint that it may not be possible - and ended up with a massive, swollen bruise! I put my hands 'through' objects, so knock them over, as if I hadn't seen them there in the first place. I touch the kettle with the palm of my hand 'to see if I put it on to boil' ... need I go on?

I hope it's the fibro-fog, not the precursor to the funny farm!

Sara xx

Catsrule profile image
Catsrule

Sorry to hear you have been feeling like this. I too have been suffering really bad fibro fog and nearly crashed my car yesterday! I went to put the washing in the oven and have found my purse in the fridge! Yes, I can giggle at these things but a bit worrying when you look at the bigger picture. I am finding it really hard to concentrate at work and my job is quite demanding at times. Luckily I am finding my mistakes before anyone else does. I also feel 'stupid' and haven't really experienced the fibro fog this bad before. I like to feel in control but I don't at the moment. I do hope your fingers recover quickly, take care x

Jomple profile image
Jomple

Ah thanks for your replies, I was starting to think maybe this was the start of altzimers! At on 42! Haha I am sorry your going through this to, and admire you Catsrule for battling on at work! I have been off for four weeks now, and yesterday was my first day back, and that's when I burned my fingers!!!! In the work kitchen loops so this sicknote says burns to hand and not fibro! That will cause bother at work :-( xx

SootyB profile image
SootyB in reply toJomple

Well, yes and no - you need to make sure that they understand the effects of fibro on your cognitive abilities (FibroAction website has some great pieces of research on this), and it was on work's premises, even though it was probably not anything that they could have helped.

Hope you don't get any hassle xx

jolow profile image
jolow

Aw bless your not alone but i can top you with silliness i have been driving for many years and yet just two weeks ago totally forgot to use handbrake ,i returned to my car and where i "thought" i had parked it to find it gone and embedded in another car on opposite side of road neither insurance nor i are amused at this i still find it hard to accept that it has happened luckily no one was hurt .I am so far gone that i was only yesterday shown some photos of a cute baby and i done the appropriate oohing and ahing and i said ah he is just so cute who's baby is it? SHOCKED faces looked at me and then nervously laughed like i was joking as it is a picture of my son who was a few weeks old and who has now reached the grand old age of FOUR!! I truly did not know it was my beautiful boy ,just now as i am typing i have lit a cigarette my only vice to find one already lit in the ashtray.I am mad and i get very frustrated with the daft things i do or that i cannot recall but i do not expect anyone these days to understand me as i don't understand the new me either while at times it's funny and i can laugh other times i cry as it's scary not knowing what you once did and now don't.xxx

Jomple profile image
Jomple

Ah jolow that's terrible, bless you x I am finding things like finding the pics on my mobile phone (which I have had for 2 years now) really difficult!! Things I do everyday I forget....how to get catch up telly!! I work it out. All the time xxx can barely type xx

SootyB profile image
SootyB in reply toJomple

I struggle to type these days - it's almost like I'm dyslexic, as I find that I make similar errors to my dyslexic colleague at work, and letters are transfixed, or I find myself thinking one word, but typing another. It feels like you're going mad, and I've always been such a picky little Grammar-Nazi that it really winds me up when my own sentences come out as gibberish. I proof-read everything at least twice now, and still sometimes make mistakes! xx

rainbowdancer profile image
rainbowdancer

I have banned myself from driving because I scared myself about 8 weeks ago and I used to love driving . Used to drive to the highlands just me and my dog and my camper van..............would not know how to get there now!!

It is horrible and when I first had memory problems my daughter found it hard so took the micky out of me to cover it up!! :-(

I would like to be able to tell you you get used to it,but I dont think that is the case. Well not with me anyway I hate it.....feel like Fibro has taken over my life!!! :-(

Bless you Jomple, I am sure most of us can relate to how you feel. My foggyness is so bad sometimes I confine myself to the house, it literally is as bad as that. I consciously make the decision to stay inside the house until the fog passes. I don't feel steady, I feel really vacuous, I certainly wouldn't drive, I don't even go for a walk when I feel foggy. Also my memory seems to disappear, I forget everything!

Please don't be too hard on yourself Jomple, your Fibro fog isn't your fault. No-one would choose to have it. Give yourself a pat on the back for making the sensible decision to not drive if you can't concentrate, it's just not worth the risk to you and to others.

I hope your fingers heal quickly, I have burnt myself so many times since having Fibro, so I sympathise.

