Fibromyalgia Action UK

What hope have I got !!

Went to drs the other day for some x ray results as I had had another fall.

My main medical condition is Primary Biliary Cirrohsis which for those of you do not know is an autoimmune disease of the liver. Alongside this I have fusion of the lower spine and cervical spondolitis . With these conditions I have a lot of pain and unfortunately unable to take the normal anti inflammatory drugs as my liver does not function properly it cannot cope with the meds.

Sorry I lost my way a bit there ( I also have brain fog ) anyway I asked the Dr if it was possible I had Fibromyalgia as I have pain in my other joints (hips wrists ankles ect ) he said and I "quote Fibromyalgia is a term Dr use when they cannot identify a specific cause "

We know what's causing your pain !! He then went onto to prescribes stronger pain killers !!!! Which I cannot take when I'm working as they knock me out :(

I was so dumbfounded I just took it and left the room

Where on earth do I go from here !!

6 Replies

Where do you go ? Back to the GP ! There is no point in him prescribing medication you can't take !

Is there another GP at the practice who is likely to be a little more sympathetic ?

He's right in a funny kind of way in that Fibro is often diagnosed when everything else has been ruled out , perhaps he just has an irritating way of putting it :) . Ask for a referral to a specialist if you disagree with him that your existing conditions are causing your joint pains . GP's sometimes forget who are paying their wages !




Helen you so right there I will go back again as soon as I cam muster the energy !

A girl in work said the same she tells her Dr not asks



Thanks for your advice Chris I will go back and ask to see a rheumatoligist I'm currently waiting for a dexa scan so watch this space another full week of work over can't wait to go to bed and sleep !sending you gentle hugs Xx


hi sorry you have so many issues wiyh your health bless you and then fibro on top how awful . i wouls go see another gp at your practice love to you diddle x


Thanks Diddle its year just to get it off your chest sometimes .



I'm in a state of shock !!! I had a fall I'm a well known department store in the disabled changing room as the grab rail wasn't secured .

I wrote to the head office as the store did not respond to my letter of complaint !

Apparently they do not have a maintance procedure in place and rely on staff to report any defects!!not happy

Head office asked me supply a Dr report advising what treatment I had had and any relevant medical conditions I had cost me 65 pounds!!

They have advised me they will reimburse me on receipt

On reading the report the same Dr who said fibromyalgia was not a condition actually states I suffer from this now and my pain has been ongoing since 2006 !!!!!!!!

I am speechless

Has any body else had an accident in a disabled fitting room



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