I went to see the rhmeumtologist (think that is right) last September and was told I had hypomoblity and fibromyalgia but luckily my hospital has a fibromyalgia clinic where I would be seen. So I went for my first appointment today and got to see that no one not even doctors/specialist understand this. I had to see 3 different people physio who was lovely and understood how I was feeling she asked what exercise I do and I was honest and said none as it hurts so she is going to get me in to see her to see if physio can help. I then went in to see the therapist who was asking if I had been depressed in the past which I was when I had my little girl I had PND but with in a month or two she was a better baby and I was fine. She asked all random questions and then asked me what I wanted to do about it as looking at me I don't need a pain management course I just need someone to talk too. I can tell you I'm not depressed and have a very good support network. She said maybe CBT will work but I will have to go to the doctors for a referral. Last was the specialist who after being told that I have hypomoblity at my last appointment and when I was a teenager she says it's normal! She then went on to say that I would be fine and it will go away one day (after being told that it wouldn't).
She said I should not have to much stress but I am really stressed now as it just goes to show no one does understand this. I think all doctors should be able to walk a day in our shoes to see what we put up with.
I feel like no one understands and think I'm making it up!
Sorry for the rant but had to get it out hope no one else as to put up with this