Fibromyalgia Action UK

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Is this just me ......?💔

Patty1964•

It’s late , I’m wide awake !! Not because I want to be , but because my bones have decided that now is a good time to really hurt . Because I’m awake with pain my mind has decided that it’s going to do overtime . It’s going to think about all the negative things in my life . Not because I want to but because that’s just how it works !! Well for me anyway !! So now it’s not just my body that hurts ,my brain from doing overtime , but my heart because of all the negative things in my life , that my brain is been mulling over , is involved now too . Is this just me feeling sorry or is there anyone else out there that goes through this .....night after night .....after night If there is and you know how to stop this PLEASE TELL ME HOW .....💔💔💔💔

Patty 🦋

23 Replies

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I'm just about to goto bed after taking more pain relief

Night Night

I hope you get a peaceful Sleep

Patty 🦋😴💤😴

You to patty.

But I dread going to bed when feeling sore cause I know I'm not going to get to sleep for hours.so you're not alone nope.🙏😼

Thank you for your msg !! At least I know that I’m not the only one being awake with my body on “fire” and my brain in a spin !!

I hope that you somehow get some sleep !!! Night Night

Patty 🦋

Hi Patty

Hope you did get some sleep . I’m new on here and haven’t posted before.

Yep , it’s not good these chronic diseases ....and I don’t mean to be blazeh

or insensitive to you ....... but what helps me is to try to find some positives in your life. There is some, just look , and be thankful , and it helps me .....to also know there’s people out there that are so much worse off!!

Chamomile tea may help .... adequate pain relief .....heat or cold pack....

Sounds like if you can get your pain relief under control .....you will slow down or stop the mind spinning..

Take care 🙂

Karen

Hello Karen

Thank You for Your msg !!😘

I know that I should be grateful and that there are people out there that suffer so much worse then I do , believe me when I say , that I feel guilty when I do complain !! It is my first time ever posting my thoughts and feelings on here or any where else !!

It’s just that I’m really in such a deep black whole at the moment and I just can’t get out of it !!

Not just physically but mentally and emotionally too ! I was in Hospital with Sepses for 6 weeks at the beginning of the year and ever since then it seems like I have just lost control of everything !!

It has really put me back years health wise I was doing so well !!

Truthfully I did not even expect any reactions to my post !!!!

But again Thank You 🌸

Night Night or GoodMorning ?!?

Patty 🦋🌷

Hi there Patty ,

I know , I feel guilty if I complain as well.....🙁

Sepsis.....now that’s very serious.....I hope not going to be a recurring issue.

It is very hard to stay positive and upbeat....but somehow we must .....(somehow,!!! 😉..) so frustrating as well when you can no longer do things that you used to do!

It’s nearly 2pm in the arvo here in Australia.

Just know you aren’t alone in this world ......there are people that care.....

❤️💖

Hi Patty

I Just re read your post ,

Re being in a big black hole...

Sounds like need to really do something about that ....

Antidepressants, counselling, walking, exercise, dr visits,

Tai Chi etc etc

I’ve been there as well .... now on a Lo dose antidepressant .....it’s ok now ....

I don’t have the big black hole feeling .....still get your ho hum , sad, bit depressed days .....but more good days than black hole days....if you know what I mean....😁😁

🦋💖

Hi , sorry about late answer !!

It’s been a crazy 48 hours !!

I did not get any sleep last night ! Then I most have dozed of in the living room whilst watching tv ?!?! Had a phone consultation with my GP She has changed my sleeping tablet to a stronger one and told me until I get to see a counsellor to phone 111 option 2 if I get that bad again !!! I just can’t seem to pull myself back together !!!

I ho estly have and are doing the things you mentioned !! For other people I just keep a smiling face on but it’s not easy !!!

I’m looking into Thai Chi

Have you tried that ?!?

It looks like the sleeping tablet has not kicked in yet !!!

I’m on so much medication it’s just crazy between 12 and 10 twice a day and top ups in between if needed Morphine , Pregabalin anti depressant , heart meds , Ect !!!!

I hate it !! It has really taken my life away from me , it’s like being a zombie at times !!

Sorry I’m not really a moaning or a depressing person but .....

How rude I have not even asked you how you are ! 😔😔😔🦋

Hi Patty ,

Glad to hear you fell asleep!!

It must be very hard to even think clearly with your medication you’ve got onboard!

Glad to hear you got a phone consultation with your gp. I guess the phone no she told you to ring is an emergency ph no. .?

Sorry to hear you are having a rough patch.... it will get better.....

I have no idea of your history ...?fibromyalgia , post sepsis, and heart issues .... it is a lot to deal with .....but you will get there.

Me , well I’m doing ok ..

I’m going to go for a walk ......I actually really feel like just going to bed..... it’s 12:45 pm here now.!! It takes me a bit to get going in the mornings ....

Very hard to get up and moving at times , but all good!

I have been to a few lessons on tai chi .....I did like it and I want to continue with it ....but at a different location and different teacher.

Tai chi has many benefits and they are doing a lot of research on the benefits of it for fibromyalgia,osteoporosis, rheumatoid arthritis, and ageing in general ...🤔 btw my birth year is 1964 ....just saying.🙂

I better go for my walk , or I’m going to drop off to sleep here😌

🦋🦋🦋

Hello STRAYLEAVES

I hope you are well !!

Would you be so kind as to read the message I send to

CURLYBACKS please !!

