Do you have this horrible problem that whenever you get active in the house or garden, you have to wear a towel around your neck. I sweat buckets, when I am doing housework, especially when 1 have to use that little more effort that usual, it is like someone has turned on the tap, No Tap on the head jokes, had those already.
Is it something linked to Fibro myalgia, I have read so much now about this condition but no where mentioned is sweating. I would love to hear your comment, oh yes joke too if you have them.
Also not sure if this linked, but I have puffy swollen eyes in the morning, looks like I had a fight and lost,(did ask hubby if he did it! ) both eyes and facial skin is very sore to the touch. I did read somewhere that it has been known to happen but is rear. Anyone else out there with this problem and what have you done to help. Look forward to reading your comments.
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I also have the sweating problem.Aggravating as dont want to work too much as hair is a wreck then cant visit friends or go shopping after doing anything indoors! Try a silk pillowcase to ease face tenderness . i have just ordered a cooler pad to go between pillow and pillow case as sure its getting too hot and sweating at night causes the problem
Hope this doesnt disappoint you but I have had this sweating for years and am well past the menopause! ..
Hi Dee - oh my goodness, I so understand your plight, I too sweat from my head and neck even after a small amount of exertion, or even if I get myself in a bit of a tiz - I askedmy GP about it as it really is impacting on my life, having dripping hair and a face redder than a beetroot and a large wet patch on the back of a tee shirt is soooo not a becoming look - but he thought it was probably linked to the meds I am on.
I have found an underarm antiperspirant that really works for me - Sure Maximum Protection. You put it on in the evening and in my case I have not had any sweat marks under my arms since starting it - maybe I could shampoo my hair with it and apply it to the neck and face......hmmm methinks it may just have to find some other place to make it's presence felt ha ha.
Maybe talk to your gp about your meds and whether the sweating is a side effect, I know it doesn't alter the situation, but at least if you know why it is happening it is somewhat easier to handle - well at least thats my thought pattern, it probably counts for nothing.
it does count for a lot, just knowing it is not me, helps so much. It sounds like your humour keeps you going. It is not nice, I will take you advise and talk to the gp.
Thanks again a big help. Take care, fellow suffer,
Oh wow .... Never even thought of it being linked to fibro but yes any extra exertion and my face turns scarlet and my neck and back just drip sweat. Lovely dry armpits couldn't understand it.... So glad it's not just me
Oh god i have this too, and its only head and neck that sweats, i dont even have to be doing anything for it to start either i can be watching the tele and it starts, i did ask doctor last week and she said it was the fibro and just have to live with it, its just so strange i dont sweat anywhere else aarrrgggg xx
I was diagnosed with Fibro.. I can be sitting there doing nothing also and it just starts dropping off of my forehead and my hair gets soaked. So embarrassing if your out with friends or family
I also have the problem of sweating, sometimes it's so bad I look like I have wet myself. It's so embarrassing when I'm out , also my feet smell which never happend before I had Fibro . So like anyone else I have to live it a long with everything else Fibro brings x
Is sweating from fibromyalgia? Or just being outside working in the heat of the day? I dont sweat indoors, but also work outside in construction. Within an hour, I look like I fell into a swimming pool! I sweat so much, it it runs into my work boots, my boots get soaked as well.
I only seem to sweat from the head - just the perfect place for everyone to witness it! Its so embarrassing! It starts just after I've exerted myself, so if I walk somewhere, I seem to spring a leak as soon as I arrive. Also if I'm het up.
Someone here suggested trying Sage a few months ago. I bought two bottles from Holland & Barratt, but apparently it takes a month to six weeks to start working and I keep forgetting to take the pills! Will make an effort with them and then post the results.
It's vile, but kind of nice to know I'm not the only one.
And I thought it was just me! I had this problem really badly until I started on my meds (Prozac). I mean I was soaking all day from head to foot. I went to hospital for an heart scan and was told it was a vagal reaction due to sub concious panic.
I was told by my doctor a few months ago that I had fibro but I refused to accept it. I have been in severe pain all over my body. I now DO accept it and am learning to cope.
Hmm, did he use a seance to tell you that? Good doctors: but some are so arrogant and believe they know everything about every disease , condition, every person's individual's body's reaction to disease, specific reaction to meds. We are are individual as our DNA. An excellent PC is aware of this and works with each of his patients in patience until he finds the best possible answer for each one. Never let one bad doctor break your spirit: there are caring, wise doctors who will find the best possible answers for you.
I also have this problem and I hate it. Like you said the slightest exertion and you look like someones has turned a tap on. I wrote a blog similar to this the other week, explaining how I sweat from my head, neck and face. I have to keep my hair a certain length so that if i'm going out anywhere I can put my hair up to try and hid the fact it's dripping wet. I also use foundation primer on my face before I apply my make up which seems to help in keeping make up on and when I sweat I blot rather than wipe with a tissue. I always wear waterproof mascara to stop it running too. I've asked my doctor about the sweating and was told its the fibro so I guess it's something to live with. I've tried the sage tablets but I forgot to keep taking them. Maybe I should give it another try.
Buddy,I feel ur pain.I am a vigorous worker at my job,bad thing is,Im a pool of sweat withing 5 minutes..And sure makes a day long and hard soaking wet!If you figure out what it is,plz let me know??Ive got all kinds of things running through my head?!
Yes yes yes!!! Even walking from the kitchen to the living room. It's disgusting. I hate it. My hair sticking to my head. It feels dirty. I dread going out. Doc said it could be my age. Reading this maybe not.
