An Update On How I’ve Improved

[SlothMode]

Hiya my original Fibro family. I have not posted for a long time. This post is addressed for my friends here as I share much love for u. I am posting from my own experience so I ask that I get no hecklers from the wings.

My Doctors turned around some months back n informed me that my B12 injections would be stopped. I felt lost as I can just function on these 12 weekly jabs! So I made a plea for help on a Pernicious Anemia forum. They were so kind n u can read the post on my profile. They taught me more than any of the doctors I have seen. They introduced me to self injecting, the Myelin sheath n finally Dr Klein.

I discovered that a lot of my weird fibro symptoms were signs of a B12 deficiency. So I commenced my first injection on May 1st. Then I injected every other day. It didn’t take long for me to notice small changes. Please read my second post I put on the Pernicious Anemia forum also on my profile n u can see after a time I lost over half of my severe fibro pain!

As well as this the next thing I was told shocked me. I had two friends with fibro who were told by Dr Klein that their ‘fibro’ seemed to be a severe B12 deficiency n just like me after starting to SI they started to improve too! I can’t believe that I can actually walk now?! Before I could just about walk around my flat. So I urge my closest friends to ask ur Dr for a B12 test. It must be an Active B12 test. Before I started my injections I was blacking out, falling, getting dizzy, weeing for England, run down n struggling to open my eyes at times. Now I’ve not had falls, blackouts or struggle to open my eyes. No more weeing for England either lol! This is my journey which will take time to repair the damage done to my Myelin sheath. I hope it can help others. I don’t want any unkind replies on my post, this is for my good friends. If it can help just one of u I’ve done my duty 😊🤗💜

[Hazel_Angelstar Administrator FMA UK Staff]

I was diagnosed with pernicious anaemia and started injections before I had my fibro diagnosis - but yes, there is an overlap of symptoms between them both, so worthwhile it being checked.

[Bethenny]

Fantastic news 😀. I suffer mainly with fatigue, do you think b12 injections would be beneficial for that ?

[SlothMode in reply to Bethenny]

Hiya Bethenny,

I am not medically trained but maybe ur fatigue would need to have a few more symptoms of a B12 deficiency . A B12 deficiency can cause Physical, Psychological n Neurological symptoms. I suggest u ask for an active B12 test. It must be an active B12 test which is called a Holotranscobalamin test. Once u get those results ur doctor will be able to advise. Hopefully they follow the Nice guidelines if u do turn out to have a deficiency 😊🤗💜

[Bethenny]

Thank you for your reply. I'll do that @🙂🤗

[Jugglinglife]

That sounds amazing one I will definitely ask them it's funny how 1 vita.in etc can affect your body so glad your feeling much better thankypu for sharing 😀

[Yassytina FMA UK Volunteer]

I am checked once a year for B-12 amongst other things with the practioner nurse, they can tell so much nowadays through blood tests. I am glad you are moving forward always good too read of someone’s progress 😃xx

[sleepytink]

wow, first of all I send you lots of love and best wishes for continued improvements, and just wanted to say that I have been paying for private B12 injections over the past year and really did feel they helped me with the fatigue, they are expensive so now I think I will definitely look at doing it more regularly and find a cheaper way to do it! can you guide us to where you get it from etc?