Started saturday to feel the chills, shaking hot and cold major sore throat , glands up. Whole body feels achy . Sore spots on thighs, forearms and hips, you touch me and its like someone has put a red hot poker on my skin.
Neck hurting and soooo tired been in bed on and off all day and sleeping too. I have started to write a diary to remind myself of what I was feeling. I have had so many bad days in different contexts, its really getting me down, I have been waiting for 5 months for an isotope bone scan and to see my consultant again, and I am soooo down. I know my anti ccp bloods are up but why cant my normal doctor tell me what that means and the treatment Im on now is not working I feel. I have an appointment with my g.p tomorrow so will let you know what she says. Thats if I am well enough to make it there.
So sorry to moan away , I have so many positive things to look forward to this year, but am afarid my body won't allow me to do these things. I also find I have no-one to talk to, as my husband and family do not understand, they try but how could they when the see me like this nearly everyday. All they see is someone down and moaning all the time which I dont mean to do, but sometimes you cant help it. I am so glad I have found this website, because at least I can have a good whinge on here. Thanks to all who listen and hugs to you all who suffer this depleting illness.
Written by
Nemasi
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Really do understand where you are. And it's very ok to open up here and express your feelings and emotions. I too hope that it has at the very least helped to de-stress a bit.. and enable you to have a better rest.
Family who do not understand... yep, a lot of us know that situation well. I have to say.. after many years of feeling like a burden etc... a Man came into my life... the most wonderful Man. We are engaged to be married this year. He truly loves every part of me.. at any given moment. Now... If this Man can see me through this illness... why on earth cannot my own blood? It's not good enough anymore in my eyes. I'm no burden, and either are you. You require love and support.
Please know that you are special, and there is only one of you. You have many things to offer and its only because you did not have the love and support you needed around you that has lead you to think badly about yourself.
If you would like to talk at anytime, please do message me.
Thank you all for your very kind words, I do feel a better, being able to get things off my chest, as that is the type of person I am. I am off to docs later so lets see what he has to say this time. Thanks again xxxx
It must be hitting all of us with fibro - I had my flu shot last year but I still woke up yesterday with a sore throat, swollen glands and feeling like I had gone 10 rounds with Mike Tyson! Kept drifting in and out of sleep all day and night. Was either shivering with cold or drenched in sweat from feeling too hot. Feel a bit better today. I went outside and got some fresh air which made me feel better but I'm still aching all over.
I am so pleased to have found this website as like you, I don't have anyone to confide in. My fiancé is very sympathetic but he will never be able to truly understand what I am going through.
I do have dreadful days. I accept that these are going to be me for the rest of my life. I think that it is one of the hardest things to do - accept what we can no longer do because of this illness. As well as having Fibro I also have CFS and polyneuropathy which is also very painful.
Sorry for wittering on like this but it's just to let you know that you are not the only one out there who needs to let off steam. As long as this wonderful site is here you will always have friends who will listen and help you but most importantly, empathise with you. Take care of yourself and if you ever fell like a natter just contact me.
I find that my glands go up when my stomach is affected by the fibro. If I get a bout of IBS, then other fibro symptoms kick in soon after going to the toilet. I live just outside Cardiff, so feel free to message me if you ever fancy a chat. Mark
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Another flare up and so tired!!
why do i feel so guilty for having fibro?
So fed up and frustrated
so sore and getting worse
So fed up and down what else !!!!