Hi im new here. I have this too. sweating and my face turns scarlet. My face gets puffy and sore. I always think everything is connected to fibro now.
x
Yes Deelightful
I have had this terrible debitating sweating for about 15-20 yrs now. I did ask a question about the same thjng myself a while ago.
I read somewhere about Sage Leaf Tablets for it & is supposed to be very good.
I checked them out & they do not have an intetaction with meds. I bought them in Holland & Barrett, have been taking them now about 3 months & I really believe they are beginnkng to work for me.
However, out of the blue a girl I know who runs a beauticians was havin a private Doc in last night if she could get a group of a certain number to make it worth his while travelling to her place. She invited me as I had discussed my head, face & neck sweats. I cant even wear a coat in winter & I admire seeing people all hopped up in coats & scarves. I had dkne some research into it & it is called cranial sweating. I cant say if its Fibro linked but have been complaining to my GP for years about it & there is nothing they can do. Google Sweaty Betty & you will see a young girl who is a hairdresser & suffers badly from it. It is probably on YouTube aswell. Anyway last night I took the plunge & had the Botox in the hope that it will help. It was'nt sore at all. Doc explained to me about the sweat glands jn the head & injected. It can last 3-6months so I hope with the sage leaf & Botox I will get relief.
Some people may ask why do this in winter time? But! I suffer all year round no matter what the temperature is!
The Botox only cost me £80 because of the amount of clients my friend got to make the Docs trip worth while. He is a real Doc & also works privately. £80 is a lot of money for most os us but my brother helped me out. It would make a massive difference to me to beabke to do every day things without looking lime I had just washed my hair.
I let my hair grow, simply for the reason it takes no maintaing by styling it every day & I can now pin it up which I think also helps.
I find it sk strange that we can sweat so bad from our heads, face & neck & yet I petsonally have no problems sweating anywhere else like armpits, hands or feet.
Check out Sweaty Betty on Google or YouTube & give the sage leaf tabs a try but allow about 2/3 months to kick in.
Hello Jac, having Botox passed through my mind cos of my excessive facial, head and neck but never thought you could actually do it without 'freezing' your face so to speak!!
Was wondering if you could tell me a little more about this doctor or is it a sort of Botox party thing, held in various places around the country?
Hi Jac, I know this post has been a long time ago, but im struggling so bad with these sweats. I also have fibro so I'm also on a lot of tablets. Just am at the end off my tether, I just read your post about getting Botox for this complaint. I live in Newtowards so it would be so handy for me to get to Belfast . Do you have any more information about this doctor ? I would do anything as it's so debilitating. So if you dont mind getting back to me I will be very grateful and Please I have a question Are you still getting the Boxtox for head sweats and is it still working ? Xxx
Oh wow! Thanks all. Thought mine was related to the menopause and had this confirmed by the doctor. I went shopping with my mum on quite a mild day and when I got back had to change my clothes completely. I had thought it was just my back and head.
I have both menopause and fibro sweats cos i am greedy, meno 1 is different as it wells up and i get hotter and hotter, Hot flush is not the correct term as it seems to go on a and on, my hubby says " oh are you having a flushy " I haven't decked him YET lol x
I posted about this very thing a few days back. I have what I suppose amounts to a "hot flush" but have been post menapausal for about 7/8 years now. I feel the cold terribly but after a bit of exersion, or sometimes just out of the blue my face and neck flame up and I pour with sweet for a few moments. I did wonder if it was a side effect of certain meds.My itching is getting worse too. It seems to be on my trunk, my back where I can't reach. Obviously!. Especially where my bra touches and trouser waist band etc. Also now I am wearing splints on both wrists, it itches under there too. It is not unlike the itching I used to get sometimes when pregnant!!!. I wonder if these two symptoms are linked or just coincidental? Fibro side effect or medication side effect? So reasuring to know others also suffer, altho' not wishing it on you. XX
SueJayJay, Have you had your thyroid checked? I ask because you feel so cold and almost sounds like a cold sweat rather than a hot flash. Low thyroid causes a very low pulse rate which in turn makes the heart work harder to keep up with your activities. The thyroid gland is like the main switch to control all the major systems in your body. Plus the itching can come from the dry sensitive skin that is also a thyroid related side effect. I highly suggest getting a full thyroid panel blood work up and maybe ask you doc if you can take a daily antihistamine to help with your itching. Try buying only laundry soap for sensitive skin. And use Vani Cream on your arms and legs to keep them nice and healthy. It's the only over the counter cream my dermatologist will recommend and has for over 30 years!! She swears that I should never ever use anything on my skin the says "Lotion" it Must say "Cream" or don't buy it she says! LOL She is Brilliant!! Hope this helps!!! God Bless
Yup low thyroid was confirmed for me too. As well as lymphodema. I soak my arms and legs in baby oil morn ing and night now. The swelling in my legs is awful.
Thanks everyone for your help and comments, they are reassuring to me that I am not mad or exaggerating. If I find out why in more depth I will post it here. Thanks again and I am sorry that you all have to go through this, fibro has so many horrible elements, still keep positive and try to enjoy your life.
Oh my goodness, yep me too!! I can be just sitting on the sofa and it starts for no reason - my face, neck and head. Of course far worse upon the slightest exertion. I'm also 7 years into menopause and had had hot flushes but this is quite different and, as so many others have said, embarrassing, debilitating and has a real effect on the quality of my life.
I've never felt the cold really and have always been prone to getting hot and a bit sweaty upon exertion but nothing like this, except in recent years, since my oa has really kicked in resulting in 3 hip replacements, back pain, CFS and fibro et al. I think I only really sweat normally in other areas, under arms certainly aren't a problem, but then I've really exerted myself, albeit briefly, it's all over: arms, torso, legs and feet.
NEVER connected it to fibro!
