How Does Fibromyalgia Affect You On A Daily Basis

[Fibroguy66]

Hello 👋 I'm looking into & trying to see how fibromyalgia affects people on a daily basis etc.

Would love to hear from you all if possible stating in detail what it has done to your everyday lifestyle etc since being diagnosed.

I know with fibromyalgia myself how the 24/7 pain affects me,but we all suffer in different ways & with different affects etc,being man & woman.

Does Anyone Have The Following Symptoms To Me Please

Shortness of breath doing the slightest thing.

IBD/IBS when traveling in a vehicle or even at any other time.

Tired & fatigued.

Any kind of stress or worry or trauma when faced with it direct or receiving bad news & what time period does this take toll on you 😞 being days/weeks/months etc.

Physical body pain.

Headaches.

Trouble concentrating.

Cannot walk further than 20 metres.

I do not want to know about any medication here please,as I'm looking at standalone fibromyalgia without medicine 💊 or CBT therapy or Thai chi or breathing exercises etc.

Dr Google does not have the answers I'm looking for as most of it is text book stuff & sketchy to say the least.

Really any help here would be totally fantastic & most grateful 🙏🏻

The very kindest of regards

[Dizzytwo]

Hi, this is a question that is asked very, very frequently. Have you tried our search engine. I am sure you will find many answers to your question . Both past and present x

Momo

[Scooterz2]

do you honestly have pain 24/7? 365 days a year? Do you ever have a day without pain?

[Fibroguy66 in reply to Scooterz2]

Yes honestly & truthfully have pain in some shape or form 24/7Painkillers or neuro blockers simply don't work.

Had to have a 2 wide awake hospital 🏥 internal examinations done without pain relief & boy did it hurt etc.

If my pain was electricity then I think it would power a town.

Fibromyalgia shows no mercy

[Animalover39]

I’d say yes I get tiredness

Get out breath sometimes going up the stairs, headaches yes or migraines sickness so achy especially top part i also get cold body even if I’m warm all over not sure if this is fybro I got ibs to life’s just shit I do struggle sometimes trying to remember stuff

[LauLau212]

I am in pain in bed before I even get up, when my feet hit the floor for the first time it’s excruciating, I liken it to walking with broken glass feet. I have pain in my ribs, upper right arm, upper spine, lower back, left hip and knee every day that is always present. Other days I can get pain or muscle fatigue elsewhere (for instance last night I could barley lift my arms up - this morning they feel ok)

I have fatigue that comes and goes in waves. One day I can just get down stairs and I feel like I need to sleep again, another day it hits me around 2pm and I feel exhausted (wiped out, not just tired).

If I shower it takes me about an hour and a half to function again after. If I walk the dog I get stiffness in my muscles after to a point I can’t walk and it’s painful to even try.

I have a headache majority of days. This sometimes shifts with pain medications and then other days it won’t and I have to take migraine medications - and if I end up taking these I am basically unable to function for the rest of the day.

I get out of breath just climbing the stairs. I’m only 42 and I refer to myself as feeling like I’m 90.

Hope that’s helpful.

[Labradoodlelove]

in answer to your question, I dread going to bed at night and when I eventually get a few hours sleep I then have to face another day of doing activities that take my mind off the damn symptoms and then the procedure goes again. So you could say I hate it all

[Guppy_mama]

I am curious as to how you will use the information. Are you writing an academic paper or sitting on a tribunal? TIA

[Lindah123]

yes I have all those symptoms but not at the same time

[Potsky]

Hello Fibroguy66,

Thank-you for your post.

I do suffer from shortness of breath when I try to do things especially walking or climbing up stairs. I had never realized that that could be due to Fibromyalgia.

I am always tired and lacking in energy and sometimes having to give in to what I call my ‘write off days’. If I have something planned, I need to rest the day before and can be wiped out afterwards for a couple of days.

If I am stressed or frustrated with anything then my pain increases which can stress me out more as I become ’locked up’ and blame myself for being stressed.

Concentration and focus are also affected.

The pain can be anywhere and is constant. I have started to pay for physio and each week it seems to be another part of me that needs working on.

I hope this is helpful.