Fibro Fog or onset of Dementia????

Hi, I have had FM for many years, diagnosed 12 years ago. Fibromy fog playing a bit part in my illness. Over the last two years or so my fog has been getting worse, I leave the gas on at times, forget to turn the Tao off, forget to lock the door and our things in the wrong place, I even drove to town in my car and came home on a bus! I will be 60 very soon, I saw my GP with hubby who is also worried as he says he tells me things and I don't remember, G P says she wants to refer me to a memory clinic???? I asked if it could be the statins that I have been taking fir the last couple if years bur she says no. Am I going mad I am so scared. Does F M affect anyone else's memory like that and does it get worse ...?

Linda X

24 Replies

oldest β€’ newest
  • I have just had the same problem and l was told it's stress and the fibro fog hope things go well for you on your tests

  • The Dr has very definite mentality toward "Statins" this drug does however have a growing reputation for effecting the mind.

    There is much useful information in this interview not only on statins but on how studies are manipulated in favour of the drug on trial.

    I sometimes question my brain fog being dementia as it can be so bad at times.

    I went up to the city 25 miles away to get my eyes tested a few months ago,, I was early for the appointment so I got a few things I needed and had a coffee before it was time to get my eyes tested.

    It was only when I got back home I realised I forgot my appointment with the optician!

    I suppose that I can remember forgetting is a good sign.


  • Hello Linda.....I to was worried about my foggy brain (or is it soggy brain!!!) and my GP took a blood test and he assured me it wasn't dementia...maybe you can have the same. Try not to worry too much and let us know how you get on....Hugs x

  • Can they tell if you have dementia through a blood test, didn't know that πŸ˜ƒ

  • They look for protein in the blood.

  • That's strange because I have a high level of paraprotien, not sure if it's the same as protein, will look into it, thank you x

  • I liked the soggy brain comment! πŸ˜‚

  • Good morning, from what I've seen of folks who suffer with dementia they don't or can't recall even forgetting anything untill others spot it first.

    We all have blank times that's for sure. I actually celebrated my birthday a whole week early. I only found out when I went for an hospital appointment the following week. They told me they did not have my files out cos I was a week early. I remember saying that can't be I celebrated my b/day last week and I knew my appointment date was for 3 days later.

    Needless to say everyone burst out laughing and said they wish they could pull that one on their husbands lol So yes I had two birtdays that year like the Queen lol The weird part to me is even hubby never noticed the date a week early !!


  • Aww thanks, I really can't forget my birthday because it's Xmas day !! thanks to all for your replies, I feel it bit better now and will keep you all updated xxx

  • Great story! πŸ˜‚

  • Hi Linda777

    I have seen many posts like yours over the years.

    I think that it is one of those things that the more you worry about it, the worse it gets.

    If you are under a lot of stress at the moment that could be playing a part in it too.

    My pain is almost unbearable at the moment and I can barely get through one sentence without not being able to remember a name or word.

    When I lived near town I walked home. I hadn't even missed my car until my children came home and asked where it was!

    Hopefully being referred to a Memory Clinic will help to put your mind at rest.

    I do understand why you feel worried but this is coming from someone who tried to put their iron in the fridge. I only realised what I was doing when it wouldn't fit!

    Are you going for long periods without sleep? We obviously all have a sleep problem, but some worse than others. That could play a big part too if you are seriously lacking in sleep.

    Please will you come back and let us know how you get on at the Memory Clinic?

    Wishing you much peace in your life

    Lu xx

  • Will do and thanks for taking the time to reply xxx

  • Linda777 , I have times I forget things as well.My dad has dementia and there is no way he could get on a computer and chat like we are doing so I think it just stress.I wish you the very best.Peck🐀

  • This can be very frightening, after having tests it was put down to Fibro. Now I have post it notes dotted about and a diary entitled Mums brain it is the only way I cope, I hope it all goes well for you xx

  • Thank you everybody you all have made me feel so much better xxx

  • Hi Linda I thought I was starting with dementia before I was diagnosed. I was 45 at the time. I could not remember anything. I could'nt do simple tasks. When In company I could'nt think of anything to say. It was actually a relief when I was diagnosed. Magnesium oil spray and B12 vitamins have helped a lot. The fog is still around but not half has bad. They have also helped with the fatique. This illness.... you couldn't make it up could you???????

  • Thank you I will try those x

  • I have fibro and doc put my bad memory down to that. I'm worse if I'm stressed or under pressure. When I'm in pain my brain is useless 😩 I didn't have Protein in my blood but did fail the tests at docs. When I had brain scan it was ok no sign of dementia. πŸ™‚

  • Hi Linda777

    I am so genuinely sorry to read this and I agree completely with BlueMermaid3 and I want to sincerely wish you all the best of luck at the memory clinic. I went to one myself and was given the all clear about 2 years ago.

    All my hopes and dreams for you


  • Hi Linda my memory is appalling I buy stuff I already have bought I cannot recall what I've read even if just read it at times I was never like this till I got fibro it's another wonderful symptom I worked as a counsellor and could not continue as couldn't remember what clients had said that kills me as I loved doing therapy work anyway get checked out as we are all different and take care

    Lisa x

  • Hi Linda, I go through bouts of fibro fog forgetting appointments, putting things for the bin in the fridge and vice versa. Keys end up in the cutlery draw for some reason! So I bought a man bag so when out my medicine, money, paperwork is all in one place. I left it in ASDA and the back of a Taxi, both times returned completely intact. So that idea was ditched πŸ˜‚πŸ˜‚πŸ˜‚. I don't worry as my wife who doesn't have fibro and only four years older is just as bad! We muddle through and as long as safe I don't give it another thought! Bad pun intended I'm afraid!πŸ˜€

    Best wishes Patrick

  • A couple of years ago - before I hit 50 - I went through a similar thing. My GP referred me to memory clinic where I passed the tests but they also send you for brain scans. I found this alarming as I assumed they suspected something awful when in actual fact it's just a normal part of the process. Anyway everything turned out to be normal so they put it down to stress and offered me counselling. Two years later and now I have the fibro diagnoses I don't worry about it as much and therefore the 'dementia' symptoms are not as bad. Do go to the memory clinic if it is suggested as the more you worry the worse the symptoms will be - at least you will know one way or another. Good luck

  • Go and be tested (for piece of mind) if you find out your otherwise normal except for the Fibro fog, try to examine your diet. Add things like berries, greens and anything with high vitamin C. Try sipping some green tea daily for the antioxidants. Hope you find your answer soon πŸ™‚

  • Now that I'm thinking further about it, I think sometimes a Fibro flare can be more focused to your brain instead of the pain sometimes. Also, if your not sleeping well or even over sleeping can throw things off.

You may also like...