I do take Gabapentin 100mg 2 or (when I remember) 3 times a day which seems to help with hypohydrosis (see packet info) a bit. I also drink between one to 2 litres of water a day (and little else) and it was suggested that maybe I sweat out the excess but I feel better when hydrated and my other bodily functions work better. Plus there seems, to me, far too much evidence in support of it's healthier to be hydrated than dried and shrivelled up like a prune!
Think I'll also try the sage supplement and obviously would love to hear about anything else that helps.
Hi Paris & Nicky
The Doctor is based in Northern Ireland. I'm sorry I dont even know his name alart from just Gerry.
I think he travelled up to Belfast to a girls shop I know. He explained to me about where your sweat glands start & end on your head. No the Botox has no effect on your
face at all. He did one set of injections along my hairline on my forehead & the rest in my
hair.
It may take a day or two to kick in I honestly dont know? I can tell you I was able to go out shoppin in the sunshine today with a cardigan on & stand over the cooker making dinner without sweat dripping of me & it felt great.
Hello Jac, thanks very much for replying. Not to worry about the doc's details, I expected that I'd have to look into locally - I'm in South West England - but would have been a point of information to start with.
Sounds as if it's helping then, how wonderful for you and definitely seems like worth a shot haha! So the botox has no effect on expressions, wrinkles etc JUST the sweat glands that make the face sweat? That's great news, hope the results continue to improve for you.
I live in Belfast , would you be able to give me the contact details for this doctor. These sweats are ruining my life!
Mmm and I just thought it was the menopause.. oh my what next... Love to all x
Oh me too. I carry round baby wipes. I got tested for menopause and I'm not there yet. That's what most people think it us. I've only got to run a Hoover or climb the stairs. I hate it. Doesn't matter if its hot or cold either. Cold sweat is just as bad. Destroys any attempt to look reasonable
I to get extremely sweaty when doing housework I thought it may be menopause as I'm 42 and have been sterilised and had a parshale hysterectomy I was told it may start early because of this, am laying in bed and my face keeps feeling like its on fire, gentle hugs to all. Sithy
I to get extremely sweaty when doing housework I thought it may be menopause as I'm 42 and have been sterilised and had a parshale hysterectomy I was told it may start early because of this, am laying in bed and my face keeps feeling like its on fire, gentle hugs to all. Sithy
Why oh why do Dr's say it is the menopause. Why can' they say "I Don't Know" and then do test.
I have only been on this forum for a short time and think, all our GP Surgeries should be given full facts of ME, CFC, FMS. Just be reading all our comments, surely they can see there are far more symptoms than what we see on fact sheets. The more we read up on this, I think it shows that we the patient's know far more than they do.
If 1 in 25 people have FMS to different degrees than, far more information should be there for everyone. If it is so common then why waist so much time in diagnosing it.
Hi all, yes me too. head neck chest sweat for no reason...I can be lying in bed & whoosh, my hair drips if I am doing any light housework my face looks as though it's been smacked all over & my friend said it looks as though I'm about to have a heart attack !!! I hate it so much,after my shower It's awful I love to wear make up but I just can't keep my face dry enough to get it on!! I had never suffered with sweating before FM!!
OMG!! You just described me to a T. I'm getting to where I don't want to go anywhere because people look at me like they need to call me an ambulance!!! LOL Hate it so much!!! Mine are not hot flashes, instead they are cold flushes and clammy skin and hands, with beet red face and swollen eyes and dripping sweat from head to toe daily. Like it's raining on me! I just want to be normal again!! When I was young....I NEVER sweat! Even when running or working out!! Guess I'm making up for it now!!! Can't we just have a treatment already!!!????
I do this just shopping. I went shopping the other day with no stress or rush and then it started. Hair sopping wet, back of my shirt circled wet, and face red as a beet, no under arm sweating. Always starts on my scalp and then my heart starts racing. I think the heart is just anxious. It is embarrassing when everyone else is perfectly comfortable. It is the joke of the family that I am so hot natured. I have clothes hanging in my clothes I can't wear because I would have a heat stroke. This really is affecting my life. I dread going anywhere because of this problem. I have to take my shower and wash my hair at least four hours before we go somewhere so I can cool down. My shopping trip was ruined with my daughter and granddaughter because I had to go to the car with the air conditioner on full blast. Unless you have this problem you can't possibly understand. I have told numerous doctors about this and they all have witnessed it and state it is not normal. I am being treated for hypothyroidism, hypertension, low Vitamin D, and Potassium. All of the above conditions are under control and are watched closely by internist especially the thyroid condition. I was diagnosed with fibromyalgia many years ago and just deal with it. No one had ever mentioned the link between the sweating and fibro. Oh by the way I am 67 years old so menopause is long gone. I hope following this link I will find some answers. I think I will try the sage.
Hi i seem to sweat so much now since i have had fibro. my eyes too seem to hurt all the time they r very puffy.i want to wear makeup but i cant as i will sweat. i thought i was goin through the change. but no i think its fibro. x
Yes I am going through menopause. I have been on various types of HRT. Then one day I had an appointment at the HRT Clinic & along came one of my sweat attacks. The Consultant I was seeing told me the sweating was not caused by menopause & told me to stop taking them because of my high blood pressure so I was sent home feeling heartbroken that the HRT was'nt gonna help me sweating.
A few months later I read about the sage leaf tablets. I found out thag they dont interfere. wiitmy medications. I was lucky in being asked to a place for the Botox & a couple of days later I can say I think they are helping. Will keep you all updated.
Thank you all for your responses. It could well be Fibro linked.
