Yet another flare up,seems to be one after another,this is the first opportunity i've had to take time out and come on line for ages! Hot sweats unbearable at the moment i actually had a cold bath this afternoon before going to work just to try and cool down i actually thought i would collapse today it was that bad, very sore hips and shaky legs could have done with a walking stick for support,i can feel things gradually getting worse my hands have been really bad,twitching,pain and dropping things! i am becoming frustrated and angry with myself,i am exhausted!!! I don't want this illness anymore i'm fed up really fed up!! Sorry it's a negative blog but it's how i feel and i can't talk to anyone my partner doesn't get it whatsoever all i get is "what's wrong today then?"
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aww della lv u be as neg as you wanna be,i no how you feel tho,we all do.its a shame ur partner dosnt get it,theres a lot of us in the same boat...its sh*t init and the sarci comments dont help.i think people react the way the do cos they cant see Mr fibro and the saying is `seeing is believing`and as we all know on here you cant see Mr fibro.its the same with a lot of other illnesses.there are people that try to understand but how can they(its not their fault really)we`d proberly be the same if we walked in there shoes.thats why im so happy that i found this lovely famly(this site)i call them my family cos everyone on here understands how eachother feels and that in my mind makes us special.im sorry i havn`t been helpful to you but the next time your partner asks "whats wrong today then" tell him that today your feeling special,lots of lv and warm fluffy hugs fm me xx
Thankyou so much! Yeah it's sh*t sometimes! i couldn't even be ar*ed to speak to him this evening after i was told that he is sick of hearing about it!!!! Big decisions lie ahead for me i think,hope you are well etc! fluffy hugs back to you xxx