Fibromyalgia Action UK

Is B12 deficiency a symptom of fibomyalgia

Hi all, following my last post about my B12 deficiency, I have had two injections now and don't really feel any different. Thought I did at first. I feel terrible today. Just as well it is Saturday as I am sat watching TV with my family.

My question is about B12 being a symptom of fibro. I spoke to someone who said it is good that I have found what's wrong with me. They said it is good that I haven't got fibro. There are so many other symptoms that I have I'm not sure what I have.

Can someone help me please.

David

12 Replies
oldestnewest

Hi Golfer15 I hope you manage to get these ssymptomss sorted.

I hope all test ect back OK.

Good luck my friend

1 like
Reply

Thank you.

Reply

I have vitamin b12 deficiency and fibro been having injections for a few years now I was diagnosed with b12 deficiency 1st hoping the injections would help they didn't do anything for me then came the fibro diagnosis but don't know if they linked.

1 like
Reply

Hello David

Would you mind me asking if the person who said it's good you don't have Fibro actually know anything about the condition?

I don't know whether a lack of Vit B12 is on the list of symptoms (I must check), however having a Vit B12 deficiency on it's own I would say (in my own personal opinion) would not be a definition of Fibro.

However, I would say that a very large number of us are Vit B12 deficient.

I am not sure if that answers your question? Have you been diagnosed with Fibro - I feel sure I have read that you have been.

Best wishes

Lu xx

PS It is possible to have CFS/ME on top of Fibro as well. That may be worth looking into? xx

Reply

Hi Lu, yes I have been diagnosed with fibromyalgia by a rheumatologist. I think the person who I told me that I don't have fibro but I have B12 deficiency knows about fibro. But I was confused about what they said.

Thanks for your comments.

David x

1 like
Reply

Many seem to have an issue with B12/Folic maybe fibro uses more of it or it's used by the body more to try to correct things???

1 like
Reply

I'm with Lu. There's a link, but not a link if that makes sense. When I was under investigation, B12 was tested for. Among other things a deficiency leads to pain, and there seems to be an inordinate number of fibomites with a deficiency. However I assume that when it is corrected yet doesn't seem to alleviate symptoms.

2 likes
Reply

Hi Fenbadger, thanks for your comments.

David x

Reply

Hi,

You need at least 3 injections before you feel better.

No Fibro doesn't led to B12 deficiency. But certain medications e.g. Metformin do, and quite rapidly too.

Hope this helps.

2 likes
Reply

Hi my friend

I am so truly sorry to read that you do not feel any better yet. I personally think that there is a connection between many anomalies and Fibro. However, having B12 injections will not remove the Fibro. I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

1 like
Reply

Hi,

My personal opinion is that we fibro sufferers have a lot of emotional stress which uses up our vit B12 stores. Diet is also very important and if you don't eat enough meat, eggs, yeast etc then you don't get enough vit B12. Vit B12 should also be taken with a complete vit B supplement. I can promise you, you will have more energy once you have had your injections. It is not a fibromyalgia symptom. I have had fibro for 35 years - can anybody top that lol?

Gisela

1 like
Reply

If you have a deficiency in b12 then you have a problem absorbing it from animal products. Unless you are a vegetarian or vegan, then there are different causes of poor absorption. One is pernicious anemia and you may want to join their community. Auto immune disorders such as hashimotos disease and underactive thyroid, are another as are certain medications.

As for the injections it depends on how long you have been deficient, and you need to check your folate as it needs to be good for b12 to work. If you have neurological symptoms, numbness, pins and needles, memory loss etc, then treatment is injections every other day until symptoms stop improving and then every 8 weeks. This is for life. If you have no neurological symptoms then loading doses on alternate days for 2 weeks then every 12 weeks. However, most people nee them more frequently than 8 or 12 weeks and end up self injecting.

As well as the PA forum, you should read the b12 websites b12deficiency.org and b12d.info

Fibromyalgia is iften a misdiagnosis of b12 deficiency. I have injections every 6 weeks (I had to fight for them at all), and self inject in between. But, I have my life back. Good luck!

2 likes
Reply

You may also like...