Take care, the fog does clear until the next time. Here's a gentle hug for you from me x

((( hug )))

jolow profile image
jolow

Hi ,In reply to libertyz while i understand totally what you are saying with regards to driving for me it really is my only way to manage getting where i need to go as i can neither afford taxis or keep relying upon my eldest daughter to get me to school to either drop off my son or collect him.While i do not suffer with feeling unsteady nor do i think that i cannot concentrate while im concentrating upon driving i think i know what i am doing until i do it wrong.I am trying to stay independent and i really only go out if needs must i have effectively cut my life in half mostly i drive to doctors,hospital appointments school as i do not have the energy for much else and if i had to walk then i would never get there as it hurts to drive.My memory has been a problem for quite some time now i thought i was going senile ,docs blamed stress but i now understand i simply cannot help my mind but rest of me i am working hard on my fogginess is now normal to me and yes it can be shocking it does not come in waves it is constant so i think i am normal until i make daft errors.Take care, x

Extremelygrumpy profile image
Extremelygrumpy

Ermm it's the crazy fibro fog... I am always putting things in the wrong place and dented my glasses frames by shutting the cupboard door while my head was still in it..... Stop laughing

VG :)

Jomple profile image
Jomple

Hahaha I really had a laugh out loud there! Ah its a very invisible Debilitating illness that takes over life as we knew it! But now we have to embrace our new lives full of change:-) xxxx

KeepingGoing profile image
KeepingGoing in reply toJomple

I agree. I am trying but finding it hard. Amongst other truly embarrassing and silly things I've done recently is this afternoon's incident at the hospital. When the MRI operator had JUST finished describing to me how to sit on the MRI table while I took my shoes off. I turned to him and said I had forgotten what he'd said. His face was a picture. We did have a laugh about it, I have to admit. He did repeat it all again, but then he went into his little room and I could see in the mirror that he was still laughing. It makes me laugh just thinking about it. If I don't laugh, I'll cry!

SootyB profile image
SootyB in reply toKeepingGoing

Oh, I do this! On Fridays, I work with an admin assistant, who books surgery appointments after I've done the assessment. He reads them out to me (usually a couple of choices for the patient to decide between), and all that I have to do is repeat them to the patient. He reads them out, I repeat them (with some difficulty) back to him, turn to the patient in the next room, and ... um ... errr ... gone! Nothing. I can barely remember which day of the week he's said, never mind the date or time! What a 'nana I look! xx

sue57 profile image
sue57

I start to walk out of the house with either my slippers on or no shoes at all!! I've put the Marmite in the fridge and the butter in the cupboard!! I've put the oven on and forgotten to put the meat in!! I look everywhere for my car keys and they're in my hand!! Ditto with my purse!! Is that the name for it? Fibro fog

Extremelygrumpy profile image
Extremelygrumpy

Hmm never gone out the house barefoot ... But managed to turn up to pick my son up from school...... Standing in a playground full of parents.... In odd trainers ......oh the shame....

VG x

Ozzygirl64 profile image
Ozzygirl64

I think the fibro fog does this to all of us at some point and my family thought I was going mad. Only the other day I told everyone I was heating some mash up in the computer. That stuck with me and yes I did head for the laptop with a bowl of fluffy creamy mash. I am doing stupid things all the time. Checking the kettle is a classic for me. I even do that with the iron. And I can see the steam from the hot tap and still put my hand under it. One of my favourite tricks is to watch hubby take a hot tray from the oven and then I pick it up without a cloth. I have lost clount of how many times I have done that. And now to top it all of I have started sleep moving. I woke up Friday, hubbys clothes were off the hangers and folded up on the cupboard, my purse was in the bin and my tablet trays were in the topilet roll cupboard. Mother in law said to hubby 'watch it, you may find yourself thrown out if Lin keeps this up'. It gave us all a laugh, but it aint funny at the time. I use my disasters as inspiration for my poetry lol xxxxx

Nicknac profile image
Nicknac

thank you for the reassurance i'm not crazy! yesterday i was trying to open the kitchen cupboard the wrong way and screamed as thought the cupboard was stuck imagine my embarrassment when my son walked in and asked what was wrong, and just opened it :/

stickleberry profile image
stickleberry

I forget things iv just been told sometimes,how to work the tv remote ,has to call my husband from downstairs to help me with the remote ,felt so silly was in tears :( didn't know about brain fog til now .Lets hope we dont all get taken away in white coats lol got to laugh or I will cry ,take care friends Ness x

(Just to let everyone know, for some reason the above post posted 9 times, must've been a computer glitch. All returned to normal now with just the one original post - Stickleberry's post) :)

Jomple profile image
Jomple

Hi Ness, yeah we are all going crazy together! Maybe we need to laugh about it!! Its so embarrassing isn't it xxxx

12george profile image
12george

I am exactly the same, I can never find y keys, have found cheese in the bread bin, I know where I want to get to but don't know how to get there, i gave forgotton where I had parked my car recently . I am awful, I get frustrated and hit myself as well -i have forgotten to put things in the oven, left the oven on, I have also let saucepan s boil dry so I am a hazard really when it comes to cooking. I just feel it's me but clearly it's not as others have the same symptoms.

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