Info please??

[hells23]

Hi guys

I'm new to this fibro stuff as was only diagnosed this year. I've had Lupus for years but am finding it difficult to determine between the two sometimes. What are the main problems with fibro? All info leaflets say "pain" but we all know there are different types of pain. Any general info would be appreciated. Thanks x

[jellynpain]

Hi,

Typically FM pain is officially categorized as 'point pain', have a Google as will show. That said there seems to be a great deal more to it, weakness, fatigue etc. (strong overlaps with other conditions).

Interestingly I am diagnosed CFS/ME & FM, atrophy thyroid, pituitary adenoma but I feel many symptoms suffered are that of Lupus.

I wonder if alot of people have an overlap (or wrong diagnosis). Be interest to read your post replies.

I hope your having an ok day x

[hells23 in reply to jellynpain]

My rheumy diagnosed fibro as he was sure i didn't really have lupus. Blood test then proved him wrong. x

[Ian123]

My consultant suggested that finding the cause was less important than treating the symptoms, so trying to untie a complicated knot from multiple diagnosis is simplified by type of pain , intensity and location when looking for treatment.

[Hidden]

Hi hells23

Welcome to our friendly fibro forum and hopefully I can share some info that could help you

Firstly, have you been to our Mothersite fibroaction.org as there is a wealth of info and downloadable factsheets, articles and much more there.

Link to our Factsheets in case you've not seen them

fibroaction-public.sharepoi...

There are a few different pain classifications most of which are discussed in the following article - Pain Types and Classifications from USA webmd.com pain management centre and the link is below. I hope this helps your understanding

webmd.com/pain-management/g...

This article from abouthealth.com describes fibro and CFS connected pains very well and I find it quite useful myself for referencing.

Seven Types of Fibromyalgia Pain - Which Ones Do You Have?

By Adrienne Dellwo

Fibromyalgia & Chronic Fatigue Expert

chronicfatigue.about.com/od...

I hope these help you hells23 and send you fleecy soft fluffie hugs of support and comfort. Please ask away if there is anything else you'd like to know as there is always someone just around the corner to help

xxx sian

[Hidden]

Hey Sian, I hadn't seen the aboutcom website, very useful.......and I thought Id read EVERYTHING about Fibro..........xx

[Hidden in reply to Hidden]

{{{{{{{{{{{ sunnygirl }}}}}}}}}}}

It's a good one that I came across through the poster that's on my Hibernation Club Post and helps when explaining to friends what the pain is and feels like

Link to post:

healthunlocked.com/fibroact...

xxx sian

[Hidden]

Well the experts still want to rule out Lupus with me, it seems that nothing is 100 percent with the blood tests I'm having every 6 months, so in the endd I'm told it's probably Fibro but we'll keep on testing you, xx

[hells23 in reply to Hidden]

I'd been having 6 monthly blood tests for 6 or 7 years until i saw a really good rheumy who said i'd never had the right ones. Mine never gave a def answer but the ones he ordered even showed if internal organs will be affected. Seems odd that all other docs never ordered these.x

[jellynpain]

My gp looked gobsmacked when I suggested referral to Lupus specialist . Wanted to get Endo bloods first, have, so will be back re requesting. My last Ana was ok but I understand there are others too to check for Lupus. X

[RayB]

Dr's treat symptoms,, as they say in America Period !

[TheAuthor]

Hi hells23

I am so sorry to read that you have been suffering so much and I genuinely hope that you can find some resolution and relief to this issue. I see that my colleague, ''zeb73'' has given you some wonderful advice and really good links that are worth following up.

I want to wish you all the best of luck and I sincerely hope that you find the answers that you so desperately desire and deserve.

All my hopes and dreams for you

Ken x

[caninecrazy]

I have lupus since 2005 and fibro since feb this year, but to be honest they both feel the same as im still in chronic pain, fatigue, etc etc so I cant tell the difference between them or which condition is causing me a new problem.

hugs x