fibro fog how do you mange it.

hi I suffer from fibro fog even in my speech lucky my carer knows how to understand what some days is nothing short of gobbdee gook. like telling her to put the washing in the shower because i had to bath in wasing machine?????? but she has told me to keep small notepads with pens attached on string in each room and i write donw everthing i have thought to do even going to the next rrom to fetch things or where i put the keys, i carry the notelets with me and post on the fridge until she comes around and goes thru them. it has helped me big time.

[jazher]

What a good idea.

I am useless at remembering anything.

I write a shopping list then i forget to take it. I write things on the calander and forgot to look at it lol.

I type most things in my phone now if i remeber lol.

hugs, kel xxxx

[Mamina in reply to jazher]

I used to write on post it pads but this led me knowhere as I now have too many bits of pieces of paper here and there. I have started using notebooks that I carry around. since I have been doing this for some time it seems to be working though I sometimes forget but then remember them. I have found them useful this maybe the beginning of a bit of organisation in my rather confused life. Thanks for the term fibro fog as I did not know what to call it. Thanks I am not alone in this at least.

[Hidden]

lol all i have to remember to do is look on fridge and cross out ot i have done it workswell for me

[charlii]

I too suffer with fibro fog and the silly things i do and my bad memory are legendary within my family and circle of friends! I would like suggestions on how to tackle this and to make my life a bit easier...my advice would be to try and see the funny side of some things..otherwise you would go mad! gentle hugs x

[poppy-03]

yes that 'dear daily companion' fibro fog! after my hubby and myself getting over the thought that i was getting dementia we have or rather hubby has learnt to decifer my not so unique language and finding the remote in the fridge or losing days at a time,my carer remembers for me that i dont like beef when we are out for a bit of lunch and i see a lovely lansgnia -which i make with quorn- that i say yum to! gosh the list is endless as we all know!

I have started to learn to except this fog and live with it and ithe more relaxed i am about the fog the more everyone around me is and we all muddle through and on occasion strangers have managed to have agiggle with me not at me when i speek gobbledygook

i try the notes but end up losing them lol! now my carer and hubby make a rceord of important dates etc and they remind me as we near the time

hugs poppy xxx

[Hidden]

I write everything important down in a notebook because I have the memory of a flea = zero! I forget everything these days! I even forget my childrens' names! As long as I have a "Things to do" list and also a list of things to tell hubby when he gets home from work, I manage well. It's an adjustment from before because I used to be so organised, never forgetting anything. Everything is written down on the family calendar too, that's a good way to keep organised too! If I forget something, the family tell me "Oh it's gone foggy in the South again!" - needless to say I explained to all of them about having Fibro Fog!!

[Hidden]

i left africa with two outfits of clothing and 100 pounds at 57 years old to seek help where there were real doctors lol or so i thought somy family have dumped me and i have to rely on me but hey this is not a complaint just to say how fortunate you areto have family around i hope they react better to your illness than mine did they brainwashed meinto believing i was a hyprachodriac.butterrfly hugs petal

[miakenzi in reply to Hidden]

my family do help me alot but do not understand what is wrong because most people can not see what you are going through they will never realy know it is still hard with family around you im at home 24-7 family pop down for about an hour a day and the other 23hours im on my own so in a way its not always better with family around soft hugs x

i

[tobins]

i suffer terrible with fibro fog for years,my family understand me most of the time,they are used to me now,i do get wierd looks of people that dont realy know me when i talk gibberish haha so sorry petal that your family have not been supportive its hard enough to deal with this illness as it is.gentle hugs to u petal xx

[Hidden]

hi tobins it only thru seeing a pain management clinic and joining this site that has made me accept fm and i am beginning to feel more at peace mentally knowing help and supportis just a few typed words away butterfly hugz petsl

[tobins]

glad to hear u are more at peace now petal,take care gentle hugs xx

[kraftyk8]

Hi fadedblossom.

I have a few coping mechanisms,

I have a magnetic white board in the kitchen that all appointments and anything else really important is written, with a calendar, shopping list and any paperwork corresponding attached with a magnet.

