Yesterday morning i received a phonecall out of the blue. My hospital rang to say i had been referred by my rhumotologist for physio, they had a cancellation for that afternoon would i like the app. Talk about throwing me into a flat spin !! I had to make a decission within a couple of minutes . This is not easy, i had to get my head to remember if i had anything else on for the afternoon, ask myself how much pain i was in as i would have to drive 45 mins to York for the app,let alone pluck up the courage to go alone as my husband was at work.
I decided to take the app as the next one would mean waiting till the end of April. So i managed to get ready and leave in plenty of time so that i could take a steady drive.Lucky yesterday was not a really bad pain day.
Having parked the car i could have done with an hour to sleep!! but no time for a rest. I walked to the main entrance and had to follow the signs for physio, felt like i had entered a parrellel universe. Felt like the world was rushing past me and i was stuck in time. Weird feeling.Talked to myself , told myself i could do this just focus !! self coaching !!!!!!!
Ok horay i found physio, took a seat and waited. ouch, pain in lower back kicked in following the drive. Then i was called in.
The first question i was asked was, what do i want to achieve through the physio? call me stupid but i said the obvious, to have less pain and be able to move more freely . I was then told that pysio could do nothing for the pain of fibro. He had never known pysio to ease the pain of fibro.Can you believe i spent an hour in a cubicle talking to the pysiotherapist about how fibro affects my life and how i can only really help myself to live with it.
I apparently need to loose weight ( currently 3 stone overweight) and decide what i want from my life. He talked about the isolation of being at home and my lack of social life was having an impact on how i was feeling.Clever!! tell me something i dont know.
Tell me how i can loose the weight, i have tried but with limited mobility my weight stays put.
Tell me how i can meet new friends when most of the time i have so much pain i am only happy in my own company.
Tell me who will offer me a job when i dont have the ability to be reliable from one day to another. (i physically and emotionally feel unable to work at present , i am not claiming benefits just being supported by a very understanding husband)
After an hour sitting very uncomfortably i had had no pysio , thought i had stumbled into physciatry.!!!!!!! I told him i didnt think he realised how much it had taken for me to even get to the app on my own and that to me was a huge achievment.
I am going again in 2 weeks when i will be given an MOT to check i am moving correctly. I have also been put on a waiting list for a support session where a group of fibro sufferes meet to learn about helping ourselves to live a fulfilling life through diet and excersie.I am looking forward to this so that i can finally talk to others who totally understand.
Then the sting in the tale, £5.40 car park fee and a 45 min drive home wound up that i had had no physio treatment. I was given home work too, i have to work out what i want from life!!!!!!!!!!! Fibro wont go away so i have to learn to get on with the things i want to do!!!!!!!!! After i have recovered form my app at physio !!!!!!