me poorly knees: I was so proud of... - Fibromyalgia Acti...

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me poorly knees

julieevh profile image
12 Replies

I was so proud of myself last night - went the night without painkillers :-)

Not tonight though - knees are filled with hot cauldrons of pure grinding pain which is spreading to my toes .... ohh the joys of being a fibro-bunny!

Julie xx

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julieevh
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12 Replies
FionaP profile image
FionaP

Poor you. I hope they are good soon. I spray mine with cool spray.

My knees too are rough today and really swollen/hot.

At least I have slept well. Lost the whole day! xx

Galadriel profile image
Galadriel

My knees have been relatively pain free the past week or so - I had a week off from minding the grandbabbies...... I wonder if those two events are connected in any way...! LOL! It's my lumbar and left leg that suffer the most. I try to manage without meds as much as I can - I may have another 20 years of this and I'd prefer to keep what's left of my liver and kidneys...

I had the best sleep for months this morning. Still tired though but not so bone-weary.

I hope you both find some way of easing your poor knees, as no doubt I will this coming week when I get the babies back.

xxxxx

Abbeystead profile image
Abbeystead in reply to Galadriel

I wonder what it is. I've just got up this morning (Monday).Been in bed since Saturday night. Bottom of my back,buttock,knees, burningsore vagina, ankles on fire. Depression (well just feel there's no end to it now and seriously considering Dignitas,really). Dragged myself out of bed as I really hate having to give in to it. Covered the "appropriate" place with the appropriate cream. Took all my prescribed tablets, what for I dont know. My whole body,even my face seems to be burning. What the hell is wrong with me. Was going to ring doctor,but what for, everything is down to "fibro". Do have an appointment on Wednesday for her to check my thyroid and BP, The way I'm feeling today, may not make it to Wednesday.Where is my life going these days and why?

Goodienuff profile image
Goodienuff in reply to Abbeystead

I must admit, I have sometimes thoguht about Dignitas, or about neckiung all these damn pain killers/anti depressants on the really bad flare up days. Thankfully, mu home is full of pics of my wonderful grandkids (3 of them) so it's never (YET) been a serious thought. KEEP THE FAITH who knows when the medical breakthrough will come?

I watched a TV documentary recently which said that venomous snakes are being bred in captivity with a view to findin cures for all sorts of illnesses, including cancers, so maybe they just might find something for fibro too?

Abbeystead profile image
Abbeystead in reply to Goodienuff

Know exactly what you mean. I have 4 grandchildren which I practically brought up. Had them every day. I loved them so much I felt as though my heart would burst with the love I felt. Unfrtunately, they are all grown up now and the youngest is 22. Never see them, unless they want something. That is the sad part of growing old. But that's evalution I guess. How can they know how bad I feel? but it would be nice to see them more often as we all live within a mile radius.

I think it was through burning the candle at both ends. Working, having the kids at weekends becoming worn down and eventually ME/FM/CS and other things. Eventually had to give work up. Still looked after them when I gave up work but it was easier then. Just wish they called in now and then. Luckily I do still have my husband here to help.

Talking about snakes - think I already have they experimenting in my legs ha ha!. Know what you mean,just get so frustrated not being able to dash around the shops like I used to, or even get to the shops, or go for a walk.

Think the knee problem may be OA. All those high heels I used to run round town in during my lunch hours Hope your treatment goes well.

I does get you down though doesn't it.

You say keep the faith. Sorry lost that years ago. Maybe someone up there is punishing me. Any religious thoughts I had in the past have long gone. I know I,m a good person and wouldn,t hurt anyone or ever do anything wrong so if there is an after life I am sure I'll be forgiven.

Cheers.

Avril. (By the way I saw that programme as well)

Goodienuff profile image
Goodienuff

I have been told that the (MY) knee problem is NOT fibro related, but I have lots of fluid on both of them, and lots of crepitus (creaking and cracking when standing/walking, especially up and down stairs) I have had cortisone injections in the past which have been great, but last had them 6 weeks ago, with very little or no effect.

I am going to the physio this afternoon, first appointment, so fingers crosssed, Bob the physio just might come up with something. If it's anything groundbreaking, I will let you know.

Abbeystead profile image
Abbeystead in reply to Goodienuff

Know what you mean about your creaking. Mine click when I walk up the stairs. What are we like? Lets know hoa you get on with physio; be interesting.

Avril, Liverpool.

Goodienuff profile image
Goodienuff in reply to Abbeystead

Hi, I couldn't help but noitice the name Avril after your post, and I thought, 'How on earth does she know MY name?' Then I realised that it must be YOUR name. Must say I haven't met many other Avril's in my life.

My mum gave me the name cos I was born in April. :-)

charose profile image
charose

Goodienuff - my knees have fluid on them to so I can't bend them easily and sitting on the floor to play with my baby is not happening. Is this something common?

Hello Charose, we are familiar with knees pains with our Fibromyalgia, but I'm not sure fluid on the knees is related to Fibro. It's probably best to get this checked out with your Doctor who may want you to have XRays to check for arthritis etc.

I have Osteoarthritis and have really bad pains in my ankles, knees and feet and I had this years before I was diagnosed with Fibroymalgia. My knees can swell and feel tight with having Fibro, but I've never had fluid on them. :)

Goodienuff profile image
Goodienuff

Hi Abbeystead - yes it seems I have Osteo arthritis of the knees to add to my list of ailments other than fibro. Physio says he is sure I could benefit from his exercise classes greatly, both for the OA and Fibro- BUT!!! I also have heart/lung disease and high blood pressure, and I am seeing my cardiologist next month, so until my BP is down, and I've had my heart sorted (new symptoms which may need treatment) I can't go to the NHS exercises.

I do swim once a week, which gives a certain amount of relief, and I am trying to lose around 3-3 stones, but without exercise it's not coming off very quickly.

Feeling pretty good today - the sun is out, anmd I got my grandkids today and overnight, then taking them oout somewhere tomorrow.

charose profile image
charose

Thanks - I am seeing the pain clinic soon so am hoping to mention th

ings to them as I think the GP will be fed up with seeing me. lol

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