Fibromyalgia Action UK
38,765 members51,025 posts

Being recognised

Many of you have contact me to ask if I can help in any way for us to be recognised as an illness instead of being ignored.

Year before last I claimed ESA but was soon taken off as fibro meant I was 'fit enough to work'

I wrote a powerful letter to appeal and had a GP give support too but it wasn't enough. I entered the media world to make this known but it wasn't enough.

I just want to let you know I am still doing everything in my power despite failed attempts so we all need to stick together and try all avenues.

I am having a really bad week in terms of pains but will vent off in another blog!

Love always

5 Replies

Hi Simran,I know I was one who asked you about this.

As you so rightly say we need to stick together and try to get someone who will take us seriously.

You look after yourself hun.

Bye the way you looked stuning on the magazine.

Love and gentle hugs to you Jayne xxxxx


Hi Jayne,

Thank you so much for your love and support my status was for you and the others on this site that have made my life happier since joining. Let's do all we can to show the ignorant people how powerful we can be


Hi simran.

Could i ask what magazine it was? I would be really interested in reading it.

I hope you get some small respite from the pain youre feeling

Love and gentle huggles

Chilli xx


Hi Chilli

It was issue September 2011 in the fibromyalgia magazine. I also had an article in the month before.

Thanks lovely hope ur feeling ok tonight xxx


DWP confirmation

David Morris (Morecambe and Lunesdale, Conservative)

To ask the Secretary of State for Work and Pensions whether he has considered recognising fibromyalgia in the benefits system.

•Hansard source (Citation: HC Deb, 18 June 2012, c718W)

Maria Miller (Parliamentary Under Secretary of State (Disabled People), Work and Pensions; Basingstoke, Conservative)

The Department recognises fibromyalgia as a potentially significantly disabling condition.

Where a clinical diagnosis of fibromyalgia has been made, full account will be taken of its disabling effects in determining eligibility for benefits.


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