Hi all. I just wanted to ask you lot as you’ve been so helpful already and most of you have been dealing with this crap years.
So my question is how the hell do we balance staying active but not pushing to hard. Looking online we seem to have 3 levels on this thing. 1 side is the people who are wheelchair-bound and I feel so sorry for them and also worry about going that way then middle ground (that’s me) we can move about but too long and we feel terrible and fatigue stops us from pushing on. Then finally the 3rd side that seem to be doing it all! Working full time and hitting the gym and only feel bad with flair ups! God I envy those people.
The reason I’m asking is was I felt I had my balance right with locked in reduced hours at work and on days off small but regularly walks. Now however though nothing has fundamentally changed apart from really in a positive sense that I’m eating better I’m now struggling now to be mobile as I was!? I had to leave my job as can’t physically stand that long anymore. I’m getting out most days for small walks with our dog and the odd small shopping trip but I seem to be burning out faster now? From all I’ve read this condition shouldn’t get worst but here I am wondering what the hell is going on.
Maybe it would help if I gave my symptoms. What stops me standing or waking to long is my legs seem to get weaker and feel them spasm and then if I keep pushing my balance goes funny and also the strange thing is my glands feel funny too, though they always kind of do they definitely feel wrong when I keep pushing myself, that’s why early on they was thinking as was I that I had Glandula fever but nope fibromyalgia was my outcome in the end.
Sorry for such a long post!