Yes as a sufferer of Fm for over 20 years I can safely say that this has been a constant problem for me. The amount of times I have had visitors and they say 'oh sorry, did I get you out fo the shower', I have lost count. But in the last 2 months it has become unbearable, all previous bloods showed normal hormone levels. But this time they were through the roof, so not only did FM drop in and decide to stay, but now it has a friend to spur on its performance. It is well known that the change exacerbates FM, whoopydoo, bring it on. I often walk around with kitchen roll stuck to my head, across my nose and under my chin. It amuses my family no end So now I am on clonadine to try and control the sweats for the m.pause side of things. But I find them little use. I remember once trying to vacuum the stairs, I got three done and became concerned that if I sweated much more I would actually be able to go the whole hog and shampoo the carpet whilst there. Either that or blow the hoover up and put an end to either it or me. I wore out the excuse of 'oh I just swilled my face with cold water', or 'blinking heck I forgot to turn the heating off', and the best one yet,'I turned the cold water on too fast and it flew all over me'. I hope you get it sorted out xxxxx
Yes. Me too. It's a horrible problem to have, clothes and bedding end up soaking wet and I'm always blotting with kitchen paper!!!!! Menopause cannot be an excuse for my sweating as I've been forced through that with cancer treatment 11 years ago so that's all done & dusted for me!!! I've mentioned this problem to my doctor who says that she feels it IS related to fibro... I get that awful feeling of weakness with where you just wanna lay down and stop doing whatever it is you're trying to, if I do that then eventually the sweating passes otherwise I just keep sweating... SO attractive!! I don't seem to experience the puffy eyes particularly but the sore skin, yes definitely!
You've opened a really interesting topic here - I'm sure reading everyone's experiences must help (at least you know you're not alone in this!!)
Three Cheers for Plenty, thats what I say - stuck to varicous body parts to absorb - hey it does at least tstand up the ad claims.........i sheet........ wring it out dry off and re-use - otherwise I would spend a fortune on the dratted stuff. hey ho muchly dottii xx
I know this is a year old but I am so happy to hear that other people have this same issue. It has destroyed my quality of life. I suffer from serious back issues as well so it's difficult to do anything for more than 5 minutes at a time and I still sweat like this. I have a fan on me at all times in the house. I all ready have to sleep in a recliner in a different room and have a fan on me when I am awake and asleep. I only sweat from my face and head. I have had people pull over while I am walking in chilly temps to see if I want them to call for help. I look horrible sweating like that with a bright red face.If I try to go food shopping it takes about 3 isles before my shirt is soaked and then I get these strange looks from everyone. I have 3 grand children that are always saying are you okay your face is all red. They ask me to shut of the fan because it's freezing and I can't do it. I carry a cold towel with me at all times. I also carry a special absorbent towel and pat myself dry as much as I can. I am just so sick of being told that its probably menopause. No it is not because this is not a hot flash it's pure sweating from my head and face and neck I could deal with a hot flash no problem. I can't even hug or kiss people because I am always sweaty. There is nothing at all that I can use for this. I also sweat for about an hour after showering. No matter how cold or actually hot the water is. I was told the hotter the shower the better for the sweating, nothing helps. My doctors tell me they have no idea besides menopause and 1 actually said that their is nothing else that causes sweating like I am describing besides menopause. I never thought it could be the fibro but now I will print this out and see what she thinks. Thanks for letting me know I am not alone
Glad to see i'm not the only one. I just sweat like crazy from my head while doing practicly nothing, I am hardly ever cold and always hot. I'm only 13 and this is totaly bringing me down. I used to have many sport activites (squash, bagmintin, hockey and a few others) but soon stopped them because of this, I even stoped my choir as the sheet of paper with words was drenched and i needed to hand it back. I have been to my GP and told to have a blood test, which i was totaly scared about and never showed up to.
I don't have fibro, but I also have this horrible problem. It starts with the least bit of exertion, and it is so embarassing because it starts on my head and soon my forehead and face are beading up with sweat which soon turns into my hair is sweaty and the back of my neck until my head is wet. I recently cut my long, silky hair off into a bob because it was so thick and heavy and I just couldn't take it anymore. Somewhere on this post I read that it is called cranial sweating, so I Googled that term and found a You Tube video of the TV show "The Doctors" where a women is having botox for her condition: youtube.com/watch?v=mgmpfpc... It sounds like something I may look into. I am happy to hear I am not alone, (not that I would wish this on anyone) it just helps to know that others understand and I know I'm not crazy! BTW, I was told it was hot flashes and another time it was meds.......they were just guesses, I'm guessing.
I came across this forum by accident,though I'm a member of the thyroid group with Health unlocked, because I'm trying to explain this horrible sweaty symptom. Given my medical history and ridiculous number of other conditions, I wouldn't be surprised if I have fibro too...I know I have an under-functioning pituitary and thyroid and I'd love to know what the sweatiness' cause is and more importantly, if there's a cure. At the moment it means I'm virtually useless for doing anything that requires even a small physical effort. It's embarrassing, really unpleasant and destructive to my belief in myself. I so want to be able to go back to "doing my bit" at home. The mind's fine but the body is so frustrating!
Not meaning to seem weird,but it's hugely reassuring that other people share this problem. Long may mutual support last!
I have had the head sweating problem for years and am over the menopause years. My doctor said you can have menopause sweats forever. I don't believe this. Maybe it's my medication, maybe it's this maybe it's that. They never want to admit they don't know. I don't think I have fibro but someone has suggested it might have something to do with my thyroid problem and I do take thyroid medication. I have an appointment with a thyroid specialist soon and hoping he can help with this problem. I have sympathy for you all as it is an unpleasant, embarrassing thing to go through. I live in a very large senior complex and no one else seems to have this problem
My thyroid specialist witnessed my sweating and said yes wasn't normal but didn't know what was causing the problem. Thyroid functions were within normal limits at the time.
