Has anyone had sleep paralysis? - Fibromyalgia Acti...

Fibromyalgia Action UK

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Has anyone had sleep paralysis?

martinarapley profile image
7 Replies

I've recently started having episodes which I think are sleep paralysis. Has three now and have been referred to neurology. Just wondered if it's "normol" with FM or if it could be side effect of med or if it's just me............

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martinarapley profile image
martinarapley
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7 Replies
Bettybutterfly profile image
Bettybutterfly

I first had sleep paralysis three and a half years ago,that was the point where i found out that i had i have fibro,i didn'tknow what the hell was going on i thought i was going mad,it seemed to have gone on for so long,screaming every night because i couldn't feel different parts of my body,one of the worst was when my neck was totally numb and it wouldn't hold the weight of my head,my shrink told me my sleeping pattern was screwed up and that i don't produce seratonin (a chemical your'e supposed to produce to go into R.E.M sleep), and since starting on sertraline,having a pitch black room to sleep in,and not drinking coffee or tea at night has sorted it out for me, i even dream now,which is something i didn't realise was important cause it means you are in R.E.M sleep....check it out ok,but remember fibro throws just about anything and everythig at you....good luck hunny....gentle hugz xx

I have that every morning and sometimes during the night, that's why it takes me so long to get out of bed most times, and it really hurts me for so long if I force it and make my self get up any sooner, and I quite often cant hold my head up, feels too heavy, when I'm having a bad flare esp, but back to the bed and sleep bit, my sleep is really strange, and I keep waking up, if I have dream they are real vivid, and when I wake up (every night) in the night half of me feels paralized, sometimes everybit of me is, told the doc that, but I believe it's all part of fibro, and if part of me isin't and i feel it it's all pins and needles, ah the joys of it all xxx gentle hugs don't worry it's what we have to suffer xxxx

cxs957 profile image
cxs957

I didn't think it was a symptom of fibro, I thought it was part of a sleeping disorder like narcolepsey

anjie profile image
anjie

I often wake and not able to feel at least one of my limbs...usually arms but sometimes legs...very very painful.

HB1968 profile image
HB1968

I often have sleep paralysis where i truly believe Im dying of a stroke, that Im awake but totally paraylsed, its absolutely terrifying but dont know if result of fibro or drugs im on for it, (duloxitine, fentanyl and tapentadol) glad I am not the only one who gets this.

martinarapley profile image
martinarapley

Thanks for your replys. It's great to see that I'm not going mad!!

RGriff profile image
RGriff

Im experiencing paralysis when i wake sometimes. I'm not sure if it comes with fibromyalgia or not, i know that fibromyalgia does affect sleep and also brain fog. Ive been referred for a sleep apnea test. See if your doctor can do that. I just keep getting told that the mind and body are very powerful and can do many things to your body. Could i ask what medication you take? If not thats ok. I really hope that you get some answers. Rose

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