Ok so after having one of the worst days ive ever had pain wise on Saturday since I started off with all these problems a year ago, I had a reasonable day yesterday where I felt like I could move a bit more freely and although I had the usual aches a pains I was able to get a few things done, that id been putting off for a few days until I was feeling up to it. But now I wake up again today and I can hardly move my neck, and my hips are so painful just cant get any kind of comfortable position.
So how do people cope, I mean I haven't been able to work for 12 months nearly as the pain most days means I am so limited to what I can do. But on the days I feel a bit better I want to get all the things done that I haven't been able to as I have been so sore. And then I suffer again even more the next day, so it just seems like a vicious circle of pain, and I don't really know how to find a balance.