facing reality: i think it really hit... - Fibromyalgia Acti...

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facing reality

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i think it really hit me last week , how much of my life has gone, I really used to love going for a walk, all my holidays combined long walks, all my visits to national trust houses involved long walks, all my hobbies involved hard work, I think like most of us Im grieving for the old life, how do you except this life now

6 Replies
LindseyMid profile image
LindseyMid

Dealing with diagnosis is very much like going through the grieving process. It is normal to have stages of denial, anger, depression, etc as a result. I personally found counselling hugely helpful to deal with this,

On the other hand, I would say don't give up your dreams. You may not be able to do everything you used to do, but the aim of treatment should be to improve your quality of life and prevent the Fibro (and whatever else you may have) from stopping you doing things unnecessarily.

Personally, I had to give up my career and sporting dreams, but I am now able to walk, exercise, enjoy my daughter, etc. Giving up my dreams was extremely tough, but my life is now good.

BlueBunny profile image
BlueBunny

Yes, I wish people knew me not my condition.

xx

cxs957 profile image
cxs957

Get a wheelchair. Though yes you won't be walking all the time, you can have still have a good time. When me and my boyfriend go out for a long day we take a wheelchair or rent one and i have a lot of fun. More than I would if i was walking.

you need to greif . and then settle into what you can do find new hobies and learn to find out what you can do and what you cant xx even think of counselling xx gentle dyslexic hugs

pennells profile image
pennells

god i know what you mean , i cant get over how my life has changed, i was so energetic all ways on the go, now every step is an effort, i have just got a little sit and ride i havent been out on it yet , i dont know how i am going to feel ,i have always walked , i have always like sewing patchwork, ect and i have found a club its not oldies its for every one , also there is one other there with fibro , i went for the first time this week and it was great i havent been out for around two years as i lost all confidents , but i will go again they were all very nice , i wish you all the luck and that you find some thing that fills your life with fullness, take care sue xx

I understand too, for the first year I felt like I was in mourning. I was grieving for the life I had before Fibro. I was nicknamed "cyclone" at home and work because I never sat down, I was always chasing around and rushing here and there. I worked 12+hr shifts at work seldom taking a break. All of a sudden I was reduced to this hobbling exhausted wreck, it took a long time getting used to it. I still have dreams and hopes but they tend to be a little more sedate these days, but for the most part I still enjoy my life and after a period of acceptance, I now fully accept how I am and I have my quality of life back too. I still have bad days but I don't sink with them, I know they will pass and I will be able to do more again. It's the unpredictability that sometimes is the hardest thing to deal with as I can't predict how I am going to be for say a week in advance. That can be frustrating sometimes when trying to plan something, most things I do are spontaneous now instead of having been planned for ages. It seems important to go through this period of mourning to come out the other side and view things differently. It will pass, hang on in there, here's a big gentle hug. Take care. :) :)

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