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Fibromyalgia Action UK
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Has anyone had this happen to them

I'm not allowed to have kitchen scissors in the house cause I sometimes sleep walk and the last time I woke up to find I had cut a bath towel lengthways in perfect inch lengths, almost like i had measured first and cut after as each length was perfect hahaha so certain things like knives and such are locked in a draw after that.

Another time I was very lucky (in one way as I didn't burn down the house) I had a bottle with someo petrol for my chainsaw and I had a chimney that sometimes I put a little old cooking oil to help it light, instead I put a slash of petrol in it and of course you can imagine what happend next, I woke up in front of the chimney and a huge fire ball coming out, caused me first, second and third degree burns on my foot as I wasn't wearing socks cause it was at night and was in bed but luckily nothing else happend, so now certain things are not allowed in my house just in case.

Is it cause of so much meds or the sleepwalking thing? I don't know and my GP was just as puzzled. I am on huge doses of Fentanyl and other pain killers because of my illnesses but, would that be the reason? I have always sleepwalked when I was little and talk when I sleep but it's getting crazier and dangerous. Can anyone relate to that by anyway at all of have had similar experiences?

Anyway I hope you all have a good day with as little pain as posible. Gentle hugs to all

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I've been told some scary stories about Ambien, the sleep aid, in my husband's family. His father was up and talking and TV watching in the middle of the night and he remembered nothing at all of this the next morning!


I took Ambien as I had read it was the most popular brand in the States so my GP prescribed it as I had become used to Zoplicon. I found it an unreliable drug. Not work sometimes and other times not work but then kick in during the following day!



I know a lady who has the same problem she cooks in the night and has boiled the kettle with no water in it .

She purchased a sensor that goes in the bed and a alarm goes of when she gets out of bed does not always wake here up but most of the time it does.


Hi Rose54. Could try it but they do say that the worse thing you can do is wake someone who is sleepwalking as it could set off an heart attack, so not sure about the alarm thing to be honest.

Anyway I will just cross my fingers it doesn't get worse of they will have to find a solution one way or another.

Have a great day xx


Oh my lord ,. Bless you xx 😘


Hi there

I am wondering whether your meds may be making your sleep walking worse?

In other words, perhaps the meds you are on would not normally make someone start sleep walking, but as you already suffer from this, your meds are just exacerbating the sleep walking.

Have you read the leaflet that comes with your patches to see if there is anything about sleep walking in there?

It must be very worrying for you.

I've been a member of the forum for 5 years and cannot remember this coming up in the past although you could try typing "sleep walking" into the search engine at the top right of your screen and see what you come up with.

I hope you are able to find something that can help.

Lu xx


Hi Bluemermaid3, I have read all of the leaflets that come with all my meds and none of them say anything about sleepwalking or anything similar, so I guess as sleepwalking before being on meds it might have gone to the next stage or triggered something, not even the docs can explain it, i have looked to see if there are cases like mine and have never found anything as crazy as what has happened to me in the past 4 years that it has gotten to the point of locking kitchen knives away at night and thing like that. And it is worrying cause I can go on for months and nothing happens and then suddenly something has happend in the night that I find out about in the morning.

So eather someone has the keys to my house and is having a laugh or I truly have no idea nor does the GP and as it only happens in a blue moon she says there is no point into sending me to a sleep specialist cause they won't be able to do a proper study as it's not happening every day. So I am a bit in the dark with it all.

Anyway thanks Lu for your message and I hope you are having a good day xxx


Wow that's super dangerous. Not very helpful of your GP to say I don't know. Surely there is somewhere you can be referred to. The idea of an alarm when you get off the bed is a good one.


I have taken lots of different combinations of strong painkillers and sleepers and not experienced this. My wife is a light sleeper and always asks where your going when I creep out for a pee during the night. I usually say clubbing or off to see my girlfriend and she grunts and goes back to sleep satisfied I'm not going to break my neck on the stairs! Lol

Sounds like you had this before fibro and all the medication.

I know our local hospital has a specialist sleep clinic, perhaps your GP could refer you to them to look into it? I think you need some help before something even worse happens. You were very lucky fortunate.


Hi, that does sound scary. Thank God it was only your foot that got burnt, could easily have been much worse. I used to sleepwalk in my teens, and left the house one night and walked down the middle of the street in my pants !! I have always talked, shouted and fought in my sleep, I also apparently answer people who talk to me while asleep. It has toned down a bit as I got older. It used to get worse when I was stressed. Are you feeling stressed or worried about something, maybe something is on your mind and you are subconsciously reacting to this. All the best, hope you get to the bottom of it.


Hi Shazzzy. Now that you mention the stress thing, I suffer from extreme anxiety so it could be related to that, I don't know I will ask my GP and see what she thinks.

Thanks for that !! xxx


You are welcome, good luck


Hi Mandandm

I really am so truly sorry to read this and I have pasted you an excerpt and a link below to the *NHS Choices cache on this issue. It does mention anxiety as one of the contributors to this:

*Why some people sleepwalk

*The exact cause of sleepwalking is unknown, but it seems to run in families. You’re more likely to sleepwalk if other members of your close family have or had sleepwalking behaviours or night terrors.

The following things can trigger sleepwalking or make it worse:

not getting enough sleep

stress and anxiety

infection with a fever (especially in children)

drinking too much alcohol

taking recreational drugs

certain types of medication, such as some sedatives

being startled by a sudden noise or touch, causing abrupt waking from deep sleep

waking up suddenly from deep sleep because you need to go to the toilet

NHS Choices - Sleepwalking:


I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you


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