I have endometriosis but most of last year I started recieving really strong symptoms of pain and stiffness. So I was diagnosed with fibromalgia. But now I have many new symptoms that are severely affecting my life. I want to ask if anyone has any twitching or stutter? I also now have really bad issues with keeping up with conversations. The other day I was so confused all of a sudden and I couldn't remember anything for about a minute. It's really effecting me. Normally I talk to my friends and family a lot and normally discuss things about art or music. Now I can't even keep up with conversations about my day. It's making me scared to leave the house.
I'm considering a walking stick from the fibro in my knees. I'm 24. I am trying to push that in the back of my mind but sometimes walking to the bathroom is a struggle.
Is it this bad for other people?? Am I alone with these symptoms that are so much worse than I started with.
I'm struggling mentally so much because I don't know what to expect or what other people have. What symptoms could be down the fibro. I had a epilepsy test because I was falling right back and hitting my head with these twitches.
I can't go a day without napping for a few hours.
I need to know if mines is really bad or if someone is like me...
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Claire-Kelly
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These can all be symptoms of Fibromyalgia however I would strongly suggest you ask for reassessment and further tests, and do make use of a walking aid for balance if needed. I hope you get some answers soon. I must just say that I am not medically qualified and speak only from experience. Lou xx
Hi there I really struggle with memory loss sometimes as well I'm seronegative ra And I also have oa. The last year I've got worse and at times I think I'm losing my marbles , a lot off these illnesses are very alike and sometimes I wonder if I have something else, so I think that's why our conditions change over time but I'm no doctor so don't worry you are not alone
I too told my g.p I wanted checking for early stage demensia! he said it was highly unlikely and would more likely be fibro fog, the lack of sleep, the low esteem, the drugs we take all contribute.. I also have O.A osteoporosis, and calcium crystal disease, I only use paracets now, the odd sleeping pill and alternative therapies as I got so fed up with medications that didn,t relieve anything and caused other problems.
I am so genuinely sorry to read that you are suffering and struggling with all of these symptoms, and I sincerely hope that you can find some resolution and relief to them. I suffer with memory issues on a regular basis, but it is always best to check these things out with your doctor just to get other medical conditions ruled out of the equation, and never assume that everything is Fibro related.
I want to genuinely and sincerely wish you all the best of luck.
Hi there. Yes I suffer from speech hesitancy. I can be talking quite normally and come to a sudden stop. Everyone looks around expectantly and then look to me and I have lost the thread, or just the word. People are getting used to it now. Also my spelling has become atrocious and I used to be the one people asked how to spell things.
My memory is getting quite bad too (I recently ordered 3 sets of bedding, exactly the same) but the GP puts it down to fibro. I am a lot older than you but have used a stick for a while. Get a trendy one! My balance is bad and I also have sciatica in my right leg. Don't be scared, the more you investigate, the more you realise that there are hundreds of people with the 'odd' symptoms that come with this wretched fibro.
I sleep most days, switch the phone off and give myself the time my body needs to recover. The twitching is quite normal too. One day my laptop jumped right off my knees I twitched so badly!
People here will tell you their experiences but nothing takes the place of discussing your concerns with your doctor.
from my experience NEVER label everything as fibro get it checked and don,t be fobbed off. I recently chalked up a tickly cough as fibro related - NO- its coming from my stomach, its acid and caused by all the drugs that go went down my gullet for years and have caused untold damage, I,m having a camera down my throat soon to check what the damage is! I do take P.P.I meds and have done for 35 years which are supposed to protect against this,, I blame alendronic acid given for osteoporosis which I have now stopped and reverted back to HRT on patches to protect my bone density. We sufferers never stop trying things to help with mobility and pain but we don,t see the long term results in doing so...Alternative therapies only for me..
Yes twitches are quite common, I mostly suffer in a morning now I can feel them building most of the time. Chatting to people can be frustrating a word will just disappear and take what seems like forever to find it again. You could be in the middle of a flare which makes all the symptoms much worse.
Adjusting to Fibro isn't easy but it can be managed to a degree partly with medication and being kind to yourself, learning not to push yourself to hard.
As has been mentioned by the other lovelies go back to your GP tell them whats going on it's important not to just blame fibro when something else going be going on like low iron levels etc, this might not be relevant to you but depression can drag you down physically too.
The thing to remember with Fibromyalgia is that it is tailor made to each individual.
Therefore, the symptoms that the person gets are different to other people's. This is why Fibro is so hard to diagnose.
With regard to the twitching and stutter, in my humble opinion I think that it would be worth a visit to your GP to discuss these.
I was diagnosed at 20 and know of others who were diagnosed younger.
My Fibro is really bad due to the chronic pain I am in. Others might be really bad due to their fatigue being the worst thing.
Please may I suggest that you lock all of your posts? Currently absolutely anyone on the open internet is able to read your post and all of the replies you've had.
Let me know if you need instructions on how to lock your posts.
I was around 25 when i knew something was not quite right with my body in general...Fobbed off for few yrs by gp till I moved and was investigated by new gp and diagnosed with Fibro...Like you u was hobbling around and using crutches etc to just go loo visits!!...I stutter often now and cant keep up with much tbh...My mind will go totally blank several times a day to the point were I cant remember how to call my Mum ,Mum!! I kno who she is etc and kno she is my mum but I cant say the word then bang its back...this happens several times a day in general with anybody and everybody...I twitch a lot too and involuntarily jerk limbs out of the blue...Unfortunately it only gets worse as you get older as I'm now 40 and it gets tougher but in my case I was indeed diagnosed with epilepsy around 7yr ago but it was miles different from any fibro symptoms and came as a complete shock...I was struggling on working my trade as a roof slater when the epilepsy reared it's head and although I was just about finished on roofs due to fibro the epilepsy ended it all there and then as it was just a 100% no,no to carry on and my driving licence was suspended there and then as the neurologist told me I was defo epileptic....So something to get checked out and be aware of but in my case it was nothing fibro related and just down to sudden fits that can strike anyone at any age and anytime....Good luck 😊
Thank you! All of you! You all have been so kind to me. Listening to your stories I see I'm not alone. And everyone has had their fair share. Thank you...
as a 14 year sufferer you have all the classic symptoms of fibro, ask your g.p to refer you for some hydrotherapy to get your muscles pumped up, its very relaxing its a large pool; not for swimming; and it sooo warm. and you will meet others there who will give you loads of tips on coping as well as a qualified physio to offer other therapies that have helped me. good luck
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