Soo much pain: Well here i am 4am and... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Soo much pain

lynnh profile image
13 Replies

Well here i am 4am and still awake, loads of pain due to trip out for tribunal and convinced i've blown it. They kept asking how i could do stuff june last year and i know i got some of the info wrong. Then of course they ask if you have anything to add and you can't think of a thing now though so much going through my head - why did i say that, why didn't i tell them that etc. They couldn't give me a decision because they were running late due to the security guard not telling them i was there so got to wait for a letter which is supposed to be here tomorrow- oh no thats today now lol

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lynnh profile image
lynnh
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13 Replies
crissy profile image
crissy

Gud luck im sure they must allow for nerves and if they knew bout fibro fog they SHOULD x

hi and good luck i alays write things down if i have anything like that as i like you get out and think o i didnt say this or that

i wish you luck

i am like you was up at 4 am just sitting on the end of the bed i have bitten my tongue in night sothat issore i am trying to stretch out as my knee is locked on myleft leg lol and my bottom of my sppine cocsyx is really hurting too so i know how you are feeling bless you so now having cup of tea and thats it for a few hours walk doggy love diddle x

rice profile image
rice

I AM ON SLEEPING TABLETS TO HELP ME SLEEP ALSO HAVE YOU TRIED GLUCOSAMINE SULPHATE THESE ARE GOOD FOR PAINS IN YOUR JOINTS I TOO HAD TO FIGHT FOR MY BENEFITS I GOT HIGH RATE D L A FOR LIFE SO YOU SHOULD BE OK GOOD LUCK AND TAKE CARE RICE

Teeka profile image
Teeka in reply torice

Could I ask you,you got dla for life,what is your condition? As I am still waiting for past 6weeks, my life is on hold,what life I have xxx

Yorkielover profile image
Yorkielover

Hi and good luck with it. I battled for 6 mths and like Rice I was given Higher rate on both components. I hope you will feel somewhat less pain and be able to sleep.

lynnh profile image
lynnh

No news today, tried calling but can't tell you over the phone or email )-:

Sthandra profile image
Sthandra

Good luck hope you find out soon and hope all goes well I would say fingers crossed but tha would just hurt so i'll just think it instead .

FionaP profile image
FionaP

Good luck dear. I hope good news reaches you soon xx

Wishing you the best of luck, I hope everything works out well for you and that you feel better soon too. Take care.

lynnh profile image
lynnh

Thanks all for the good wishes, however, got my decision today and my appeal has been refused x

bbstport profile image
bbstport in reply tolynnh

so sorry to hear that x

Teeka profile image
Teeka

Isn't it awful we have to explain our selfs, they don't relize the day to day stresses of pain on our bodies,and with the stress of speaking and apealing,and trying to prove our self that we are sick we know we should be at work or study but our body doesn't physically let us.

I had my baby's before this nasty disablatating disease, has got hold of us.

My dream job is midwife I no that will never happen and that is a hard pill to swallow but I have come to terms with that,I have also grieved for my old life,

But had this renewal system they don't relize the effects on our body's it has on me xxx

And good luck "so much pain" thinking of you xxx

lynnh profile image
lynnh in reply toTeeka

thank you Teeka x

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