I am new to the sight and really stru... - Fibromyalgia Acti...

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I am new to the sight and really struggling with being diagnosed FB

overtherainbow62 profile image

I was recently diagnosed with Fibromyalgia, along with a lot of other complaints, i thought at first it was my rheumatoid arthritis going awire, but my consultant ran more test the rheumatiod was being controlled by the tablets. He explained i had fibromyalgia . Then i told my pain management specialist he said he knew i had actually had it for three years but not bothered to tell anyone.

I was really upset, because it made sense of all the other conditions, fatigue etc.

I had a tooth out this week and my body as gone into shock, i feel sick, my IBS is horrific, the tooth wasn't numb enough when the dentist started to pull it out. i wonder if anyone can give me tips on controlling the pain as my morphine is not touching it and i am sick of being sick and bring in my bed. please help anything considered

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overtherainbow62
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14 Replies
peck profile image
peck

Sorry to hear your in so much pain.If morphine won't take care of it...have you tried a numbing agent like ambesol.? It's normally for tooth aches but you should be able to use it for this as well You may gargle with warm salt water just for good measure...can't hurt.Good luck.Peck🐤

overtherainbow62 profile image
overtherainbow62 in reply topeck

the pain is not the tooth, its the fibromyalgia, having the tooth out, seems to have sent the body into shock, my body keeps spasming , i am so tired and feel sick, not been able to eat proper which is not helping my diaobeties, i daren't take my insulin. struggling to get out of bed. I suffer depression, for which i am having cognitive therapy. but i feel trapped again

peck profile image
peck in reply toovertherainbow62

I apologize for the misunderstanding. I thought you meant the place where you had the tooth pulled...unless your heart. I'll say a prayer for you. Be blessed. Peck 🐤 PS prayer has been said...things should be better!!!

peck profile image
peck in reply topeck

I'm sorry my phone misprinted.Bless your 💙!!!! Peck

overtherainbow62 profile image
overtherainbow62 in reply topeck

thank you for your kindness

TheAuthor profile image
TheAuthor

Hi overtherainbow62

Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FMA UK which hosts loads of useful Fibro information:

fmauk.org/

I am so genuinely sorry to read about your Fibro diagnosis, and I sincerely hope that you can find some resolution and relief to your pain and fatigue issues.

I had toothache recently (I lost the tooth), and my pain medications would simply not touch the pain. And so, I decided to use an old fashioned tinctures / clove oil from the pharmacy and it worked for me! It did not last too long and I had to keep using more of the stuff but it did what I needed. I just dipped a ''cotton bud'' into the bottle and dabbed it around the pain area. It tasted disgusting but that was the last thing on my mind at the time.

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Treewade profile image
Treewade

The pain meds for fibro or different and we all take different ones I'm on gabapentine an anti convulsant that works but it's more about dulling the pain sensor or nerve receptor in the brain I think please some one correct me if I'm wrong. The pain can't be got rid of but it can be filled or rather our receptor can be dulled do we can cope with it. I really haven't described it well, all I know is we are never pain free and if I have earache or an headache I still need the paracetamol as its a different type of pain xxxxx

Kitten-kat23 profile image
Kitten-kat23

I am so sorry you are in so much pain. I am sorry I don't have any answers.I hope you feel more comfortable, and someone can help.

Hi

Very sorry to hear that you far a fellow sufferer and on top of that having more pain and stress from having a tooth out.

From what I've experienced and read, everyone reacts differently to meds. I am sick, itchy and very ill if I have morphine, codine. I also had bad reactions to meds Drs tried for the fibro. All I can take is aspirin to help and migraine meds for them.

I am on an antidepressant which seems to be helping a little. Though I am trying to use herbal things too to try to relieve some stress and help me relax, which the o t said was important. I take extra vits, especially vit d, (which I've read fibro sufferers lack and I was anemic) herbal sleeping tabs, Volterol gel and hemp tablets. Hemp is supposed to have chemicals in that marijuana has in and is used in other countries fro fibro. I get it from Amazon and think it helps me to relax more.

Other than that I just try to ride out the bad times and pace myself and look forward to the time when I can live with the pain. It's very hard, I know.

Don't let things go too far, if you can't cope see your dr, if your not happy ask to see another one!

I do hope that you begin to feel a bit better soon and that someone's suggestions help you. Everyone on this site is very helpful and caring, you will get a lot of support. Keep fighting and hopefully one day we will all get cured.

Take care and best wishes.

overtherainbow62 profile image
overtherainbow62 in reply to

thank you so much

rosewine profile image
rosewine

I think having a tooth out can be quite traumatic according to where it is and if the area wasn't numb enough you were probably in considerable pain. Often people with fibro feel pain more than someone without fibro does so your body might have gone into a bit of shock which unfortunately has probably put your fibro into a bad flare. When we have a flare we just have to take things very gently and go with the flow the more we try and fight it the longer the flare can last.

If you are not being able to eat normally that can send your IBS into freefall as well I have IBS as well and have experienced this when I have had a viral infection and therefore have not felt like eating. Try frequent tiny meals of something very easy to digest. It is important with your diabetes to eat properly so I really think if this carries on you need to ring your GP for advice they might be able to give you some antisickness tablets tomake it possible for you to eat again.

It is a shock to know you have fibro I had a similar experience to you and only found out about 2 years back I had it even though supposedly it had been all over my notes for the previous 5 years (I will not bore you with the tale) and it explained all those strange symptoms that had completely puzzled me. If you do not know that you have fibro they can be very frightening as you start to think you have gone mad. My new doctor actually said that and was very sympathetic. I think when you have any procedure it is important that the person knows you have fibro. I do hope that you will be feeling a little better soon.x

overtherainbow62 profile image
overtherainbow62 in reply torosewine

Thank you so much for the kind words, i ate something for the first time tonight, only small amount, i have kept it down but feel queasy,but my doctors rang this afternoon to say my bloods have something wrong with them so may be there is more than meets the eye to this problem.

i have to go see my specialist on Friday morning to discuss this, so may be i will get some answers there. i really apperciate your kindness because i felt so alone

rosewine profile image
rosewine in reply toovertherainbow62

Do hope when you go to your GP on Friday you get some ansers and it is something that is easily put right, fingers crossed for you. Let us know how you get on. Take care.x

ChristCornHell profile image
ChristCornHell

I think that it's so disgusting that your "pain management" person knew that you have Fibromyalgia but didn't tell you . VERY sorry to hear this. Not a total surprise unfortunately this happens too often. It would have given you an explanation for how you have been feeling at least. I know that dwelling on the past won't help you but finally you are here where you will get better advice than most "qualified" people who don't have to go through our daily struggles. So try to live each day as it comes and enjoy the days when you don't feel like it's unbearable. Share any concerns and experiences here and know that you are NOT alone in your struggles. BIG GENTLE HUGS to all fellow sufferers (as unfortunately even well meant hugs can hurt.

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