Scared: Hi does any one think that they... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Scared

FIONA151262 profile image
30 Replies

Hi does any one think that they are losing their mind!!!!!!!

ie, lose there car in sainsburys carpark and realy cant remember where it is ?

or so oftern you can't remember what and why you are doing something

I know about fybro fog but some times i think i am getting dementure, and I cant spell lol lol lol arrrrrrgggghhhhhh xxx

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FIONA151262 profile image
FIONA151262
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30 Replies

Ive just had this conversation with my social worker , about how I forget things, and how much I feel like an idiot, I once , a long time ago when i could drive left the car in the supermarker car park and walked home with all my shopping, no I forget to clean up[lol] I do hope you are home now and not still in the car park

lynz profile image
lynz

well if you have dimentia i do aswell :-D i feel like im going absolutley crackers ,i cant spell to save my life lol i get quite panicky about it somtimes aswell cause i have so many things to remember to do with kids like homework ,school trips etc i feel like im going doolally dip :-P :-O

trisha64 profile image
trisha64

i feel for everyone who this happens to ,, before today i have sat in a heap sobbing coz i just cant remember words or things ,, i have spoken to my dr about this and she is watching closely , asking my kids to mark down as and when it happens ,, i have to use post it notes or phone reminders as i have forgotten i have taken my meds and overdosed a few times x

sasadr profile image
sasadr in reply totrisha64

Hi Trisha I have a few times gone to the bedroom for something and got in my jimjams even though it is only lunch time. Still don't remember what i was going for.

trisha64 profile image
trisha64 in reply tosasadr

i seem to live in mine latley since the thyroid went on the fritz ive gaiuned two stone ,, which means i have buggered my joints more then i get more depressed etc etc /... the way i look at it is by later today i will have forgotten how bad it was so in a sense i wonder if its the brain going into like erm a self protect mode if u get me x

FIONA151262 profile image
FIONA151262

Hi yes i.m home just having one of those days thanks for caring xx

Butterfly54 profile image
Butterfly54 in reply toFIONA151262

Hi Fiona a few days have passed now and dust has settled.

But Sue and Myself found your blog ammusing as did others

till SOMEONE came on and spoilt the fun.Quite why Someone is a volanteer is beyond me but please don`t stop bloging or asking questions as this is what we are here for.

Not just for the tough stuff but also the stuff that is funny and brightens someone`s day.

So if you want to liken it to dementia you do that,

I bloody well do.

So forget miserable moaning bwaaaah people and come back please

love and hugs Jayne xxx:-)b

Butterfly54 profile image
Butterfly54 in reply toButterfly54

why wont those sodding faces work for me

:-) :-)p ;-)p ;-)d :-)b

I've just said the same thing to mindees Mum. I was trying to explain fibro fog and I said it's like the very start of alzheimer's.

Jules, my husband has had it since he was 50. He's 61 now and been in a nursing home for the past 6 years.

FIONA151262 profile image
FIONA151262

sorry no offence ment

lynz profile image
lynz in reply toFIONA151262

me too sorry xx

FIONA151262 profile image
FIONA151262

sorry did not wish to offend anyone

trisha64 profile image
trisha64

it is sue and my gp dosnt think its a thing we should ignore as in the last year things have gone worse ,, i cant count the hrs i have sat and cried after a bad day it prob is fibro fog but how do we know it wont go worse in time ?? its a scary thought x

in reply totrisha64

After seeing Steve forget his words and forget where he left the car - he passed a test so he could still drive for a while - I agree, some of us are bound to get dementia Trisha. It is a worry that we don't know if we will.

There are 3 men in Steve's under 65 unit who are in their 40's. That is definitely scary. I have wondered myself sometimes when I've had a bad memory day. xxx

trisha64 profile image
trisha64 in reply to

thtas just it sue it scares the hell out of me x

Thanks Jules. Steve was diagnosed at 52 but he'd had it for a long time before then, I noticed it when he was 50 but he definitely showed signs when he was in his late 40's.

Steve has advanced dementia and I've seen him go from a man who was always out on his motorbike or singing in the clubs to a baby being fed and showered and wearing pads.

When my Mum died in September, I came home after 2 months in Leeds and Steve wasn't well. Four weeks later he too was in hospital with pneumonia and I was told he probably wouldn't make it through the night. He did but I have a no recuscitation (sp) for him as I know he would not want to exist as he is now. He also has rheumatoid arthritis.

Chrisey profile image
Chrisey

Does anyone forget where they are driving when driving? LOL

FIONA151262 profile image
FIONA151262 in reply toChrisey

or how you got there !!! lol

I do that all time lose my car but have put bright pink ribbon on aerial and now i look for my ribbon lol try it love to you Diddle x

FIONA151262 profile image
FIONA151262 in reply to

Thanks will do, think I need a bright coloured car as everyone seems to have a dark gray car !!!! xx

karencw profile image
karencw

Hi I am just new to this site and looking forward to hearing from everyone. I constantly feel like I am going of my head, managed to put fresh orange juice on my cereal the other morning. I don't always admit my mishaps as I think people would think I was going of my head. Just aswell we can talk about these things together and undertstand each other. Take care karen x

FIONA151262 profile image
FIONA151262 in reply tokarencw

Hi Karen

only joined a few days ago, its nice to have someone who knows how you are feeling and can empathise with you

Fiona xx

Hi Karen,

Welcome. It's a great group, now you don't have to feel like you're going off your head cos we all are here :)

Sue xx

mandyb profile image
mandyb

your not alone .i have always had to make a mental map to find my car even before i had fibromyalgia .

FIONA151262 profile image
FIONA151262

Thanks everyone for your support glad to know I am not on my own x

circuitrunner profile image
circuitrunner in reply toFIONA151262

Sadly we have to adjust to this - if we could do anything to help to be cure this to be sure one of us would have mentioned it. Its frustrating to say the least

MrsW profile image
MrsW

Fibro fog can sometimes be a real pea souper,it took me ages to remember where I'd put the milk the other day (under the sink!!)and at work ,if I put a file down then thats it ...gone for about an hour,unless one of my work mates finds it.

MissKittycat profile image
MissKittycat in reply toMrsW

I just forgot how to type - I used to be a speed typist, but now sometimes I sit here in front of the computer, put my hands on the keys and can't remember my qwerty keyboard training.... went away and had a break and its sort of come back!

Gentle hugs xx

TIDDLYF profile image
TIDDLYF in reply toMissKittycat

Iknow that one too well! Iused to work in a PR office and have hectic days> Loads of time spent on the phone and a lot of typing. The other day, whilst writing a letter I was looking for the £ sign. Then didnt remember what i was looking for. The the screen went all blurry, wiped it but it didnt make any difference - it was my eyes welling up.needless to say letter got left and really must do it today but hospital first! AAAAH

WEEme profile image
WEEme

Hi I'm new to the group and feeling pretty low at moment, i get real frustrated when i lose something usually always my keys and my other half just does't understand why, Fiona, i always can't remember where i put them xx hi to everyone xx

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