Changes with Pip.: Hi. Wondering if... - Fibromyalgia Acti...

Fibromyalgia Action UK

60,185 members67,417 posts

Changes with Pip.

Curlysue223 profile image
11 Replies

Hi. Wondering if anyone here has ever informed dwp about mobility changes for Pip.Do I need to fill in another form or just tell them about any changes.Last year was diagnosed with MS and osteoarthritis as well as having fibro for year's.Any advice would be great.

Written by
Curlysue223 profile image
Curlysue223
To view profiles and participate in discussions please or .
Read more about...
11 Replies
Dinkie profile image
Dinkie

DWP state that any changes should be notified to them. However having said that it's not the diagnosis that entitles you to the award it is how it affects your daily living and mobility. If your mobility or ability for daily living has worsened then you will probably need to fill in yet another review form. Please contact the HU benefits advice, or Turn to Us or Benefits and Work or Scope or one of the many charities particularly familiar with changes in personal circumstances around PIP claims. Hope this helps

Curlysue223 profile image
Curlysue223 in reply toDinkie

Thanks for your reply.I'll contact one of the organisations you've mentioned.Been putting it off as haven't got the energy but know I should do something.Thanks for your advice.

Purplelife123 profile image
Purplelife123 in reply toCurlysue223

I would say definitely get someone to help as I’m sure whenever you change anything they ask you to do the whole thing again. ( no wonder they have a constant backlog)

Curlysue223 profile image
Curlysue223 in reply toPurplelife123

Hi. Was hoping could just be informing them of any changes and sending proof. Thanks for your reply.

Purplelife123 profile image
Purplelife123 in reply toCurlysue223

God how simple it would be if they let you do that it’s like they are making work for themselves but I think it is also to put you off. Good luck.

Curlysue223 profile image
Curlysue223 in reply toPurplelife123

That's the problem does put genuine people off as haven't got the energy.Like you say be simple if just about change's.lifes not that simple.lol.Thanks for your reply.

Sisterstogether profile image
Sisterstogether in reply toCurlysue223

Hi Curlysue

I have severe grade 4 osteoarthritis of my right hip and informed the DWP last year of a change in my mobility. I had to complete a change of circumstances form

I sent a lot of evidence to support my claim ie scan results/ x Rays. A&E visits

Wheelchair assessment form etc. I described how my limited mobility affected and impacted on my daily activities of living.

I was awarded mobility without a telephone or face to face interview.

Hope this helps.

catherine19611 profile image
catherine19611

i have notified them of changes they called me a liar and said that nothing had changed, i had the covid vaccine, never had covid, but the vaccine sent my chronic fatigue off the scale and left me only being able to do about 10 minutes a day of normal daily activity. i also have a full spine mri that i dont think they have taken into account either, and i saw a consultant last year who said that my chronic fatigue was now severe chronic fatigue and that i need to rest a lot and this needed to be lying down, but i am allegedly a liar.

i also heard a report that the assessors at that time had been told that they had got to reject 65% of their daily assessments and that included ones who qualified for PIP. so, dont hold your breath

Curlysue223 profile image
Curlysue223 in reply tocatherine19611

Thanks for your reply. I know they won't make it easy.

HyacinthBouquet1 profile image
HyacinthBouquet1

Hello Curlysue.I am so sorry about your horrible experience.

I too filled in all the required forms, had my assessment and was rejected twice. I decided to push through and complain to the courts. I started the court process and whilst I was waiting for the court hearing date I got a letter out of the blue stating that the DWP was going to look at my claim again and that they had made an error in their assessments. I think if you have the energy please keep trying and you will prevail. I know it us not easy but you need the money to get some assistance in your day. Good luck to you!

Curlysue223 profile image
Curlysue223 in reply toHyacinthBouquet1

Thanks for your reply. I will have to get some energy from somewhere and persevere.

Not what you're looking for?

You may also like...

Please help with PIP

Hi there, This is going to take me about an hour to write because I'm so stiff. I've just applied...
Sofia_Rose profile image

PIP

I've just received my pip a few months ago and I've got higher rate which is excellent news they...

PIP

Had my PIP assessment today after applying in JULY!! Been told it will be about a month. Anybody...

Struggling with pip

I’m being encouraged to claim for pip but I’m really struggling to fill it in . My anxiety is...
Smurf69 profile image

Help with PIP forms

Hi everyone! Hope you're all as well as you can be, I'm just starting a claim for PIP, I'm just...
covbabe profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.