Started saturday to feel the chills, shaking hot and cold major sore throat , glands up. Whole body feels achy . Sore spots on thighs, forearms and hips, you touch me and its like someone has put a red hot poker on my skin.
Neck hurting and soooo tired been in bed on and off all day and sleeping too. I have started to write a diary to remind myself of what I was feeling. I have had so many bad days in different contexts, its really getting me down, I have been waiting for 5 months for an isotope bone scan and to see my consultant again, and I am soooo down. I know my anti ccp bloods are up but why cant my normal doctor tell me what that means and the treatment Im on now is not working I feel. I have an appointment with my g.p tomorrow so will let you know what she says. Thats if I am well enough to make it there.
So sorry to moan away , I have so many positive things to look forward to this year, but am afarid my body won't allow me to do these things. I also find I have no-one to talk to, as my husband and family do not understand, they try but how could they when the see me like this nearly everyday. All they see is someone down and moaning all the time which I dont mean to do, but sometimes you cant help it. I am so glad I have found this website, because at least I can have a good whinge on here. Thanks to all who listen and hugs to you all who suffer this depleting illness.