I put to do notes with alarms on my mobile phone

I have a note book for writing anything else in, like things I need to tell other people.

I use the calendar on my pc and have set it to be the first page that comes up when I open my browser.

I've asked for a bum bag for my birthday, to put my mobile, notebook and pen in, so I don't forget them when I'm going from one room to the other

None of which stops me from forgetting to actually look at them, or when I do, forgetting in a nano second what I've just looked at!

....and they don't stop me from putting the car keys in the fridge, being unable to find things I've put in a 'logically safe' place, going shopping in my slippers, leaving one of my sticks in shops, or my bag in coffee shops, being able to find the right word. In fact it's got so bad my GP is sending me for dementia screening!

Anyway, if any of the above can help you, that'll be a good thing.

happy hugs, grandma

[kraftyk8]

*unable

[kraftyk8]

*kate

[bumblebee57]

Hmmm fibro fog, fun isnt it?!! My worst times are when Im on the phone, especially talking to someone I dont know. I cant remember words I want to say, or details etc. It annoys me when (non fibro)people say "We all forget things" or "I often get up to do something and forget what Im doing or where Im going". I get funny looks when I stop mid sentence coz Ive forgotten what the hell I was on about. I just have to keep a sense of humour about it or it would drive me bonkers. So I just laugh at myself and say "Idiot" !! Foggy hugs to everyone.

[OuchOuch]

I have learned over the years to laugh at it, especially with strangers. There is a horrendously expensive coffee shop in town but occasionally I go there because the staff are totally brilliant and kind - they understand gibberish really well bless them. I talked to one staff member and explained what happens to me and so they are all splendid and don't laugh at me. Goddess bless them. My daughter is wonderful too, and husband is trying really hard to understand - I am so lucky. Yes I get laughed at, so what? I just carry on - where was I?? Horrid thing but we all have to live with it, sadly. Soft loving hugs to all.

[Hidden]

I've tried lots of things but the only things that work for me is reminders in my phone. I spend a lot of my time on the computer - either that or go mad - and have learned to type everything important in Word so that I can spell and grammer check and use the free online thesauras they have to find words I've lost - recently it was "censorship" which I found after asking for a word that meant the same as "preventing publication of material by people in power" found it first time and not small words themselves, just not the one I was looking for!

[Hidden]

PS thanks for all the tips from others many of which I will use.

Whippet x

[Hidden]

today in the midleof talking i pointed to the young man i was discussing and said whats his face him him and his friend replied damn ugly ......we all fell about laughing.

[Devonlady]

My family and friends know usually what I am trying to say but when I talk gobbledy gook to others I just laught it off. I find that I have more problems with the written coms and have to change how I word things as can't spell anymore. I find it upsetting when i think I am in a good day and I am able to do things only to find the next day the freezer things I put in the oven by mistake etc. Mostly I laugh this off to but makes me a bit scared to cross roads ets as sometimes I can see a car comming but can't stop myself from stepping off the pavement.

I get lost to in familliar places so always have my mobile on to call my daughter, carer. I used to be a sensible person and now I will put my hand on a hot cooker ring as can't seem to get the message from the brain to the hands. I get terrible virtigo and so have to sit for weeks at a time not even able to read or watch tv. I cope with it all by finding what I can do and that is sew so I now make teddy bears for a living. Fibro has taught me to adapt and laugh lots except when doctors tell you your fine then I just cry lots.

[woodbon]

I thought I had dementia! I have notebooks and write things down then loose the book so I get another one, now I have loads of notebooks with things in and I can't find anything. I've never been good at spelling, but its worse now and I write things back to front or leave out words. I also start a story half way through and then ask my husband what he thinks, only to meet a vacant look, as he doesn't have a clue what I'm telling him! But I do seriously find it hard on bad days when I can't laugh it off.

[MaryBac in reply to woodbon]

Me too! I have so many notebooks all over the place. Now it makes me feel better knowing I am not the only one with this problem!