Urgent info needed please

[Devonlady]

I have just had an episode today of what my friend thinks is optical neuritis, is this part of fibro? She has MS and says it is a diagnostic point for MS and I am now a little concerned. Any advise would be grately received. Thanks you all xx

[Hidden]

Just looked this up on Wikipedia although it is a symptom mainly connected with MS it can also be caused by infection and it does occur with irritable bowel syndrome... I would mention it to your gp but hopefully if you have ibs as many fibro sufferers do its connected to that and not MS

Good luck xx

[Hidden]

Hello Devonlady, so sorry to hear you've had a worrying day. Whilst there are people with Optical Neuritis who also have Fibromyalgia, I don't think it is a part of Fibro. Of course to clarify this it would be best to speak to your Consultant or Doctor.

As Optical Neuritis is an inflammation of the optic nerve causing temporary loss of vision and pain too, if you think you have this you need to see your Doctor for perhaps a referral to an Ophthalmologist or a Neurologist. It can be worrying self diagnosing, so to be on the safe side please get this checked out asap.

Please let us know how you get on and take care.

[Devonlady]

Thanks to you both I am planning a trip to doctors on Monday as I certainly don't want to self diagnose but I wondered if it was likely fibro related as I had never heard of it before. I had eyes checked a week ago and I was told the eyes were fine from health point of view but aparently neuritis can come on quick so best to get that checked. I really appreciate your help and will keep you posted x

[Hidden in reply to Devonlady]

Best of luck to you Devonlady, I hope it goes well on Monday for you.

[beth2]

hi devonlady hope all goes well for you on monday love beth xx

[JoJo32]

Hi, I had a case of optic neuritis about 10yrs ago and yes although it can be one of the first signs of ms it doesnt always mean that it is ms. I still get the pain in my right eye although i was told the pain should have went away!!!!. I had an MRI head scan when i had it and it was all clear.

In Dec last year my doc sent me to see a neurologist who i seen in feb as my fm symptoms had changed and he wanted to rule out MS. I went for another mri head scan in march which was all clear. The way my doc explained it to me was that although optic neuritis is one of the first signs of MS in females it doesnt always mean MS it can just be optic neuritis.

Hope this helps but you are doing the right thing by going to your doc. Good luck for monday

Take Care

Jo xx

[Devonlady]

Thanks Jo yes very helpful. I was daft enought to put my symptoms into the NHS direct gosh they know how to put the wind up you. Said in big red flashy lights go to casualty straight away. Hmm I don't think so. I am due to fly off on holiday in a weeks time and hope they say I can fly ok.

My eye is uncomfortable but would not say painful, but then when you live with pain all the time you ten to have quite a high pain threshold. See what doc says tomorrow and I will let you all know xx

[Devonlady]

Been to GP, well he was running late by one hour so not the best time for me to go in really. I todly him my problems with eye and left leg and he said he would refer me to eye specalist but thought it was a migraine. Hmm half hour migraine with no headache, never come accross tha before but as my eye still hurts he is refering so I guess it is another long wait on the merry go round.

[renrobin in reply to Devonlady]

Hello Devonlady,

Are the flashes you are getting like a lightning flash?

I suffer this quite regularly and after extensive tests at my opticians ( just in case ) have been told it's a symptom of migraine. I too don't always get the headache after these flashes but know that I will be feeling bad from fibro symptoms.

It's alarming when this happens and the best thing is to lie down with your eyes closed until it passes. Mine have lasted up to 10 minutes and I feel sick and weak afterwards.

Fibro has so many different symptoms it's hard to explain which is the wortst.

At the moment I'm suffering from itching which is driving me crazy.

Hey ho....one day there might be a cure

Hugs Ren Robin...xxx

[Devonlady]

Sounds similar Robin except I see a semi circle of black white and coloured ziz zags.

I get the itching a lot and more recentl burning feet which is funnay as I have raynaulds so usually freezing.

Every day there is something new to contend with. As for a cure you have to have medics that want to find one and doesn't seem to be many of them around sadly.

I do get migraine but never been like this and my eye is still sore after two days with blured vision and shaddow to left side. Oh well it will all come out in the wash as nan used to say x

[Hidden]

I hope it doesn't take long to get your Eye Specialist appointment Devonlady. If time drags on a bit, chase it up if you're worried about anything to do with your eye.

I have migraines and all sorts of weird things happen with my eyes during the attacks. I had one this weekend and even now my right eye isn't right, it still hurts and my vision isn't quite right yet.

You're doing the right thing getting it checked out, I hope you don't have to wait long, take care and please let us know how you get on when your appointment comes through.

[Tortie]

When I had optic neuritis the pupil of my right eye went right into the top corner of my eye. It was like seeing double but one slightly on top of the other. This was back in 2001 and my eyes still play tricks. I'm a nightmare passenger in a car as I see cars coming towards us but seem to be veering into the side of us. I had already been diagnosed with Fibro. a few years earlier. I had been to my Gp the day before with severe headaches but he told me it was migraine. I went to my optician that afternoon & he went straight on to the phone to my GP & gave him what for. I was admitted to emergency care in hospital that afternoon where I was kept for the next 3 weeks. After various scans, tests, lots of blood tests and an MRI scan I was told I had MS and the original diagnosis was wrong. A lot of the symptoms are similar but I have found that more people think they understand MS better than Fibro & a lot of people don't understand how tired & sore we actually get. I think because a lot of the symptoms are described as "invisible" others don't understand or are convinced we are all good actors.