Fibromyalgia An Insight

[Fibroguy66]

Imagine if you will or can that fibromyalgia is like a massive electrical storm or a massive electrical explosion inside your body.Every nerve becomes like a conductor that pulls in the continuity of the electricity.

The impulse pain is so immense & the internal nerves cannot settle normally.

To be positive about this,there in no cure & definitely no medicine that works & that is fact.

Fibromyalgia is not in the head although the pain does travel everywhere,but people who think you've lost the plot or mentally ill,should think again before upsetting you.

Fibromyalgia is internal nerve & electric bio damage.

Not a fan of CBT personally because asking one how they feel & how are your meds,isn't hitting home in a positive helping manner.

One must learn how to ground or half manage the pain.

Solution pace yourself & do the things that you enjoy & can do in a controlled manner.

Don't let others control you with there negative remarks as this in turn will definitely turn up the voltage & this is definitely not what you need.

So fibromyalgia is like 240 plus volts of electricity so it's time to try & reduce this to 12 volts then get it down to 6 volts so life can become a little more comfortable etc.

Only we can make a difference to our internal selves.

If people or situations arise that cause you trauma then just walk or wheel yourself away.

Kindest Regards

[desquinn Partner Volunteer FMAUK Trustee]

"To be positive about this,there in no cure & definitely no medicine that works & that is fact."

incorrect on the medicine "fact"

"Fibromyalgia is internal nerve & electric bio damage."

not correct on the first point and no idea what the second bit means.

"Not a fan of CBT personally because asking one how they feel & how are your meds,isn't hitting home in a positive helping manner."

It helps people and some cite it as one of the most important tools in their toolkit

"One must learn how to ground or half manage the pain."

Not sure what this means but dealing with the pain will help overall management.

I think you are generally trying to put forward a pacing metaphor which is helpful but remember your experience may not be others so professing solutions that could be taken as pronouncements for all is not the best idea.

[Yassytina FMA UK Volunteer]

Agree we must pace ourselves daily and yes we can walk away from situations, or stress as that will not help our Fibro, we try our best each day too keep positive and for some it’s about finding things that can help our pain , I am trying a Hemp cream extra strong at the moment on certain areas and I have found it beneficial (I always run anything new by my doctor/pharmacist) .

[Miacaro45 in reply to Yassytina]

I have found CBD cream helpful

[Smilesalot in reply to Yassytina]

Hi Yassytina 🤗,Can you remember what it is called ?

And price approximately.

Id love something to to take the edge off in the morning and evening.

I'm so pleased it helps you.

How are you feeling today honey ?🤗🤗🤗

Dawn 🤗🤗🤗🤗😀😀😀😍

[Yassytina FMA UK Volunteer in reply to Smilesalot]

Hi lovely, back from hearing test , gonna have 2 small aids in my ears, so many people have hearing loss and such a Stigma not wearing something and I’ve grown my hair so cannot even see them 😉it’s a Cannabi hemp cream extra strong made with Rosemary Arnica Eucalyptus 200ml it was around 15 pounds but they did a smaller size say if someone was trying it out,(I’m guessing you l check with your doc /pharmacist it’s okay for you too use) saw it advertised on Amazon, Boots, EBay etc, I’m proper pooped now but made a Pork/apple Casserole ,roasties etc before I went out 😃xx

[Smilesalot in reply to Yassytina]

Sounds delicious 😋😋😋😋.I'm glad you got ur hearing aids😇🤗🤗🤗😁

I can barely hear the tv when Jon puts the sound to what he prefers.

You'll be great hearing easily. What was the test like ?

I also don't like things too loud.

Good luck when you them Yassytina 🤗,

[Yassytina FMA UK Volunteer in reply to Smilesalot]

Yes very straightforward sit in a booth with head phones and click a button when you hear a Sound x

[Smilesalot in reply to Yassytina]

Hugs Yassy🤗🤗🤗🤗. Struggling to breathe😑I did one of my inhalers. It's a pill you put in contraption press red bit and breathe in. It makes a sound just like my bad tempered swan Demon as he replied😂😂😂😂😂😂😂😉😉😅😆

That had me coughing lol.

I've been up since 5 am. I'm too aware.. Been reading.

Hope you're ok sweetie hugs 🤗🤗🤗

[Fibroguy66]

Excellent source is to find alternative relief for pain

[Hidden]

I think it is very unhelpful to be disparaging about mental health.

How would you feel if people were dismissive about your condition and described it as "lost the plot"?

Oh...you just did.

Funny how we can be defensive about our own issues but disparaging about others.

[DoubleMalibu]

I personally found your post to be quite dismissive & negative, not the insight you stated.

I’ve had M.E for 30+ yrs & fibromyalgia many years layered on top, I also have a lot of other painful conditions.

I just take each day as it comes, I’ve raised several children while I’ve been suffering in extreme pain & gone through major traumatic events, that have impacted everything even more.

Also being pregnant & coping with M.E is no fun.

But I’m pleased to say, my children have excelled, because I chose to push through how I felt, to be very present in their lives.

It wasn’t easy, but it was personally important to me and I learnt when to rest & how to manage conditions I had, for my needs & my children’s.

I’ve had CBT and in part, it actually helped, I had to play my part in it, as-well as the therapist, for it to work.

Also, for some people who can tolerate certain meds, there is help.

Because I can’t find something to help me, i wouldn’t dismiss what may help someone else.

Everyone is different, with very different experiences and levels of pain.

I personally, just try to deal with everything in a straightforward, realistic manner & not dwell.

I get on with what’s needed, & cope with the after effects if need be.

I use common sense & don’t complicate my life.

But then this is how I cope with my life, we’re all different and have to find our individual ways to cope.

Good luck with finding yours🍀