I have the same problem and summer only makes it worse. If I go shopping I walk round with sweat dripping from my head and a red face and people give you odd looks. I also find when I am getting ready to go out for the night I start to sweat and as fast as I dry my hair the sweat makes it wet again. Any activity makes me sweat buckets. My Dr says its just the menopause but I have been going through that for the last 8 yrs and it never gets any better. Its very embarrassing and I get so frustrated. Oh and yes it also gets worse if I am anxious. Don't know about this Fibro thing but I do get a lot of aches and pains so will look that up. Thanks to you all for making me realise I am not alone.
I could cry right now! I cannot begin to tell you all how much I appreciate happening upon this site and learning that there are other people who share my symptoms. I have been told I have some symptoms of MS or maybe even lupus, but never Fibromyalgia. I do have Hashimoto's disease and take meds. Whenever I bring up the facial sweating to my docs, they either say it's the meds, menopause (which it is not, says my Gyno), or stress. I disagree with stress as the cause, folding laundry does not stress me out. Running a vacuum does not stress me out! The smallest exertion does not stress me out! Strolling alone a quaint street going from shop to shop does not stress me out! But, all of these things now cause such an onset of facial sweating, that I avoid them. Trying clothes on in a department store is a nightmare. My head is drenched from taking the clothes on and off and I appear to have just stepped out of a shower. Speaking of showers, when I get out, I immediately begin to sweat. I have to cool my body off by lying near a fan. Blow drying my hair is a distant memory, as is nice smooth hair. My family downplays the sweating which is infuriating at times or they refuse to accommodate my need for an open window or maximum AC in the summer while driving because they are "freezing." Personally, I think it's easier for them to put a jacket on and get warm than it is for me to cool off. I don't have any options to stop the overheating, but they can most definitely warm up quite easily. (But I give it my best shot by carrying ice packs, a portable fan, and at least face clothes wherever I go. You can imagine the size of my purse! Even at a wedding or formal event, fashionable clutches are out of the question. ) I've also been told by a family member that I shouldn't care about the sweating because I'm middle aged. (I guess woman over 55 don't need to care about their appearance.) Others close to me whisper about my anxiety and tell me I should just calm down to ease the sweating. Gosh, I wish I thought of that! (By the way, whispering about my condition and not believing me actually does stress me out!!!!!) Consequently, I have altered my life drastically. I isolate myself, refuse invitations, shop from home ( I miss browsing), and I'm gaining weight from lack of activity. I have extreme guilt because sweating would be the least of some people's worries. I've even been told this by physicians and I get it. I really do. I know people suffering from cancer or many other life threatening conditions would be thrilled to be in my shoes and have my worries. On the other hand, there are many people who are out there living life to the fullest which I am not doing. We all have are issues, it's just nice to know I'm not alone. Thanks for the opportunity to vent.
I have read your post with so much pain and sorrow for what you have been forced to endure as a result of your Hyperhidrosis. Please do not feel guilty that others are more ill than you, as this is very real for you, and it is a problem that will not go away and is ruining your enjoyment and your life.
You have probably seen this before? But I have pasted you a link below to the NHS Choices site on Hyperhidrosis treatments, I do not know if it will help you at all, but I genuinely wanted to reach out to you and show you that somebody cares about your problem, and you feelings.
I never got to tell you how much your response means to me. You made me feel ok about the way I feel. Ken, how does one put a value on validation? They don't because it's priceless. Written through grateful tears,
Oh I love you! You just made me feel so much better. Nice to know I am not crazy or alone in the world with this problem. I am thankful I don't have cancer but when you do this all the time it does cross your mine like maybe you have lymphoma or something. It has been going on so long now I would be dead by now! Like you said it is so nice to know you are not alone. Thanks for the opportunity to vent!
Hi i am a fibro and CFS sufferer and have since found i am lacking in vitamin D...this has been linked to a sweaty head! My head is pouring with sweat after the simplest thing, making the bed, getting ready, putting on make up etc I dry my hair and 5 mins later it is dripping wet. Even to the point i have had to have my hair cut short. Pointless wearing make up as it runs continuously. Might be worth asking for a blood test .
I also have this problem. I don't sweat any where except my head and neck and then it's gushers. I have to dry my hair with a blow dryer several times a day after the smallest amount of work or exercise. It's so embarrassing. My dr. said that he had this complaint with several fibromyalgia patients of all ages. at first I thought it was menopause but I don't have hot flashes or night sweats, just my head gushing during the day. I'm so glad to know I'm not the only one, but would love some kind of cure for it!
I had problems with extreme sweating of face and nothing helped me fo years!!! But before maybe a year I bought Electro Antiperspirant, it is electronic device and it resolved this matter absolutely!!! Just check it here, it is really working!!!! electroantiperspirant.com/h...
Hi all, I have craniel head sweats really bad on any exertion and just sitting down at times. I don't suffer any autoimmune disease but, have taken my blood pressure every time it happens and it is very high. I am off to see the doctor next week for a few more tests and will let you know if anything comes about. Its horrible living like this and although I have faced many illnesses and am on a lot of meds, I really believe the sweating is a symptom of an underlying condition. I stopped all medication for a while and it was a question of trial and eliminate. It was mentioned that two of my meds could cause sweating but I was the same without them. It also suggests sweating could be a symptom of kidney problems and my last blood test showed a slight problem which the doctors decided to leave until another blood test was done a few months later.
