Hello! Glad to find you all

Just thought I'd say hello, I had my fibro diagnosis in February after being physically wiped out and in pain on and off for years. It was a huge relief but I'm still finding out what this can do to me and seem to have a lot of the fog, poor memory and anxiety. I'm lucky to still be pretty mobile most days but finding very few people around me understand and just keep telling me to get more sleep or relax more! The Dr confirming it's not my fault and that I have a real condition has helped. Currently have a lot of pain in my arms and hands but hope everyone is having an OK Monday.

14 Replies

  • Hello oRedo....welcome to the wonderful world of the wackiest and most painful debilitating condition going!! You will find we all understand how you feel as Fibro is still so unexplored as it is so random on the why's of it...There is lots of info on this site and plenty to listen and support when needed and also to make you laugh at our silly times. Take care Trikki

  • Hi sorry to hear you suffer too with fibro, but at least you have found this wonderful site. I'm quite new too and coming here was the best thing I've done, everyone is so helpful and supportive and it's just so nice to be around people who get how you think and feel, and give you a few laughs. I hope you find it helpful too xx

  • Welcome to the forum and I hope you get as much out of it as I do :)

    It is difficult for someone who doesn't have it to understand it, but we all do! Its funny when your Dr tells you its part of the illness and seems to understand you do feel validated, but there will be a lot out there that will expect you to pull your straps up, tighten your belt and get on with it. I hope you have more of the first and less of the second :)

  • Hi oRedo welcome to the forum ☺ I'm sorry you have been diagnosed with Fibro. I have had it for 30yrs & went a long time without a diagnosis & told I had all sorts of other things. So yes, know how you feel honey.

    It is a relief you haven't got a life threatening illness but it's not so good that you have this to live with and it takes times to learn how to best manage it & control the pain as much as you can.

    It's very difficult for ppl.to understand Fibro because its not something you can see. There is slowly more awareness about chronic pain & autoimmune desseases but it still has a long way to go.

    If you go to this link you can get more information to show your family as well.

    I have also got pain in my arms & hands at the moment, I have to prop cushions under them so I can use my tablet..look forward to speaking to you more.

    Peace, luv n light

    Jan x


  • Hello oRedo

    Welcome to the forum :) I feel pretty confident in saying that I don't think you will look back.

    You have just found yourself an amazing group of people who are kind, compassionate, caring and most of all supportive.

    As you are fairly newly diagnosed have a look at our mother site. You will find a wealth of information about Fibromyalgia on there fmauk.org

    Fruitbat77 is a fairly new member and Smilealot40 is an old one. Forum member that is! :)

    We feel pretty strongly about internet safety on the forum. At present your post is not locked which means that it can be shared on social media and on the open internet.

    I will pop back and give you a link explaining how to lock your posts **

    Please let me know if you are not particularly technically minded, and I will help you to navigate the forum.

    Please jump in with anything that is going on. Once again, a very warm welcome and I look forward to getting to know you better.

    Wishing you less pain and more peace

    Lu x


    ** Here is the link I promised you:


  • Hi Lu. I dont think that Smilealot40 would agree about being an `old one` :P

    Welcome oRedo nice to meet you.

    :) Sue x

  • Hey Sue mayrose54

    How are you?

    I owe Smilealot40 a little nudge!! I'm sure she wont mind too much he he :)

    Lu xx

  • Im up and down at the moment. Part stress with both of us waiting to see if we are going to tribunal and part weather.

    We were hoping to get another week away. no go. :)

  • OLD!! BlueMermaid3 I am shocked you would say that :P

  • Oh the true ignorance that some people show us we could write a best seller! You will learn about pacing yourself and not using up any extra energy you might gain some days. Its impossible to plan your days as you don,t know how you will feel. I find I have to be spontaneous some days in doing something I have avoided even going to town; I,ve passed out twice in the shops because I,ve overdone it in the past. My arms and hands have arthralgia and fibro- I use diclofenac/voltarol gel, I soak my hands and arms in the small sink in quite warm water, pat them dry and apply the gel then put on white cotton gloves and elastic arm stockings like tubigrip, I know its hard to carry knuckles and cut a hole for your thumbs, its very washable too. Good luck stay on the forum you will gets ,lots of help with many things on here.

  • Just like to say welcome and look forward to your future posts.x

  • Hi oRedo , Welvome!! You sound like the rest of us here some have symptoms worse than others.I think we all just do the best we can with what we have lol Hope you have a good day. Peck.🐤

  • Hi oRedo

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful yo make your acquaintance. I want to sincerely wish you all the best of luck and please take care of yourself.

    All my hopes and dreams for you


  • I remember when I was diagnosed by a rheumatologist he told me 'don't do anything you don't want to do and do lots of things you love to do'. It was amazing to get permission to stop pushing myself. I think you have to learn what helps and what doesn't. Try to avoid anything that is stressful if possible. Good friends will stick by you xx

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