How Does Fibromyalgia Affect You On A Daily Basis

[Fibroguy66]

Hello 👋 I'm looking into & trying to see how fibromyalgia affects people on a daily basis etc.

Would love to hear from you all if possible stating in detail what it has done to your everyday lifestyle etc since being diagnosed.

I know with fibromyalgia myself how the 24/7 pain affects me,but we all suffer in different ways & with different affects etc,being man & woman.

Does Anyone Have The Following Symptoms To Me Please

Shortness of breath doing the slightest thing.

IBD/IBS when traveling in a vehicle or even at any other time.

Tired & fatigued.

Any kind of stress or worry or trauma when faced with it direct or receiving bad news & what time period does this take toll on you 😞 being days/weeks/months etc.

Physical body pain.

Headaches.

Trouble concentrating.

Cannot walk further than 20 metres.

I do not want to know about any medication here please,as I'm looking at standalone fibromyalgia without medicine 💊 or CBT therapy or Thai chi or breathing exercises etc.

Dr Google does not have the answers I'm looking for as most of it is text book stuff & sketchy to say the least.

Really any help here would be totally fantastic & most grateful 🙏🏻

The very kindest of regards

[Dizzytwo]

Hi, this is a question that is asked very, very frequently. Have you tried our search engine. I am sure you will find many answers to your question . Both past and present x

Momo

[Hidden]

do you honestly have pain 24/7? 365 days a year? Do you ever have a day without pain?

[Fibroguy66 in reply to Hidden]

Yes honestly & truthfully have pain in some shape or form 24/7Painkillers or neuro blockers simply don't work.

Had to have a 2 wide awake hospital 🏥 internal examinations done without pain relief & boy did it hurt etc.

If my pain was electricity then I think it would power a town.

Fibromyalgia shows no mercy

[Animalover39]

I’d say yes I get tiredness

Get out breath sometimes going up the stairs, headaches yes or migraines sickness so achy especially top part i also get cold body even if I’m warm all over not sure if this is fybro I got ibs to life’s just shit I do struggle sometimes trying to remember stuff

[LauLau212]

I am in pain in bed before I even get up, when my feet hit the floor for the first time it’s excruciating, I liken it to walking with broken glass feet. I have pain in my ribs, upper right arm, upper spine, lower back, left hip and knee every day that is always present. Other days I can get pain or muscle fatigue elsewhere (for instance last night I could barley lift my arms up - this morning they feel ok)

I have fatigue that comes and goes in waves. One day I can just get down stairs and I feel like I need to sleep again, another day it hits me around 2pm and I feel exhausted (wiped out, not just tired).

If I shower it takes me about an hour and a half to function again after. If I walk the dog I get stiffness in my muscles after to a point I can’t walk and it’s painful to even try.

I have a headache majority of days. This sometimes shifts with pain medications and then other days it won’t and I have to take migraine medications - and if I end up taking these I am basically unable to function for the rest of the day.

I get out of breath just climbing the stairs. I’m only 42 and I refer to myself as feeling like I’m 90.

Hope that’s helpful.

[Labradoodlelove]

in answer to your question, I dread going to bed at night and when I eventually get a few hours sleep I then have to face another day of doing activities that take my mind off the damn symptoms and then the procedure goes again. So you could say I hate it all

[Guppy_mama]

I am curious as to how you will use the information. Are you writing an academic paper or sitting on a tribunal? TIA

[Fibroguy66 in reply to Guppy_mama]

Hello None of what you mentioned.

I'm looking at how my fibromyalgia symptoms relate to others etc.

Looking for possible links & connections.

I definitely know that it is not a mental health issue as such or people that believe they have something they don't have.

[Lindah123]

yes I have all those symptoms but not at the same time

[Potsky]

Hello Fibroguy66,

Thank-you for your post.

I do suffer from shortness of breath when I try to do things especially walking or climbing up stairs. I had never realized that that could be due to Fibromyalgia.

I am always tired and lacking in energy and sometimes having to give in to what I call my ‘write off days’. If I have something planned, I need to rest the day before and can be wiped out afterwards for a couple of days.

If I am stressed or frustrated with anything then my pain increases which can stress me out more as I become ’locked up’ and blame myself for being stressed.

Concentration and focus are also affected.

The pain can be anywhere and is constant. I have started to pay for physio and each week it seems to be another part of me that needs working on.

I hope this is helpful.

[Fibroguy66 in reply to Potsky]

Hello 👋 & lovely to hear from you.Yes I relate totally to how you feel.

Forever what you have written ticks all my boxes for sure.

Personally I feel that fibromyalgia is the new word for torture.

Stress certainly is a arrow to the heart & soul.

People don't believe that I suffer from 24/7 pain in the real world & on this site.

There has to be a answer to this fibromyalgia.

I've researched so much that my fingers hurt scrolling through the internet & reading books.

Even went as far as looking at ancient written texts from around the world 🌎.

It's definitely central nervous system related in the human body,even found that animals can suffer from it to,so heaven knows how they live when they cannot explain.

Personally to me I feel that everyday is the same & life is locked into a constant repeating loop.

[fibrogirl41]

Bless you, hydrotherapy helps, light exercise if you can any in water, hope you are okayxx

[Fibroguy66 in reply to fibrogirl41]

HiStarting hydrotherapy in April hopefully,so will have to see what happens 😉

[Bhasvic64]

Sorry can't help much I have pain and exhaust ion rely on paracetamol and buscapan and cream for 'jumpy' legs.

[Jibb in reply to Bhasvic64]

magnesium lotion is very good for jumpy legs. I use it at night and it works for me

[Broadfield]

I also have pain 24/7 although I'm good at blocking it out.I have headaches and nausea most days.

Exhausted at varying levels every day.

On a good day can walk about a mile on the flat.

Sometimes I sleep for 12hours at night and 3during the day, other nights lucky to have 2hours.

Bouts of itchy skin and burning.

Dizzy spells.

Brain fog.

Clumsy so always have a bruise somewhere.

Very poor memory for the past and present.

Lost my career, my social life and one or two friends.

Every day is different and difficult.

[Fibroguy66 in reply to Broadfield]

Definitely can relate strongly to your ongoing symptoms & yes it definitely wipes you out on all levels etc.I'm so down and fed up feeling like I do.

[Hidden]

I've had Fibromyalgia for so long that it is my "normality" that I have learned to live with and accept that it isn't going to go away.

What were once "adaptations" are now daily, run of the mill routines.

Now what would really affect me on a daily basis would be my doctor saying

"Hey Carl! They've found a cure for Fibromyalgia...Take one of these twice a day."

I'd have to get used to a "new normal" all over again but it would be a lot more fun than last time.