I am a bad sweater myself.Im a super active person,so makes life even worse.Ive got a fast paced job..I live like i just took a shower in my cloths all day long.Im miserable!!!And the cramps from losing so much bodily fluids is unbearable..Hard to drive home after work due to my fingers doing their own painful thing.And the rest of my body cramping all eve long...My life really is a living hell!!
I have the same issues in the Dallas/Ft.Worth (DFW) area of Texas USA. Mine was because of a binyn pituitary tumor that caused excessively low levels of testosterone, growth hormone, etc. Believe it or not a strong fan (the more powerful the better) can release the symptoms faster than an air conditioner. Even with extra injections of hormones I still suffer the severe hot flashes and Hyperhidrosis of the neck and head. The best prevention is to know what activities at what level cause it and to stop short when active. Also an extreme cold compress the kind you put in your freezer works wonders for prevention and stopping an attack. Don't bother rapping it with a cloth, it works best to carry a cooler full of them whenever you travel. Alcohol, spicy foods and caffeine make it worse.
Have your doctor MRI your head for the pituitary tumor, very few are cancerous, but if it continues to grow it can be fatal. After 15 years my tumor disappeared, but the symptoms remain.
Good Fortune & may the Almighty be with you. The doctors said the sudden disappearance of my tumor was nothing short of miraculous!
My Fiance has been suffering from this for years but has become so debilitating he can be watching a movie with me and burst out in pure sweat and redness in his head neck and face. After stressing that this is not normal to his Doctor she ran some more tests. He was found to have a postitive ANA test and Positive RF latex turbid test which is going to be tested further for other antibodies but points to Rheumatoid Arthritis at this point. It is a symptom of RA as well so perhaps getting some tests in this area will help you great folks as well. Will update when we know more. Just wanted to share what we have so far. He is also B12 D from diabetic medicines as well. Hoping for some help and Rheumy appt. is not until mid October. Take care and stay dry friends.
Sorry for your troubles as far as your Fiance, I have type 2 and used to break out in a cold or hot sweat w red face sitting next to my wife or anyone else all the time, It was horrible. Anyway I read Wheat Belly and it changed my life. My A1c went from 11 to 6 in 4 months. My Triglycerides went from 950 to just over 200 and now 6 months later under 150. My Doc took me off all Diabetic meds and I lost 40lbs. Im still hevy went from 260 to 220 but I'm healthy. the best part is I no longer sweat I would say I'm 95% better. I can wear heavy cloths no problems, go out no worries. It's great so now I'm freezing all the time and I live in California. Plus alot of pain and tendinitis some arthritis are gone, and I'm 40 so Trust me a Gluten/wheat free, low carb low suger some exercise will hopfully help your man feeling good and not sweating it out.
I also suffer from severe sweating head,and get pain in my face,my cheeks,jaw,lips hurt the most,but I dare say it's something we have to live with just like all the other symptoms of fibro.
Hello. I know this thread is older, but I have the same problems. I have fibromyalgia, but I also have hypothyroidism. Took years for my tsh# to actually be considered abnormal. It sounds like you have Hashimoto's thyroiditis. Ask for a full thyroid panel if you haven't already have one. Fibro is actually a symptom of hypothyroidism.
I am well past menopause (as below) but a fibro sufferer and have diabetes. Head and hair sweating is unbearable and unsightly. It has been going on for years - same as other two conditions. Don't get it anywhere else. Back problem too so Panadeine Forte medication is a possibility.
Interested in the wheat solution. Only today I have been thinking of getting a new test. Diabetes means that I am eating more wheat and oats and I know I have a high intolerance. Once went wheat free before all this stated and I had immunisation shots about 30 years ago. Lasted 9 years. Doctor wont give them anymore. They are taken over 6 months and grass allergy and dust is just as bad according to tests and he gave me dust allergy injections. Worn off now but dust was never as problematic as grass. Wheat showed itself up in being highly nervous and I had trembling hands.(a lot over a lifetime) . Not in any medical books. Felt great being wheat free.
By the way I have long hair for reasons of sweating and I wear it up. Want to get it cut but I guess that is not an option for straight hair is it?
I have just posted about this, I have Hashimotos, but I just cannot get any doctor who just doesn't fob me off. I am fearful going to work everyday, as it is so dreadful
yes!!! I am a 67 year old great grandma. I am way past menopause but oh my goodness, going shopping in say Walmart, in about 10 mins in, I am dripping wet all over my head and face. No one else is hot. I am not over 'worked' also the past week the top left quadrant of my face, the skin hurts to touch. No redness or swelling just sore. Am I a freak! It is miserable,!!!
hi i find i get hot head and when i do anything and i have facial pain and flash headache on my brow just momentarly i cant spell or type iether lol my briain fells jumbled and my movement is affected . i think fibro is the most weird thing affecting all sorts but if its affecting the brain it will affect allsorts
I have just had enough of my hair being soaking with sweats. I have had them for over 15 years since I had early menopause at 42. I thought it was my hashimotos thyroid condition, but I would really love to try the botox. as I am at the end of my tether with this I live in Belfast as well. I know the post is over 4 years old, but fingers crossed someone will pick it up and give me the name of the doctor. thank you
After all this, I finally found out what it was, indomethacin my anti-inflammatory pills. I came off all my pills for a few days and one by one I went back on them and there it was, sweats, horrible full blown leaking. It was not very nice, not having my meds but just for a few days it was worth it. I do get them but nothing like it was. Its amazing what drugs can do to you, we are all different and they affect us all differently.