My brain was having a bit of a funny term and I got confused with names , so the message that I was meant to send to you has gone to that lady instead !!!!!!

It will explain what happened and why you did not hear from me !!!

I hope you’ll read it

Would really like to hear from you again !!!

Warm & Gentle Hugs

Patty 🦋💕🦋

How'd you sleep last night

Hello ,

How are you ? Did you manage any sleep yourself !??

I did not get back to sleep I just did some bits around the house and then I must have dozed of in front of the tv about lunch time I think !! I had phone conciliation witn my GP and she has giving me different sleeping tablets , but here we are 03.02 am and I’m still awake !!!

Hope you are a sleep and having Sweet Dreams ! !!

💕😘😴💤😴💤

Lol I got some sleep not to long after chatting last night,but still awake now lol even though felt so tired by 3:30 yesterday ,I felt like sheeite yesterday when woke up but had arranged to meet my step brother to make sure he was taking in what his sister was telling him about his father coming home from hospital for end of days care,&I'm so glad I did because he hadn't taken it in and he has health issues,so it was so very important to know this.then I met with a pal which I got to vent I must buy her a wee gift cause she's been fantastic recently then afterwards back to my brothers

Hello !!

Curlybacks

I’m so sorry that You have not had any response from me !!

I have had to apologise to a few people on here for that too !!! I was taken into hospital with pneumonia and a few added things !! So I’m back home now and trying to build strength back up !!!

Last we spoke you mentioned that you were bringing your dad back home , I hope that he is doing as well as possible in the sad circumstances ?!😔💕

How are you doing yourself ?

You asked about 1964 !😀

Yes that’s the year I was born

August baby !!

Hope to hear from You !!

Have a Lovely weekend !

Warm & Gentle Hugs

Patty 🦋💕

P/S : its getting cold here in the UK !!! We have been very lucky So far ,But all of a suffen over the kast few days things have turned !! Some Friends that live further North of the UK have had snow !!

Im in the South East and its just very wet & windy !!

How is it Where You are

May I ask your name or would You rather keep that private ?!

💕💕🦋

Hello !!!!

Wow !!!!! My brain is not working this message is meant for STRAYLEAVES !!!!!!

I had already sent you a message with apologies

I hope ?!?! Oh I’m so sorry I’m so confused 😔😔😬

Patty 🦋🦋

Hi Patty 1964

😂😂😂

Your funny!

Hey , don’t apologise.....

I am usually not on these sorts of sites , as I forget how to use them sometimes, and who I’ve replied too , and who I haven’t , and how to keep things private .....and so on and so on ...😀 I’m technologically illiterate.......ask my kids ,!!

I’m sorry to hear you have been in hospital with Pneumonia. That’s not good at all . I hope you are feeling better ....

My name is Karen , and yes that’s my birth year as well ....I’m a typical, dreamy , piscean ( not that I’m into the stars!)

Well , we are starting to warm up a little here now....nice lovely temperatures...

Where abouts in the UK are you from?

Does it snow there.?

🦋🦋

Bless you Patty, if it helps I am exactly the same. The more stress and worry the more pain and then for the flare ups and no amount of counting sheep is ever going to work.

As it is now so apparent the effects of stress and worry has on fibro, i have embarked on a yoga routine, Aromatherapy Oil, Trigger point massage and a journal to write down my worries, what can be done about the problem and what realistic outcomes are - when really stressed I blow things out of proportion and that helps rein it back in, I also know what foods make my pain worse, so avoid them at all costs

Best wishes

Debs

Hello Debs

Thank You so much for your mail !

I’m glad I decided to come on here !! I had my reservations !! There are several sites on FB and although some are ok the majority of people on the Fybromyalgia page are just so so negative !!!!😔😔

But it seems that the people who have been kind enough to take the time to read and respond to my post , are genuine 💕💕

Also I would like to apologise to you as well for delay in responding I have been in Hospital with pneumonia and other added complications ! Back home now and trying to get back my strength , but as you know it all seems to hit us harder then more healthier people !

Chat again !

Have a Lovely weekend

Warm & Gentle Hugs

Patty 🦋

So sorry you have been in hospital. We are here for you when you are ready.

Hope you feel better soon xxx

Yes, it happens to me. I feel guilty about everything and rehash things in my mind over and over. Stress kicks my fibro into high gear, as well as my depression which I've battled for more years than fibro., acid reflux, IBS, Epstein Barr virus, late onset diabetes and various other related things altogether. I take Cymbalta, pain med., and Provigil too to help with fatigue but at 74 the only thing for sleep that helps is Ambien. I can get by with 1/2 tablet even tho I've taken it for 12 years or so, and have found that if I add an otc allergy med. it helps control the itching, and numbness in hands/feet, even scalp and ears, side affect from pain med and stress too. Dr. approves so see if yours does too. Maybe allergy med. alone will help. I know that exercise is best, but can hardly take dog for a walk. I totally admire people I know who cope with Fibro. with exercise and diet mostly but I'm not able to. We're all different. Good luck and take care, M.A. from USA.

Hello Grandmama 16

I’m so sorry for this late reply to your mail !!! I have been in Hospital with pneumonia . Just came out yesterday ! Thank you for your advice and sharing your findings !!

I hope that your pain is no to bad at the moment ?! It’s always the wrong thing to say , to someone with Fybromyalgia but I hope you get well days soon !!

Thank You and chat again

With Warm & Gentle Hugs

Patty 🦋

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