TMJ. Does anyone else suffer? - Fibromyalgia Acti...

Fibromyalgia Action UK

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TMJ. Does anyone else suffer?



I have suffered from this for years, but as I get older it seems to be worse.

It affects my sleep and I seem to be clenching my jaw on and off all day, it feels like a natural state to me. But it gives me face painting, watery eyes, rhinitis, head, neck, shoulder and back pain. Every day is a misery with it.

Foes anyone have any coping strategies?

I am going to the The London Sleep Centre in May via my dentist, it will cost me money, but I figure I wouldn't hesitate to pay for my car!

Hoping for a miracle! :-)

Best Wishes

10 Replies

Hi Funkyfaerie I'm sorry you suffer with TMJ I get it intermittently so i know how painful & frustrating it can be. I think the medication I take all helps, especially the amitriptyline, because they relax the muscles.

I also find that breathing excersizes help because sometimes my jaw actually goes into a spasm & it's really disturbing lol. Luckily i had to have a lot of teeth taken out but now I'm having problems with biting into my gums with teeth I've got left, which make my gums really sore sometimes. The dentist told me to keep my teeth in at night but I've tried & can't sleep with them in lol so i also quite often lay my face on hot water bottle, with a cover on of course, this helps sometimes too.

Pls do keep us informed about the sleep centre, I'm interested in that.

Peace, luv n light

Jan xx

Funkyfaerie in reply to Janet28

My appointment is 8th of May. I will let you know

Tried amytripryline, but made me feel dizzy and weird.

All I try and do now is sleep with my mouth open...very attractive! :-)

Best Wishes x

Hi there

If you make an appointment to see your dentist and ask them to make a mouth guard for you, this will help when you clench your teeth at night.

I have found that my mouth guard helps me enormously.

Lu xx

Unfortunately Lu, I have chewed the life out of mine :-)

I think I started clenching my jaw literally years ago, with stress....parents not the greatest and that seems to be how I cope with stress now.

Thank you anyway and will post about the sleep centre when I go in May.

Best Wishes Jen x

Hi Funkyfaerie

Sorry you are experiencing this, it's very uncomfortable. Yes I have this, mentioned it to doctor as I felt it was affecting my ear, neck, cheek, temples, head, jaw anad gums. He advised fibro cause (as usual). So, I went to the dentist, after reading a very useful post on here (thank you all :)). He advised my Jaw clicks and makes funny noises and is out of line which can cause the teeth grinding (but I never noticed the jaw out of line, or the teeth grinding problem, before this year). he did'nt call it TMJ, but was really helpful, advising I eat soft food and a mouth guard for when I'm sleeping. I have had the mouthguard for around a week now and it is really helping (although quite expensive and not available on NHS I believe).

Very well wishes


Hi Carol

My mouth guard was made on the NHS.

Lu xx

Funkyfaerie in reply to carol789

Hi Carol,

That's why I am going to the sleep centre as the dentist says my jaw is misaligned. I think as I have got older it's got worse or should I say the effects of it have.

I will post how I get on at The London Sleep Centre, hoping for a miracle! :-)

Best Wishes x

carol789 in reply to Funkyfaerie

Best of luck with the Sleep Centre, please keep us posted as I would love to know if it works. :)

Hi Funkyfaerie I too have suffered with this on and off and it does seem to feature quite highly in people with fibro. The first time I had it I thought I had disclocated my jaw.

I saw the MaxilloFacial Consultant who advised that I could have Botox injections which would reduce the spasms.

So far I have resisted as I am a bit squeamish and my pain threshold is not good.

However, it may be worth asking your GP for a referral to a MaxilloFacial Consultant and try this treatment out, it would be cheaper too!


Hi Funkyfaerie

I am so genuinely sorry to read that you have been suffering in this way, and I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you


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