Thank you for all your suggestions, sending gentle hugs to all who are reading this.
i dont have the sweating as such but my hair is limp the day after shampooing,i do have severe facial swelling and bone pain.change in shape.i am certain it is more than fibro.because after initial diagnosis things were fairly stable with just muscle pain,then four years a whole load of new symptoms struck suddenly making me think it was more than fibro.and worsen as each day passes.
hope you get some answers,
Hi delightful, Funnily I have found the same, and I hadn't heard of it anywhere and assumed it was me, my meds or in my own case because of my age wondered if it was the dreaded [CHANGE]. I'm still unsure to tell you the truth,and it's so embarrassing to go places too, do you find that? Not that I go to many places nowadays maybe it may relate I also have cervical spondylitis and my neck head shoulders chest all my back and extremities have painful issues not just fibro, the soreness I have had to have all natural products to help ease some of the sensitivity and soreness, my head I have to use Tgel shampoo because my head burns and itches otherwise, my face I use the simple cleanser toner and moisturiser and for extra dryness I use E45, body wash I use simple shower gel or aqueous cream, I hope at least some of this is of help to you take care and good luck with your journey
There were so many of you with the same symptoms that instead of individually replying (and appearing like a troll lol) I decided to put a post here under the OP.
You may have CUSHINGS Syndrome or Disease. It is very often misdiagnosed as Hashimotos Thyroiditis, Hypothyroidism (helloooooo we are HOT and sweaty!!!) PCOS, Fibromyalgia, diabeties or Metabolic syndrome.
Symptoms include (but most only have a few of the symptoms not all):
Weight gain (unexplained and or rapid - highly resistant to diet and exercise) especially in the stomach, butt, back of neck and face. Which gives the classic Moon Face look and a "buffalo Hump" on the back of the neck.
Diabetes - you can actually develop diabetes because of this and it could cure itself after treatment for CUSHINGS
Pink or Red Stretch Marks (they suspect I have CUSHINGS but I Do not have these) on the stomach, butt, chest, arms and or legs
Acne - the worst you've had in your whole life
Sweating upon any exertion - even bending down, in the face, neck, chest, back, stomach aka trunkcal sweating
Red face that's sweaty but cool to the touch
Feeling extremes in hot and cold
Insomnia
Vivid dreams or nightmares
Increase thirst and urination (from sweating and drinking)
Frequent UTI or Bladder infections
Heart palpitations
Trouble breathing when walking up stairs (air hunger)
Brittle nails
Anxiety and or panic attacks
Depression
Bruising easily
Minor wounds (acne or bug bites) take longer to heal
"I catch anything and everything" syndrome where you literally want to hurt someone for coughing in your precense lol
Fatigue
Pain (similar to Fibro pain)
Moon face (my face USED to be oval it is now round. Compare old pictures of yourself to now)
I KNOW I'm forgetting some symptoms
Again most people do not even get HALF these symptoms but the top complaints that send them to their doctor are
Weight gain
Fatigue
Sweating and thermostat making them uncomfortable ALL THE TIME
Because of this (and doctors are told to look for horses aka common disease instead of zebras aka rare disease) it can often go misdiagnosed for a patients ENTIRE LIFE and can shorten lifespan.
You could have the Disease (a pituitary tumor) the syndrome (an adrenal tumor) it could be steroid induced, it could be cyclical meaning it comes and goes (that one is REALLY HARD to diagnose) or you could have ectopic (what they think I have) which is the rarest of the bunch. Basically a tumor almost anywhere else starts producing cortisol or ATHC which tells the pituitary to tell the adrenals to make extra cortisol.
Now, I'm not saying you ALL have this. But I suspect more than a handful of you MIGHT.
If any of this sounds like you please google CUSHINGS Syndrome and Disease.
Read the symptoms, read the stories from patients. If you too get the AHA! Moment I got, talk with your doctor. Being in the list of symptoms and photos of you before you felt sick. Because here's the kicker - a LOT of doctors will have to google it too. It's a paragraph in their huge medical books a side note, they've HEARD of CUSHINGS but aren't sure what it is which is why it gets misdiagnosed. Be proactive and firm. You KNOW your body, you KNOW something is wrong. If you must get a second opinion and ask for a referral to endocrinologist because no matter what is causing you to feel this way, an ENDO is the doc you should be seeing aka the hormone, endocrine glands doctor.
Good luck everyone! If I was able to help just one person here, this long post was worth it!
Yeah someone else has the same symtoms as me,like you I only felt I was the only one,I can fully understand what your saying sweating I've never had anything like this it drips of my hair it gets so bad. Do you get extremely thirsty ? I do all the time.
I have tried all sorts all the windows open even when it's chucking it down with rain no help.doing things in my underwear,no help.
My solution is only to do a small thing at a time and rest in between tasks,eg:- strip of bedding rest, put bedding into washer rest and so on and drink loads.
Hi know exactly what you mean I get it all the time so badly I look like I've just came out the shower every strand dripping it's so horrible and very embarrassing as you say just doing the house work I also put a soaked wet dish towel round my neck I look a right site 😅 I saw a endocrinologist who offered me some lotion that you could rub into your scalp but I didn't use it as side effects sounded awfull plus your hair would be a mess with it I can't remember what it was called you had to get it from the hospital pharmacy fortunately I can say oh it's the menopause because iam at that age but it's not that as iam on her and don't get any symptoms hope this helps maria
I have read this thread with much interest. I have suffered with excessive cranial sweating for years but had not realised how common it is. Now I am retired I dont feel it impacts my life so much before it was just so embarrassing. However lately I keep getting spells when I feel like I am going to faint and have to sit down with my head down. Once this passes I get the head sweating and a bright red face - cold compresses or flannels necessary to cool down and then I feel really shivery. I have had a couple of episodes which were diagnosed as fibromyalgia in the past but not as an ongoing issue. I have peripheral neuropathy which is quite disabling, with severe asthma, and also pseudogout - none of these seem to have any bearing on the sweating and red face. I am going to the GP in a couple of weeks and will ask her. Please can anyone say if the Sage tablets are any good?
I've suffered with FM for years. Now all of a sudden I'm dripping with sweat! Just sitting in a COOL place! I dont understand it! It makes me feel weak and tired. It's draining! I'm super frustrated! I'm sorry there are others going through this too! But a little grateful it's not just me. My husband gets upset with me because I keep cranking up the AC. But I'm miserable!
Hi everyone. I just 'happened' upon this page. I do not know if I have fibro. I do know that I get migraines and believe it is from the jaw replacement I had. they removed two ribs and implanted them into my jaw. My health insurance wont cover the Botox unless a neurologist says I need it.. so every three months I go and get Botox on the left side of my face., (the really bad side where the migraines start). No, it doesn't make me "frozen". lol......anyway. my main problem is also excessive sweating about the head and neck. I get so annoyed I want to strike out. aggravated is more like it. granted, where I work, it is warm all of the time and other employees complain. But there are always the few who, if you blew in their face, they'd be FROZEN,, ack, or if the temperature was like 50 degrees,, they have four sweaters on....give me a break.!!!!!!!! I so want to punch those people.. (not really, lol). I am post menopausal. I've had depression most of my adult life, but now, I don't seem to have it. There ARE some things that are nice when your 62 if your healthy., I believe its called peace of mind. I've had my thyroid checked and its a normal level. How the heck can I work, with sweat dripping... literally dripping off of my face. It does not make for a happy person. So when I go to my doctor. he is now saying.. (all of the time)... its your age... one day I got so mad at him I said...If you are going to give up and just say its age, you will miss something important in a person. YES, I'm aware that being 62 brings on certain physical complaints. but its not everything. Even when I went through menopause, (except I took prempro), I hardly had any hot flashes. Please don't judge me for taking hormones. I just couldn't take it after one year.. I told my doctor. I'd rather have 5 good comfortable years. than 10 horrible suffering years. So, that's my story, Oh, a little bit about me. I'm 62 years old, I am a night nurse,, somehow have a bulging disc in my back but I get shots for that every three months... No kids, no husband, (been there done that), and live with my 92 year old father who has more energy than three of us put together. lol. I love animals more than people. and after working with cranky family's, for almost 40 years, I hate it. I never hate caring for my patients though. the family's are different these days. years ago they were kind and respectful. NOW, they are rude, yell at the staff, and put the blame of their guilt about mom or dad onto the nurses.. I don't put up with that. As a matter of fact, I find most people these days to be rude and disrespectful.... when I'm home, I'm the happiest, but I will get up to go into the kitchen and the sweat comes on.. I look in the mirror, and my face is beet red. Anyway, enough belly aching.. I also have two cockatiels, and a house rabbit who thinks he is a cat. He follows me around the house, uses the litterbox, and jumps up on the bed to lay against me to get pet. I love him dearly. If I told you I don't talk much and I'm a very quiet person.. judging from this post.. it looks like I'm a yakker, but I'm not. Its just that I don't talk about myself to anyone, other people do a good job talking about themselves without letting me get one word in. I prefer being alone, ahhh silence!!!!!!!!!
I have this and was diagnosed with lymphodema. Put on hormones. Legs started to go tight and swell like tree trunks. Mobility down 25% you really must go get blood test done.
I have had this problem for about 20 years. I got the official fibromyalgia diagnosis 4 years ago. Mind you, I do not sweat normally. Only after I shower for about an hour or so, until I bless the air conditioning directly on myself. And it was only my head, face and neck that sweat. and yes, I do wake up with puffy face and almost black eyes My symptoms are worse in the morning, often such that I wake up feeling like I haven't slept. Also, after the shower, not only do I sweat, but my symptoms are increased. That is also the case when I go out into the heat and the humidity. You must keep in mind that these are also symptoms of multiple sclerosis so you might want to be checked for that as well. Well they have come along way identifying things about fibromyalgia, even my rheumatologist agrees that Phibro is still probably a group of diseases that have not been completely isolated down to a specific genetic mutation or specific antibodies in the blood. Think back to when they couldn't differentiate lupus from rheumatoid arthritis. Anyway, it sounds like you should probably see you neurologist and have some more tests which I plan to do.
I also can get really bad sweats - sometimes it just happens randomly like im paying in the supermarket and then im just dripping with sweat or doing something simple like getting a shower. It can be really embarrassing .
Yes, I have fibromyalgia as well...it sucks. I had feelings in my hips, knees and back like pins and needles...couldn't be comfortable sitting, standing, or laying down for any length of time. Also, I was about to scratch off my face, eyebrows and nose. Then I went to a neurologist who put me on Lyrica. It stopped after first pill and I've been taking it ever since.
Latest thing is this sweating...I'm past menopause, 64 yrs old, but lately started sweating from head to toe with the slightest exertion. Anyone have an answer for this yet? I'd really appreciate it....tired of having my own private rainforest...lol
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Can't we just have a treatment already!!!????
I've mentioned this problem to my doctor who says that she feels it IS related to fibro... I get that awful feeling of weakness with where you just wanna lay down and stop doing whatever it is you're trying to, if I do that then eventually the sweating passes otherwise I just keep sweating... SO attractive!! I don't seem to experience the puffy eyes particularly but the sore skin, yes definitely! 
Does anyone else suffer from horrific pain in the base of their shoulder blade?
PROFUSE FACE AND HEAD SWEATING
Does anyone else suffer from very shaky hands?
does any one suffer from face twitting
